Sickle Cell Consortium

Organization Overview

Sickle Cell Consortium is located in Cumming, GA. The organization was established in 2015. According to its NTEE Classification (E01) the organization is classified as: Alliances & Advocacy, under the broad grouping of Health Care and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Sickle Cell Consortium is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Sickle Cell Consortium generated $681.4k in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 29.7% each year . All expenses for the organization totaled $538.2k during the year ending 12/2021. While expenses have increased by 25.7% per year over the past 5 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO PROVIDE SICKLE CELL COMMUNITY-BASED ORGANIZATIONS (CBOS) WITH THE NECESSARY INFRASTRUCTURE, SUPPORT, TRAINING AND RESOURCES.

Describe the Organization's Program Activity:

Part 3 - Line 4a

7TH ANNUAL PATIENTS AND FAMILY EDUCATIONAL CONVENTION: THE 2021 AGENDA PLACED HEAVY EMPHASIS ON BECOMING EXPERT PATIENTS, WHILE LEARNING TO ADVOCATE, EDUCATE, AND ENCOURAGE OURSELVES AND EACH OTHER. SESSIONS INCLUDED TRACKS DESIGNED SPECIFICALLY FOR ADULTS, TEENS AND CHILDREN.


8TH ANNUAL PATIENTS AND FAMILY EDUCATIONAL CONVENTION: THE 2021 AGENDA FOCUSED ON TOPICS FROM CONCERNS FOR MEN AND WORRIORS WOMEN, SICKLE CELL EDUCATION AND THE PATH TO FINANCIAL INDEPENDENCE. WE COVERED TOPICS ON CURATIVE THERAPIES, SICKLE CELL HOLISTIC HEALTH AND NUTRITION.


INAUGURAL SICKLE CELL CAREGIVER SUMMIT: FOCUSED ENTIRELY ON CAREGIVER NEEDS. THE SUMMIT WAS DEDICATED 100% TO EQUIPING CAREGIVERS TO TAKE BETTER CARE OF THEIR LOVED ONES WHO LIVE WITH SICKLE CELL DISEASE. IT IS A PLACE FOR CAREGIVERS TO CONNECT AND ENCOURAGE ONE ANOTHER ON A LARGER SCALE.


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Board, Officers & Key Employees

Name (title)Compensation
Dr Lakiea Bailey
Executive Director
$42,317
Doris Bailey
Associate Director Of Finance
$13,000
Dr Ramona Lawrence
Director Of Research
$12,167
Yolanda Lewis
Administrator
$5,950
Dominique Friend
President Of The General Assembly
$3,150
Eric Nti Frempong
Director Of Finance
$1,000

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Change A Man Media Llc
Consulting
$11,500
Sandy Mill Works
Consulting
$15,397
Jola Media Production
Convention Program Related
$43,000
610 Designs And Company
Consulting
$64,400
Online Media Interactive
Convention Program Related
$2,076
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$9,040
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$672,322
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$681,362
Total Program Service Revenue$0
Investment income $0
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $681,362

Grants Recieved

Over the last fiscal year, we have identified 1 grants that Sickle Cell Consortium has recieved totaling $40,000.

Awarding OrganizationAmount
University Of Pittsburgh

Pittsburgh, PA

PURPOSE: RESEARCH- SUBCONTRACT

$40,000
View Grant Recipient Profile

Endowment Analysis

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