I Am Als
- Assets
- $2.4m
- Revenue
- $3.3m
- Investments
- $0.0
- Employees
- 13
- Location
- Washington, DC
- Founding
- 07/2019
- Data as of
- 12/2021
- EIN
- 83-2016277
Organization Overview
I Am Als is located in Washington, DC. The organization was established in 2019. According to its NTEE Classification (E86) the organization is classified as: Patient & Family Support, under the broad grouping of Health Care and related organizations. As of 12/2021, I Am Als employed 13 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. I Am Als is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, I Am Als generated $3.3m in total revenue. All expenses for the organization totaled $2.4m during the year ending 12/2021. While expenses have increased by 122.9% per year over the past 4 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
SEE PART III, LINE 1.
Describe the Organization's Program Activity:
Part 3 - Line 4a
DELIVER FOR PATIENTS - DELIVER A COMPREHENSIVE NAVIGATION PROGRAM SERVICING ALS PATIENTS AND THEIR FAMILIES TO EMPOWER PATIENTS AND THEIR FAMILIES WITH RELEVANT MEDICAL AND RESEARCH INFORMATION, SUPPORT THEM EMOTIONALLY, CONNECT THEM WITH PRACTICAL RESOURCES, AND HELP THEM BUILD A COMMUNITY AROUND THEM. I AM ALS NAVIGATION WILL CONNECT THOSE IT SERVES TO THE PROGRAMS AND SERVICES THAT BEST FIT THEIR NEEDS AND BE A PARTNER EVERY STEP OF THE WAY IN THEIR ALS JOURNEY.
MOBILIZE PATIENTS AND THEIR NETWORKS AND TRANSFORM PUBLIC UNDERSTANDING - PROVIDE A WAY FOR THOSE IMPACTED BY ALS TO SERVE AS A DRIVING FORCE IN MAKING PROGRESS IN THE ALS FIGHT. ENSURE THAT THOSE OUTSIDE OF THE ALS COMMUNITY KNOW WHAT ALS IS AND PROVIDE TOOLS FOR AN ARMY OF EMPOWERED ADVOCATES TO MAKE REAL PROGRESS ON POLICY AND LEGISLATIVE GOALS, INCREASE FUNDING FOR ALS RESEARCH, AND ENGAGE EVERYONE IN THIS FIGHT.
INCREASE RESEARCH FUNDING, PATIENT ACCESS TO TREATMENT, AND SPEEDING OF TREATMENTS AND CURES. BUILD AN ALS RESEARCH PLATFORM TO ENABLE TRANSFORMATIVE RESEARCH AND EXECUTE ON LEGISLATIVE PRIORITIES TO DRAMATICALLY INCREASE RESEARCH FUNDING, IMPROVE PATIENT ACCESS TO POTENTIALLY LIFE-CHANGING THERAPIES, AND DELIVER NEEDED SERVICES AND CARE FOR PEOPLE LIVING WITH ALS AND THEIR CAREGIVERS AND FUND RESEARCH GRANTS WITH THE AIM TO ADVANCE RESEARCH PROGRESS AND EXPAND TREATMENT ACCESS FOR PEOPLE LIVING WITH ALS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Suzanne Anthony Chief Operating Officer | 40 | $146,813 | |
Michael Slaby Dir., Then Interim CEO (from 06/21) | OfficerTrustee | 50 | $143,645 |
Danielle Carnival CEO (until 07/2021) | OfficerTrustee | 50 | $142,188 |
Theresa Garner Communications & Organizing Director | 40 | $139,375 | |
Aditi Narayan Director Of Community Support | 40 | $123,600 | |
Louise Langheier Board Chair | OfficerTrustee | 5 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Redtail Production Services Llc Video Production | 12/30/21 | $409,000 |
Visionary Misfits Video Production | 12/30/21 | $143,645 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $234,000 |
| All other contributions, gifts, grants, and similar amounts not included above | $3,104,131 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $3,338,131 |
| Total Program Service Revenue | $0 |
| Investment income | $162 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $2,224 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $4,847 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,345,834 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $2,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $292,215 |
| Compensation of current officers, directors, key employees. | $53,842 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $696,944 |
| Pension plan accruals and contributions | $32,632 |
| Other employee benefits | $106,356 |
| Payroll taxes | $79,766 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $79,506 |
| Fees for services: Lobbying | $24,000 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $729,410 |
| Advertising and promotion | $57,080 |
| Office expenses | $36,858 |
| Information technology | $101,356 |
| Royalties | $0 |
| Occupancy | $22,902 |
| Travel | $8,464 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $813 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $8,402 |
| All other expenses | $5,459 |
| Total functional expenses | $2,374,530 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,363,548 |
| Savings and temporary cash investments | $249,357 |
| Pledges and grants receivable | $630,000 |
| Accounts receivable, net | $173,045 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $10,077 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $6,554 |
| Total assets | $2,432,581 |
| Accounts payable and accrued expenses | $55,179 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $55,179 |
| Net assets without donor restrictions | $1,557,787 |
| Net assets with donor restrictions | $819,615 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,432,581 |
Grants Awarded
Over the last fiscal year, I Am Als has awarded $500,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Irvine, CA PURPOSE: PRE-CLINICAL EVALUATION OF THE PPAR-DELTA AGONIST KD3010 AS A TREATMENT FOR ALS | $200,000 |
Somerville, MA PURPOSE: EXPANDED ACCESS PROTOCOL (EAP) PROGRAM FOR VERDIPERSTAT | $200,000 |
Arlington, VA PURPOSE: SUPPORT BRAINSTORM BIOMARKERS PROJECT | $100,000 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that I Am Als has recieved totaling $2,000.
| Awarding Organization | Amount |
|---|---|
Eganwood Family Foundation- Inc Philadelphia, PA PURPOSE: TO FUND THE RECIPIENT'S OPERATING BUDGET | $2,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Childrens Inn At Nih Inc Bethesda, MD | $60,358,506 | $17,146,929 |
Make-A-Wish Foundation Of The Mid-Atlantic Inc Bethesda, MD | $5,550,029 | $5,617,599 |
Ronald Mcdonald House Charities Of Greater Washington Dc Inc Falls Church, VA | $23,518,081 | $3,394,943 |
Hospital Hospitality House Of Richmond Inc Richmond, VA | $19,495,218 | $3,888,827 |
Luke S Wings Inc Washington, DC | $1,967,630 | $2,389,071 |
7th & Marshall Corporation Richmond, VA | $5,028,760 | $2,506,731 |
I Am Als Washington, DC | $2,432,581 | $3,345,834 |
Make A Wish Foundation Of Greater Virginia Richmond, VA | $1,528,896 | $2,139,799 |
Believe In Tomorrow National Childrens Foundation Inc Baltimore, MD | $8,553,000 | $1,801,533 |
Ronald Mcdonald House Charities Of Richmond Va Inc Richmond, VA | $4,688,847 | $2,133,358 |
Ronald Mcdonald House Charities Of Charlottesville Inc Charlottesville, VA | $5,448,500 | $994,024 |
Childrens House At Johns Hopkins Hospital Inc Baltimore, MD | $1,464,467 | $450,390 |