Neuroacanthocytosis Advocacy Usa Incorporated
- Assets
- $44.9k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- Melbourne, FL
- Founding
- Data as of
- 12/2022
- EIN
- 84-3711526
Organization Overview
Neuroacanthocytosis Advocacy Usa Incorporated is located in Melbourne, FL. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Neuroacanthocytosis Advocacy USA Incorporated is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Neuroacanthocytosis Advocacy USA Incorporated generated $48.5k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 2 years, the organization has seen revenues fall by an average of (35.0%) each year. All expenses for the organization totaled $32.5k during the year ending 12/2022. As we would expect to see with falling revenues, expenses have declined by (42.3%) per year over the past 2 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2022
Describe the Organization's Program Activity:
Part 3
AWARDED A 2ND GRANT TO THE ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI FOR THE "NEUROPATHOLOGY OF NEUROACANTHOCYTOSIS" PROJECT A SIX-MONTH EXTENSION OF AN EXISTING RESEARCH GRANT FOR THE STUDY OF BRAIN TISSUE OF NEUROACANTHOCYTOSIS PATIENTS. ALSO COMPLETED INITIAL GRANT BEGUN IN 2021. BALANCE OF SECOND GRANT TO BE PAID IN 2023.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Susan Wager President | 4 | $0 | |
Joyce Willard-Williford VP Secretary Treasurer | 4 | $0 | |
Ruth Walker Director | 2 | $0 | |
Ginger Irvine Director | 2 | $0 | |
Robert Metzger Director | 2 | $0 | |
Candi Dimarzio Director | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $48,449 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $17 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $0 |
| Total Revenue | $48,466 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $0 |
| Occupancy, rent, utilities, and maintenance | $0 |
| Printing, publications, postage, and shipping | $0 |
| Other expenses | $73 |
| Total expenses | $32,486 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $44,924 |
| Other assets | $0 |
| Total assets | $44,924 |
| Total liabilities | $0 |
| Net assets or fund balances | $44,924 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Neuroacanthocytosis Advocacy Usa Incorporated has recieved totaling $9,478.
| Awarding Organization | Amount |
|---|---|
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $5,957 |
Schwartz Charitable Foundation Worcester, MA PURPOSE: TO SUPPORT EXEMPT PURPOSE | $3,500 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $21 |
Peer Organizations
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|---|---|---|
Multiple Sclerosis Center Of Georgia Inc Atlanta, GA | $14,597,977 | $12,400,152 |
Multiple Sclerosis Foundation Inc Ft Lauderdale, FL | $9,512,588 | $5,647,701 |
Amyotrophic Lateral Sclerosis Association Tampa, FL | $2,655,654 | $4,199,844 |
Prader-Willi Syndrome Association Sarasota, FL | $2,440,137 | $1,719,245 |
Amyotrophic Lateral Sclerosis Association Birmingham, AL | $312,683 | $815,281 |
Lupus Foundation Of America Florida Chapter Inc Boynton Beach, FL | $0 | $167,207 |
Next Step Atlanta Inc Alpharetta, GA | $246,220 | $603,149 |
Facial Pain Research Foundation Inc Gainesville, FL | $1,134,914 | $724,170 |
Nextstep Orlando Inc Altamonte Springs, FL | $280,488 | $408,503 |
Miami Sci Wellness Inc Miami, FL | $626,874 | $254,167 |
Alabama Sheet Metal Joint Industry Board Inc Birmingham, AL | $640,810 | $271,630 |
Independent Living Associates Of The Muscle Shoals Area Inc Florence, AL | $407,896 | $179,197 |