The American Porphyrias Expert Collaborative Inc
- Assets
- $232.7k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- Bethesda, MD
- Founding
- Data as of
- 12/2023
- EIN
- 84-4857909
Organization Overview
The American Porphyrias Expert Collaborative Inc is located in Bethesda, MD. According to its NTEE Classification (H90) the organization is classified as: Medical Disciplines Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. American Porphyrias Expert Collaborative Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, American Porphyrias Expert Collaborative Inc generated $83.6k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 3 years, the organization has seen revenues fall by an average of (21.4%) each year. All expenses for the organization totaled $77.4k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO PROMOTE AND CARRY OUT RESEARCH, AND PROMOTE EDUCATIONAL ACTIVITIES, REGARDING PORPHYRIAS AND HEME BIOSYNTHESIS THROUGH DEVELOPMENT OF BEST PRACTICES, RESEARCH SUPPORT, AND EDUCATION.
Describe the Organization's Program Activity:
Part 3
THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE (APEX) ADVANCED THE AREA OF RESEARCH SUPPORT BY PROVIDING GRANTS THROUGH THE NEXT GENERATION (NEXTGEN) INITIATIVE, WHICH SEEKS TO EDUCATE AND TRAIN THE NEXT GENERATION OF PORPHYRIA EXPERTS.
THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE (APEX) ADVANCED THE AREA OF RESEARCH SUPPORT BY PROVIDING GRANTS THROUGH THE NEXT GENERATION (NEXTGEN) INITIATIVE, WHICH SEEKS TO EDUCATE AND TRAIN THE NEXT GENERATION OF PORPHYRIA EXPERTS.
APEX ADVANCED THE AREA OF EDUCATION BY CONTINUING A FISCAL SPONSORSHIP AGREEMENT WITH THE UNITED PORPHYRIAS ASSOCIATION (UPA) TO SUPPORT THE ESTABLISHMENT OF UPA AS A PATIENT ADVOCACY ORGANIZATION TO ADVANCE PATIENT INVOLVEMENT IN RESEARCH, TREATMENT, AND DIAGNOSIS OF THE PORPHYRIAS.
APEX ADVANCED THE AREA OF EDUCATION BY CONTINUING A FISCAL SPONSORSHIP AGREEMENT WITH THE UNITED PORPHYRIAS ASSOCIATION (UPA) TO SUPPORT THE ESTABLISHMENT OF UPA AS A PATIENT ADVOCACY ORGANIZATION TO ADVANCE PATIENT INVOLVEMENT IN RESEARCH, TREATMENT, AND DIAGNOSIS OF THE PORPHYRIAS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Robert Desnick President | 3 | $0 | |
John Phillips Vice President | 1 | $0 | |
Kristen Wheeden Secretary-Treas | 5 | $0 | |
Manisha Baldwani Director | 1 | $0 | |
Richard Bissell Director | 1 | $0 | |
Herbert Bonkovsky Director | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $83,574 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $0 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $0 |
| Total Revenue | $83,574 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $0 |
| Occupancy, rent, utilities, and maintenance | $3,600 |
| Printing, publications, postage, and shipping | $0 |
| Other expenses | $7,685 |
| Total expenses | $77,436 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $232,721 |
| Other assets | $0 |
| Total assets | $232,721 |
| Total liabilities | $0 |
| Net assets or fund balances | $232,721 |
Grants Awarded
Over the last fiscal year, The American Porphyrias Expert Collaborative Inc has awarded $250,000 in support to 10 organizations.
| Grant Recipient | Amount |
|---|---|
MOUNT SINAI SCHOOL OF MEDICIN PURPOSE: SUPPORT HEME BIOSYNTHESIS RESEARCH | $25,000 |
UNIVERSITY OF ALABAMA BIRMING PURPOSE: SUPPORT HEME BIOSYNTHESIS RESEARCH | $25,000 |
UNIVERSITY OF TEXAS MEDICAL B PURPOSE: SUPPORT HEME BIOSYNTHESIS RESEARCH | $25,000 |
UNIVERSITY OF UTAH - HEMATOLO PURPOSE: SUPPORT HEME BIOSYNTHESIS RESEARCH | $25,000 |
WAKE FOREST BAPTIST MEDICAL C PURPOSE: SUPPORT HEME BIOSYNTHESIS RESEARCH | $25,000 |
MOUNT SINAI SCHOOL OF MEDICIN PURPOSE: SUPPORT HEME BIOSYNTHESIS RESEARCH | $25,000 |