The Joshua Frase Foundation For Congenital Myopathy Research Inc

Organization Overview

The Joshua Frase Foundation For Congenital Myopathy Research Inc is located in Ponte Vedra Beach, FL. The organization was established in 1997. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Joshua Frase Foundation For Congenital Myopathy Research Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Joshua Frase Foundation For Congenital Myopathy Research Inc generated $214.0k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 11.1% each year . All expenses for the organization totaled $155.3k during the year ending 12/2021. While expenses have increased by 4.5% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2014, Joshua Frase Foundation For Congenital Myopathy Research Inc has awarded 30 individual grants totaling $146,333. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

RESEARCH FOR MYOTUBULAR MYOPATHY AND OTHER CONGENITAL MYOPATHIES, EDUCATIONAL INFORMATION, AND RESEARCH SUPPORT.

Describe the Organization's Program Activity:

Part 3 - Line 4a

RESEARCH


ASSISTANCE TO FAMILIES WITH THE PURCHASE OF NEEDED MEDICAL EQUIPMENT AND BEING A RESOURCE FOR EDUCATING FAMILIES WORLDWIDE ON THE CARE FOR THESE CRITICALLY ILL CHILDREN AS WELL AS PROVIDING RESOURCES FOR THEM


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Board, Officers & Key Employees

Name (title)Compensation
Alison Rockett-Frase
President
$95,207
Paul Frase
Secretary
$0
Lisa Nickerson
Vice President
$0
Daryl Johnston
Director
$0
Sean Klinkowize
Director
$0
Chad Hennings
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$200,551
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$200,551
Total Program Service Revenue$0
Investment income $7
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $213,958

Grants Awarded

Over the last fiscal year, The Joshua Frase Foundation For Congenital Myopathy Research Inc has awarded $10,000 in support to 5 organizations.

Grant RecipientAmount

BOSTON CHILDRENS HOSPITAL

PURPOSE: Research

$10,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 3 grants that The Joshua Frase Foundation For Congenital Myopathy Research Inc has recieved totaling $26,542.

Awarding OrganizationAmount
The Community Foundation For Northeast Florida Inc

Jacksonville, FL

PURPOSE: IN HONOR OF JOSHUA'S 16 YEARS OF LIFE AND IN CELEBRATION OF HIS PARENT'S DEDICATION TO FINDING A CURE FOR CONGENITAL MYOPATHIES

$16,000
Network For Good Inc

Washington, DC

PURPOSE: UNRESTRICTED

$9,870
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$672
View Grant Recipient Profile

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