I Am Als
- Assets
- $1.9m
- Revenue
- $2.3m
- Investments
- $0.0
- Employees
- 13
- Location
- Washington, DC
- Founding
- 07/2019
- Data as of
- 12/2023
- EIN
- 83-2016277
Organization Overview
I Am Als is located in Washington, DC. The organization was established in 2019. According to its NTEE Classification (E86) the organization is classified as: Patient & Family Support, under the broad grouping of Health Care and related organizations. As of 12/2023, I Am Als employed 13 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. I Am Als is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, I Am Als generated $2.3m in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 69.8% each year . All expenses for the organization totaled $2.2m during the year ending 12/2023. While expenses have increased by 68.2% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
SEE PART III, LINE 1.
Describe the Organization's Program Activity:
Part 3 - Line 4a
COMMUNITY SUPPORTTHE I AM ALS COMMUNITY SUPPORT TEAM PROVIDES DIRECT EMOTIONAL SUPPORT SERVICES, SUPPORT GROUPS, PEER MATCHING, AND INFORMATION AND RESOURCES TO INDIVIDUALS LIVING WITH ALS, LOVED ONES, AND CAREGIVERS.
GOVERNMENT AFFAIRS, POLICY, AND RESEARCHI AM ALS ENABLES THE COMMUNITY ADVOCATES TO INFLUENCE CHANGES TO FEDERAL FUNDING AND TRANSFORM RESEARCH SYSTEMS, INSTITUTIONAL POLICY, AND REGULATORY PROCESSES WITH THE GOALS OF INCREASING RESEARCH FUNDING; IMPROVING PATIENT ACCESS TO TREATMENT; AND SPEEDING THE DEVELOPMENT AND ACCESS OF TREATMENTS AND CURES FOR PEOPLE LIVING WITH ALS.
COMMUNITY ORGANIZING AND COMMUNICATIONS I AM ALS MOBILIZES THE ALS COMMUNITY AND FACILITATES WEEKLY TOPIC-BASED, SELF-ORGANIZED TEAMS. INDIVIDUAL ADVOCATES ENGAGE IN VIRTUAL, DIGITAL, AND IN-PERSON ACTIONS TO CATALYZE POLICY CHANGE AND RESEARCH PROGRESS TO END ALS; INCREASE PUBLIC AND PROFESSIONAL AWARENESS AND COMPETENCY; CHANGE POLICY OUTCOMES; IMPROVE TRIALS AND TREATMENT ACCESS; AND MORE.
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Peter Bowen Board Chair | OfficerTrustee | 2 | $0 |
Jenny Fortner Board Treasurer | OfficerTrustee | 2 | $0 |
Peggy Plews- Ogan Board Secretary | OfficerTrustee | 2 | $0 |
Brian Wallach Co-Founder | Trustee | 2 | $0 |
Sandra Abrevaya Co-Founder | Trustee | 2 | $0 |
Dan Tate Jr Board Member | Trustee | 2 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Alpine Group Partners Legislative Consulting Services | 12/30/22 | $124,000 |
Winning Strategies Washington Llc Consulting Services | 12/30/22 | $104,000 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $250,000 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,040,726 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,290,726 |
| Total Program Service Revenue | $0 |
| Investment income | $5,295 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $30,757 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,326,778 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $4,000 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $199,943 |
| Compensation of current officers, directors, key employees. | $37,956 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $914,250 |
| Pension plan accruals and contributions | $38,892 |
| Other employee benefits | $181,027 |
| Payroll taxes | $81,162 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $781 |
| Fees for services: Accounting | $81,753 |
| Fees for services: Lobbying | $101,000 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $219,884 |
| Advertising and promotion | $35,674 |
| Office expenses | $36,857 |
| Information technology | $62,549 |
| Royalties | $0 |
| Occupancy | $55,871 |
| Travel | $29,692 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $1,179 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $11,606 |
| All other expenses | $21,179 |
| Total functional expenses | $2,174,696 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,300,164 |
| Savings and temporary cash investments | $387,004 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $151,013 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $12,327 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1,452 |
| Total assets | $1,851,960 |
| Accounts payable and accrued expenses | $57,081 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $57,081 |
| Net assets without donor restrictions | $1,494,879 |
| Net assets with donor restrictions | $300,000 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,851,960 |
Grants Awarded
Over the last fiscal year, I Am Als has awarded $500,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
ALS ASSOCIATION PURPOSE: SUPPORT BRAINSTORM BIOMARKERS PROJECT | $100,000 |
UNIVERSITY OF CALIFORNIA IRVINE PURPOSE: PRE-CLINICAL EVALUATION OF THE PPAR-DELTA AGONIST KD3010 AS A TREATMENT FOR ALS | $200,000 |
MASSACHUSETTS GENERAL HOSPITAL PURPOSE: EXPANDED ACCESS PROTOCOL (EAP) PROGRAM FOR VERDIPERSTAT | $200,000 |