Kif1aorg Inc
- Assets
- $763.9k
- Revenue
- $816.2k
- Investments
- $0.0
- Employees
- 5
- Location
- New York, NY
- Founding
- 03/2017
- Data as of
- 12/2021
- EIN
- 82-0714729
Organization Overview
Kif1aorg Inc is located in New York, NY. The organization was established in 2017. According to its NTEE Classification (F01) the organization is classified as: Alliances & Advocacy, under the broad grouping of Mental Health & Crisis Intervention and related organizations. As of 12/2021, Kif1aorg Inc employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Kif1aorg Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Kif1aorg Inc generated $816.2k in total revenue. This organization has experienced exceptional growth, as over the past 4 years, it has increased revenue by an average of 50.8% each year . All expenses for the organization totaled $557.2k during the year ending 12/2021. While expenses have increased by 34.8% per year over the past 4 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
A GLOBAL COMMUNITY DEDICATED TO IMPROVING THE LIVES OF THOSE AFFECTED BY KAND AND ACCELERATING RESEARCH TO FIND A CURE
Describe the Organization's Program Activity:
Part 3 - Line 4a
KAND IS A NEURODEGENERATIVE DISORDER CAUSED BY MUTATIONS IN THE KIF1A GENE AND CAUSES A CONSTELLATION OF MEDICAL CHALLENGES, INCLUDING SPASTIC PARAPLEGIA, EPILEPSY, INTELLECTUAL DISABILITY, OPTIC NERVE ATROPHY, CEREBELLAR ATROPHY, PERIPHERAL NEUROPATHY, AND AUTISM. KAND HAS A PROGRESSIVE COURSE AND CAN CAUSE SEVERE, LIFE-THREATENING COMPLICATIONS. IN ADDITION TO FAMILY SUPPORT AND PATIENT ADVOCACY KIF1A.ORG POWERS COLLABORATIVE AND TRANSLATIONAL RESEARCH TO RAPIDLY DISCOVER TREATMENT FOR KAND. KIF1A.ORG MANAGES SEVERAL PROGRAMS TO DE-RISK AND ACCELERATE THERAPEUTIC DEVELOPMENT, INCLUDING THE KIF1A RESEARCH NETWORK, DIRECT RESEARCH FUNDING AND OPEN ACCESS TOOLS FOR DEVELOPMENT, SUCH AS NATURAL HISTORY DATA, DISEASE MODELS, BIOMARKERS
KIF1A.ORG HOSTED THE VIRTUAL 2021 KAND FAMILY & SCIENTIFIC ENGAGEMENT CONFERENCE ON JULY 9TH AND 10TH TO SHARE THE LATEST ADVANCEMENTS IN RESEARCH AND THERAPEUTIC DEVELOPMENT. KAND PATIENTS, FAMILY MEMBERS, RESEARCHERS, CLINICIANS, AND ADVOCATES CAME TOGETHER AT THIS VIRTUAL CONFERENCE AS ONE COMMUNITY UNITED BY OUR MISSION TO IMPROVE THE LIVES OF THOSE AFFECTED BY KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) AND ACCELERATE RESEARCH TO FIND A CURE.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Dominique Lessard Chief Science Officer | Officer | 40 | $76,483 |
Kathryn Atchley President | Officer | 40 | $48,232 |
Shannon Dennis Chief Patient Officer | Officer | 2 | $0 |
John Siemer Treasurer | Officer | 2 | $0 |
Luke Rosen Board Chair | Trustee | 20 | $0 |
Sally Jackson Director | Trustee | 2 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Rarebase Scientific Research | 12/30/21 | $50,000 |
Neucyte Neuroscience Scientific Research | 12/30/21 | $100,000 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $816,181 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $816,181 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $816,181 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $57,272 |
| Grants and other assistance to domestic individuals. | $1,061 |
| Grants and other assistance to Foreign Orgs/Individuals | $68,049 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $124,715 |
| Compensation of current officers, directors, key employees. | $12,571 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $26,520 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $6,043 |
| Payroll taxes | $13,412 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $220,187 |
| Advertising and promotion | $0 |
| Office expenses | $237 |
| Information technology | $7,811 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $28,711 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $557,217 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $763,933 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $763,933 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $302,734 |
| Net assets with donor restrictions | $461,199 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $763,933 |
Grants Awarded
Over the last fiscal year, Kif1aorg Inc has awarded $52,500 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
New York, NY PURPOSE: Scientific research | $27,500 |
Bronx, NY PURPOSE: Scientific research | $25,000 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that Kif1aorg Inc has recieved totaling $7,786.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $5,756 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $2,030 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Child Mind Institute Inc New York, NY | $46,691,658 | $40,013,749 |
Partnership To End Addiction New York, NY | $61,675,636 | $16,194,669 |
Citiesrise Inc New York, NY | $1,233,168 | $3,274,445 |
Unity Recovery Philadelphia, PA | $1,478,163 | $2,821,333 |
International Center For Clubhouse Development Inc New York, NY | $1,689,832 | $1,579,966 |
A Better Way Foundation Abwf Inc Hartford, CT | $778,048 | $1,381,892 |
Mental Health Association In New York State Inc Jamestown, NY | $230,787 | $846,411 |
Pennsylvania Recovery Organizations Alliance Inc Harrisburg, PA | $595,194 | $834,421 |
Corporate Alliance For Drug Education Philadelphia, PA | $695,419 | $779,530 |
Kif1aorg Inc New York, NY | $763,933 | $816,181 |
Cpc Foundation Inc Eatontown, NJ | $12,971,773 | $1,061,246 |
Bestself Properties Inc Buffalo, NY | $9,830,153 | $248,033 |