Glioblastoma Research Organization Inc is located in Miami, FL. The organization was established in 2018. According to its NTEE Classification (T12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Philanthropy, Voluntarism & Grantmaking Foundations and related organizations. As of 12/2023, Glioblastoma Research Organization Inc employed 4 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Glioblastoma Research Organization Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Glioblastoma Research Organization Inc generated $832.0k in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 68.7% each year . All expenses for the organization totaled $480.3k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
RAISING AWARENESS AND FUNDS FOR NEW GLOBAL, CUTTING-EDGE RESEARCH TO FIND A CURE FOR GLIOBLASTOMA.
Describe the Organization's Program Activity:
Part 3 - Line 4a
SEE SCHEDULE O FOR DETAIL. THE ORGANIZATION TO DATE, HAS PROVIDED SUPPORT TO DOCTORS AND RESEARCHERS THROUGH EIGHT FULLY FUNDED PROJECTS AT U.S. BASED LEADING CANCER CENTERS. THE ORGANIZATION, ALSO DONATED OVER $425,000 IN THE LAST FEW YEARS AND HAS PARTNERED WITH GBM-RELATED PROJECTS AROUND THE GLOBE. THE ORGANIZATION HAS THE OPPORTUNITY TO MEET WITH LEADERS IN NEURO-ONCOLOGY AS WELL AS CONNECT WITH THE PEOPLE AND FAMILIES DIRECTLY IMPACTED BY GLIOBLASTOMA. THE STORIES BEHIND THIS DEADLY CANCER DRIVE OUR RESEARCH FUNDING MISSION. FUELED BY OUR FOUNDER'S PERSONAL EXPERIENCE WITH GBM, THE GLIOBLASTOMA RESEARCH ORGANIZATION'S COMMUNICATIONS CHANNELS, SUCH AS SOCIAL MEDIA, SERVE AS A BRIDGE TO CONNECT THOSE ALL OVER THE WORLD WHO ARE SUFFERING FROM GLIOBLASTOMA OR HAVE BEEN AFFECTED BY THE DISEASE. THE ORGANIZATION PROVIDE A HUB FOR COMMUNICATION WHERE PEOPLE IN THE SAME SITUATION CAN SHARE THEIR EXPERIENCES.
SEE SCHEDULE O FOR DETAIL. THE ORGANIZATION HAS ESTABLISHED OVER 15 UNIQUE CAMPAIGNS, TO CONTINUE ITS ADVOCACY WORK, TO SHARE THE STORIES OF PATIENTS AND CAREGIVERS DEALING WITH BRAIN CANCER IN ONE WAY OR ANOTHER. THE GLIOBLASTOMA AKA GBM PODCAST, IN WHICH THE HOST HAS MEANINGFUL AND INSIGHTFUL CHATS WITH MEDICAL PROFESSIONALS, PATIENTS, CAREGIVERS, AND BIOTECH COMPANIES - TO FURTHER AWARENESS AND PROVIDE ANOTHER OUTLET FOR COMMUNITIES TO LEARN ABOUT BRAIN CANCER, IS NOW GOING INTO ITS THIRD SEASON WITH OVER 50,000 DOWNLOADS SINCE CREATION.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Amber Barbach Founder And Executive Director | OfficerTrustee | 75 | $70,962 |
Elissa Barbach Vice President | OfficerTrustee | 20 | $8,000 |
Kylie Barnes Secretary | OfficerTrustee | 1 | $0 |
Marvin Lew Director | Trustee | 10 | $0 |
Katherine Snedeker Director | Trustee | 1 | $22,885 |
Yonatan Bardash Director | Trustee | 1 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $101,855 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $724,404 |
Noncash contributions included in lines 1a–1f | $2,099 |
Total Revenue from Contributions, Gifts, Grants & Similar | $826,259 |
Total Program Service Revenue | $0 |
Investment income | $0 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | $8,858 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | -$3,112 |
Miscellaneous Revenue | $0 |
Total Revenue | $832,005 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $100,000 |
Grants and other assistance to domestic individuals. | $4,000 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $106,897 |
Compensation of current officers, directors, key employees. | $31,914 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $22,414 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $10,241 |
Fees for services: Management | $0 |
Fees for services: Legal | $16,236 |
Fees for services: Accounting | $24,234 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $75,118 |
Advertising and promotion | $15,504 |
Office expenses | $22,910 |
Information technology | $12,699 |
Royalties | $0 |
Occupancy | $3,358 |
Travel | $42,050 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $824 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $471 |
Insurance | $0 |
All other expenses | $0 |
Total functional expenses | $480,261 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $393,677 |
Savings and temporary cash investments | $5,295 |
Pledges and grants receivable | $67,722 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $12,927 |
Net Land, buildings, and equipment | $1,227 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $12,093 |
Other assets | $0 |
Total assets | $492,941 |
Accounts payable and accrued expenses | $6,738 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $6,738 |
Net assets without donor restrictions | $486,203 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $492,941 |
Over the last fiscal year, Glioblastoma Research Organization Inc has awarded $100,000 in support to 2 organizations.
Grant Recipient | Amount |
---|---|
CHILDRENS HOSPITAL LOS ANGELES PURPOSE: TO SUPPORT GLIOBLASTOMA RESEARCH. | $50,000 |
STACHESTRONG INC PURPOSE: TO SUPPORT GLIOBLASTOMA RESEARCH. | $50,000 |