The Sudden Arrhythmia Death Syndromes Foundation
- Assets
- $872.3k
- Revenue
- $843.7k
- Investments
- $0.0
- Employees
- 6
- Location
- Salt Lake City, UT
- Founding
- 05/1992
- Data as of
- 12/2020
- EIN
- 87-0492100
Organization Overview
The Sudden Arrhythmia Death Syndromes Foundation is located in Salt Lake City, UT. The organization was established in 1992. As of 12/2020, Sudden Arrhythmia Death Syndromes Foundation employed 6 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Sudden Arrhythmia Death Syndromes Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2020, Sudden Arrhythmia Death Syndromes Foundation generated $843.7k in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 1.3% each year. All expenses for the organization totaled $464.5k during the year ending 12/2020. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
THE ORGANIZATION'S MISSION IS TO SAVE THE LIVES OF CHILDREN AND YOUNG ADULTS WHO ARE GENETICALLY PREDISPOSED OR OTHERWISE SUSCEPTIBLE TO SUDDEN DEATH TO CARDIAC ARRHYTHMIAS AND TO PROVIDE EDUCATION AND SUPPORT TO FAMILIES AND THE MEDICAL COMMUNITY WHO ARE DEALING WITH THESE DISORDERS. THE SADS FOUNDATION IS DEDICATED TO PROVIDING INFORMATION, ASSISTANCE, AND HOPE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE SADS FOUNDATION PROVIDES INFORMATION, ASSISTANCE, AND HOPE RELATED TO THIS DISEASE. IN FULFILLING THIS MISSION, THE ORGANIZATION HAS THE FOLLOWING GOALS: EDUCATION: TO EDUCATE HEALTH CARE PROVIDERS AND LAY PUBLIC TO PROMOTE EARLY DIAGNOSIS AND TREATMENT. PATIENT SERVICES: TO SERVE AS A PHYSICIAN REFERRAL RESOURCE AND TO PROVIDE INFORMATION TO PHYSICIANS WHO CARE FOR PATIENTS WITH CARDIAC ARRHYTHMIAS. SUPPORT SERVICES: TO ASSIST ALL THOSE AFFECTED BY THE SUDDEN DEATH OF AN INFANT. PUBLIC AWARENESS: TO INFORM FAMILIES, PHYSICIANS, AND COMMUNITIES ABOUT THE GENETIC CARDIAC ARRHYTHMIAS IN THE YOUNG AND THEREBY PREVENT SUDDEN CARDIAC DEATH IN YOUNG PEOPLE. RESEARCH: TO ENCOURAGE RESEARCH ON GENETIC CARDIOVASCULAR DISEASES PREDISPOSING THE YOUNG TO SUDDEN DEATH.
THE SADS FOUNDATION PROVIDES INFORMATION, ASSISTANCE, AND HOPE RELATED TO THIS DISEASE. IN FULFILLING THIS MISSION, THE ORGANIZATION HAS THE FOLLOWING GOALS: EDUCATION: TO EDUCATE HEALTH CARE PROVIDERS AND LAY PUBLIC TO PROMOTE EARLY DIAGNOSIS AND TREATMENT. PATIENT SERVICES: TO SERVE AS A PHYSICIAN REFERRAL RESOURCE AND TO PROVIDE INFORMATION TO PHYSICIANS WHO CARE FOR PATIENTS WITH CARDIAC ARRHYTHMIAS. SUPPORT SERVICES: TO ASSIST ALL THOSE AFFECTED BY THE SUDDEN DEATH OF AN INFANT. PUBLIC AWARENESS: TO INFORM FAMILIES, PHYSICIANS, AND COMMUNITIES ABOUT THE GENETIC CARDIAC ARRHYTHMIAS IN THE YOUNG AND THEREBY PREVENT SUDDEN CARDIAC DEATH IN YOUNG PEOPLE. RESEARCH: TO ENCOURAGE RESEARCH ON GENETIC CARDIOVASCULAR DISEASES PREDISPOSING THE YOUNG TO SUDDEN DEATH.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Alice Lara Executive Di | Officer | 40 | $80,000 |
Joanna Bewick Board Member | Trustee | $0 | |
Maully Shah Mbbs Fhrs Facc Board Member | Trustee | $0 | |
Scott Dailard Secretary | Trustee | $0 | |
Laurie Smith Hooper Board Member | Trustee | $0 | |
Philip Murray Howard III Treasurer | Trustee | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $92,698 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $788,925 |
| Noncash contributions included in lines 1a–1f | $261,851 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $881,623 |
| Total Program Service Revenue | $0 |
| Investment income | $18,145 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$56,936 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $843,688 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $295,398 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $23,802 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $26,371 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $25,488 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $19,680 |
| Travel | $86 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $38,863 |
| Interest | $20 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,841 |
| All other expenses | $6,452 |
| Total functional expenses | $464,515 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $530,973 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $1,180 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $3,265 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $335,350 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1,500 |
| Total assets | $872,268 |
| Accounts payable and accrued expenses | $27,988 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $47,451 |
| Total liabilities | $75,439 |
| Net assets without donor restrictions | $605,160 |
| Net assets with donor restrictions | $191,669 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $872,268 |
Grants Recieved
Over the last fiscal year, we have identified 6 grants that The Sudden Arrhythmia Death Syndromes Foundation has recieved totaling $31,946.
| Awarding Organization | Amount |
|---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $10,557 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $10,330 |
Steele Family Foundation 10112009 Arlington, VA PURPOSE: WORKS TO SAVE THE LIVES AND SUPPORT THE FAMILIES OF THOSE WITH SADS | $10,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $859 |
Pfizer Foundation Inc New York, NY PURPOSE: MATCHING GIFTS | $100 |
Lazard Foundation New York, NY PURPOSE: UNRESTRICTED | $100 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Translational Genomics Research Institute Phoenix, AZ | $224,233,974 | $175,687,790 |
J David Gladstone Institutes San Francisco, CA | $318,407,379 | $84,274,665 |
Oklahoma Medical Research Foundation Oklahoma City, OK | $499,810,540 | $126,016,814 |
Lundquist Institute For Biomedical Innovation At Harbor-Ucla Medical Torrance, CA | $198,389,340 | $88,849,610 |
Wellcome Leap Inc Culver City, CA | $553,318,259 | $346,259,833 |
La Jolla Institute For Immunology La Jolla, CA | $60,537,089 | $80,623,646 |
Lovelace Biomedical Research Institute Albuquerque, NM | $189,542,168 | $89,255,628 |
Chan Zuckerberg Biohub Inc San Francisco, CA | $338,316,919 | $10,314,755 |
Texas Biomedical Research Institute San Antonio, TX | $256,689,852 | $72,880,870 |
Baylor Research Institute Dallas, TX | $167,191,620 | $77,117,798 |
Dean Mcgee Eye Institute Oklahoma City, OK | $54,603,133 | $49,025,501 |
Huntsman Cancer Foundation Salt Lake City, UT | $266,610,959 | $34,840,690 |