Alzheimers Disease Data Initiative Inc
- Assets
- $5.3m
- Revenue
- $13.0m
- Investments
- $0.0
- Employees
- 0
- Location
- Kirkland, WA
- Founding
- Data as of
- 12/2023
- EIN
- 85-3776266
Organization Overview
Alzheimers Disease Data Initiative Inc is located in Kirkland, WA. According to its NTEE Classification (G83) the organization is classified as: Alzheimers Disease, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Alzheimers Disease Data Initiative Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE ORGANIZATION IS DEDICATED TO ADVANCING SCIENTIFIC BREAKTHROUGHS IN THE DIAGNOSIS, PREVENTION & TREATMENT OF ALZHEIMERS DISEASE AND RELATED DEMENTIAS
Describe the Organization's Program Activity:
Part 3 - Line 4a
DEVELOPMENT AND TESTING OF THE AD WORKBENCH, WHICH WILL SYSTEMATIZE AND CLASSIFY THE BODY OF SCIENTIFIC KNOWLEDGE RELATED TO ALZHEIMER'S DISEASE AND RELATED DEMENTIAS IN ORDER TO PRESENT IT IN A USEFUL FORM. THE AD WORKBENCH HAS PERMISSIONED ACCESS TO 64 DATASETS; IT WILL ALLOW RESEARCHERS TO MORE EASILY UTILIZE THIS DATA AND PROVIDE RESOURCES AND TOOLS AT NO COST TO THE RESEARCHERS.
USE OF THE AD WORKBENCH AND RELATED ACTIVITY TO CONDUCT AD RESEARCH AND SUPPORT OTHERS' RESEARCH BY PROVIDING A DATA SHARING TOOLS AND RESOURCES. APPOXIMATELY 4,438 ALZHEIMER'S AND RELATED DEMENTIA RESEARCHERS FROM 114 COUNTRIES HAVE REGISTERED FOR AN ACCOUNT TO USE THE AD WORKBENCH TO DISCOVER, ACCESS, AND ANALYZE ALZHEIMER'S DISEASE AND RELATED DEMENTIAS DATASETS. APPROXIMATELY 1,362 WORKSPACES HAVE BEEN COMMISSIONED, AND 534 REQUESTS MADE TO ACCESS DATASETS ON THE AD WORKBENCH.
COMMUNICATIONS AND EXTERNAL ENGAGEMENT REGARDING THE IMPORTANCE OF AD RESEARCH AND THE DATA SOURCES, RESOURCES AND METHODOLOGIES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Name Not Listed Director | Trustee | 5 | $0 |
Name Not Listed Director | Trustee | 1 | $0 |
Name Not Listed Secretary | Officer | 10 | $0 |
Name Not Listed Executive Director | Officer | 40 | $0 |
Name Not Listed Treasurer | Officer | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Aridhia Informatics Limited Research And Development | 12/30/23 | $3,094,678 |
Evalueserve Inc Research And Development | 12/30/23 | $1,351,875 |
Formative Communications & Mktg Support | 12/30/23 | $906,227 |
The Institute For Health Metrics And Evaluation Research And Development | 12/30/23 | $910,000 |
Fingers Brain Health Institute Research And Development | 12/30/23 | $1,000,000 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $12,920,879 |
| Noncash contributions included in lines 1a–1f | $6,380,210 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $12,920,879 |
| Total Program Service Revenue | $0 |
| Investment income | $149,231 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$106,822 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $12,963,288 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,107,269 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $2,330,911 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $424,876 |
| Fees for services: Legal | $212,808 |
| Fees for services: Accounting | $151,691 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $921,477 |
| Advertising and promotion | $861,171 |
| Office expenses | $10,688 |
| Information technology | $5,216,471 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $20,412 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $11,257,774 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,749,999 |
| Savings and temporary cash investments | $3,518,066 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $51,637 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $5,319,702 |
| Accounts payable and accrued expenses | $430,464 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $430,464 |
| Net assets without donor restrictions | $4,889,238 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $5,319,702 |
Grants Awarded
Over the last fiscal year, Alzheimers Disease Data Initiative Inc has awarded $1,107,269 in support to 8 organizations.
| Grant Recipient | Amount |
|---|---|
BOSTON UNIVERSITY PURPOSE: To support data analysis and other research conducted as well as the Framingham Heart Study project (for accelerating discovery for AD treatment and prevention through a novel data accessibility strategy) | $365,766 |
BANNER ALZHEIMERS INSTITUTE PURPOSE: To support activities to make the anonymized API Generation datasets available to the scientific community via the Laboratory of Neuroimaging (LONI) | $295,500 |
ANSWER ALS PURPOSE: To support the Answer ALS/ADDI Interoperability Project | $150,000 |
UNIVERSITY OF WASHINGTON FOUNDATION PURPOSE: To support the Computational Ophthalmology Research Fund in research being conducted in computational ophthalmology | $91,253 |
VIVLI INC PURPOSE: To support the Maintain Vivli ADDI Platform Connection Project | $54,750 |
ALLEO LABS CORPORATION PURPOSE: To support fellow research through the William H. Gates Sr. Fellowship program | $50,000 |