Systemic Jia Foundation
- Assets
- $102.1k
- Revenue
- $192.6k
- Investments
- $0.0
- Employees
- 0
- Location
- Cincinnati, OH
- Founding
- 11/2018
- Data as of
- 12/2022
- EIN
- 82-2564392
Organization Overview
Systemic Jia Foundation is located in Cincinnati, OH. The organization was established in 2018. According to its NTEE Classification (H98) the organization is classified as: Pediatrics Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Systemic Jia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
1. TO SUPPORT RESEARCH RELATING TO TREATMENTS AND CURE OF SYSTEMIC JUVENILE IDIOPATHIC ARTHRITIS (SJIA); 2. PROMOTE INCREASED AWARENESS, KNOWLEDGE AND UNDERSTANDING OF SJIA BY MEDICAL PROFESSIONALS, THE GENERAL PUBLIC AND FAMILIES AFFECTED BY SJIA; 3. PROMOTE MUTUAL SUPPORT THROUGH BUILDING AND MAINTAINING AN EXTENSIVE WEB-BASED OR OTHER NETWORK OF INFORMATION AND RESOURCES FOR THE GENERAL PUBLIC AND FAMILIES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
SYSTEMIC JIA FOUNDATION PLANS SEVERAL TYPES OF FUNDRAISING: 1) DONATIONS FROM FAMILIES WITH SJIA: THE SYSTEMIC JIA FOUNDATION WILL REACH OUT TO FAMILIES WITH SJIA TO BOTH CONTRIBUTE AND RAISE FUNDS FOR THE BENEFIT OF THE SYSTEMIC JIA FOUNDATION. THE SYSTEMIC JIA FOUNDATION WILL RAISE FUNDS ONLINE, USING FUNDRAISING SITES SUCH AS CROWDRISE, STRIPE, FACEBOOK OR FUNDRAISING FUNCTIONALITY ON OUR OWN WEBSITE.2) EVENT SPONSORSHIPS FROM PHARMA COMPANIES: FOR ANY EVENTS THE SYSTEMIC JIA FOUNDATION ORGANIZE, THE SYSTEMIC JIA FOUNDATION WILL REACH OUT TO PHARMA COMPANIES WHO ARE INTERESTED IN SJIA TO GIVE SPONSORSHIPS AT DIFFERENT LEVELS TO SUPPORT THE EVENT.3) GENERAL: THE SYSTEMIC JIA FOUNDATION WILL UNDERTAKE ADDITIONAL FUNDRAISING FROM A VARIETY OF SOURCES INCLUDING MAIL, EMAIL, PERSONAL AND PHONE SOLICITATIONS. THE ORGANIZATION WILL CREATE PROPOSALS AND OTHER MATERIALS THAT WILL BE NECESSARY TO SUBMIT IN ORDER FOR THE ORGANIZATION TO RECEIVE GRANTS AND DONATIONS.4) GRANTS FROM OTHER CHARITABLE ORGANIZATIONS. THE SYSTEMIC JIA FOUNDATION WILL RAISE ADDITIONAL FUNDS FROM OTHER CHARITABLE FOUNDATIONS.
NEXTGEN 2022 CONFERENCE:NEXTGEN CONFERENCE ORGANIZED VIRTUALLY FROM FEBRUARY 16 TO FEBRUARY 18, 2022. THE PURPOSE OF THE CONFERENCE IS TO ADVANCE THERAPIES FOR SJIA, STILL'S DISEASE AND MAS WITH SPECIAL EMPHASIS ON CLINICAL TRIALS AND OPTIONS FOR REFRACTORY DISEASE.
GRANTS TO THE BAMBINO GESU HOSPITAL AND UMC UTRECHT: GRANTS USED TO FUND KEY EUROPEAN RESEARCHERS TO ADVANCE THE STUDY OF SYSTEMIC JUVENILE IDIOPATHIC ARTHRITIS.
GRANT TO CINCINNATI CHILDREN'S HOSPITAL THIS GRANT HAS BEEN PROVIDED TO FUND THE RESEARCH, CONDUCTING AN INITIAL OBSERVATIONAL STUDY FOR THE COLLECTION OF BIOSPECIMENS AND PATIENT DATA AND ESTABLISHING A CLINICAL AND SCIENTIFIC RESEARCH NETWORK (THE "RESEARCH NETWORK"), EACH FOR THE STUDY OF SYSTEMIC JUVENILE IDIOPATHIC ARTHRITIS.
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jonathan Boutelle Director | Trustee | 2 | $0 |
Rashmi Sinha Director | Trustee | 40 | $0 |
Matthew Might Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $192,569 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $192,569 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $192,569 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $201,625 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $116,001 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $2,550 |
| Fees for services: Accounting | $7,848 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,127 |
| Advertising and promotion | $0 |
| Office expenses | $162 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $25,304 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $360,306 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $102,078 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $102,078 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $102,078 |
| Total liabilities and net assets/fund balances | $102,078 |
Grants Awarded
Over the last fiscal year, Systemic Jia Foundation has awarded $176,625 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
THE UCLA FOUNDATION PURPOSE: THIS GRANT HAS BEEN PROVIDED TO FUND THE RESEARCH TO FIND TREATMENTS AND CURE OF SYSTEMIC JUVENILE IDIOPATHIC ARTHRITIS. | $26,625 |
CINCINNATI CHILDREN'S HOSPITAL PURPOSE: THIS GRANT HAS BEEN PROVIDED TO FUND THE RESEARCH TO FIND TREATMENTS AND CURE OF SYSTEMIC JUVENILE IDIOPATHIC ARTHRITIS. | $150,000 |