Texas Neurofibromatosis Foundation
- Assets
- $532.8k
- Revenue
- $646.7k
- Investments
- $0.0
- Employees
- 5
- Location
- Irving, TX
- Founding
- 07/1981
- Data as of
- 12/2023
- EIN
- 74-2138345
Organization Overview
Texas Neurofibromatosis Foundation is located in Irving, TX. The organization was established in 1981. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, Texas Neurofibromatosis Foundation employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Texas Neurofibromatosis Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Texas Neurofibromatosis Foundation generated $646.7k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 5 years, the organization has seen revenues fall by an average of (4.5%) each year. All expenses for the organization totaled $692.8k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO FUND NEUROFIBROMATOSIS RESEARCH AND EDUCATION AND TO PROVIDE FOR SUPPORT GROUPS FOR THOSE FACING THE ILLNESS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ORGANIZATION FUNDS AND SUPPORTS NEUROFIBROMATOSIS RESEARCH PROJECTS AND PARTICIPATES IN A NEUROFIBROMATOSIS NATIONAL AFFAIRS COALITION TO INCREASE PUBLIC AWARENESS AND INSURE AND INCREASE FUNDING ALLOCATED FROM FEDERALLY FUNDED PROGRAMS.
THE ORGANIZATION PROVIDES NEUROFIBROMATOSIS EDUCATIONAL MATERIALS/INFORMATION TO PATIENTS, PHYSICIANS, TEACHERS AND COUNSELORS; PHYSICIAN AND CLINICAL REFERRALS; AND STATEWIDE NEUROFIBROMATOSIS CLINICS. IT CONDUCTS A SYMPOSIUM FEATURING NATIONALLY RECOGNIZED RESEARCHERS, A YEARLY FAMILY CAMP, AND FAMILY SUPPORT GROUPS. IN 2016 THE THE FAMILY CAMP SERVED 136 PATIENTS AND FAMILY MEMBERS, 6 SUPPORT GROUPS SERVING 95 INDIVIDUALS, TOTAL SERVED THOUGH EVENTS AND CLINICS WERE 768 PATIENTS.
THE ORGANIZATION INCREASES NEUROFIBROMATOSIS PUBLIC AWARENESS BY PUBLISHING NEWSLETTERS, PUBLIC SPEAKING ENGAGEMENTS, EXHIBITING AT STATE EDUCATIONAL AND MEDICAL MEETINGS, AND USING BILLBOARDS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Laura G Lyon Director/president | OfficerTrustee | 5 | $0 |
Liana Olinger Director/ VP | OfficerTrustee | 5 | $0 |
Tricia Madden Director/secretary | OfficerTrustee | 5 | $0 |
Janie Perleman Director | Trustee | 1 | $0 |
Tammy Benson O'brien Director | Trustee | 1 | $0 |
Bob Boronow Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $471,931 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $151,419 |
| Noncash contributions included in lines 1a–1f | $109,309 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $623,350 |
| Total Program Service Revenue | $0 |
| Investment income | $20,560 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $646,731 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $112,000 |
| Grants and other assistance to domestic individuals. | $4,000 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $87,000 |
| Compensation of current officers, directors, key employees. | $43,500 |
| Compensation to disqualified persons | $102,343 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $14,485 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $11,202 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $27,686 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $30,329 |
| Travel | $2,964 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $10,187 |
| Total functional expenses | $692,762 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,000 |
| Savings and temporary cash investments | $505,537 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $26,310 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $532,847 |
| Accounts payable and accrued expenses | $10,283 |
| Grants payable | $0 |
| Deferred revenue | $34,465 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $44,748 |
| Net assets without donor restrictions | $260,906 |
| Net assets with donor restrictions | $227,193 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $532,847 |
Grants Awarded
Over the last fiscal year, Texas Neurofibromatosis Foundation has awarded $112,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
UT SOUTHWESTERN MEDICAL SCHOOL PURPOSE: Research | $40,000 |
UT MD ANDERSON CANCER CENTER PURPOSE: Research | $45,000 |
TEXAS SCOTTISH RITE HOSPITAL PURPOSE: Research | $27,000 |