Lgmd2d Foundation
- Assets
- $103.1k
- Revenue
- $1.0
- Investments
- $0.0
- Employees
- 0
- Location
- Kentfield, CA
- Founding
- 02/2015
- Data as of
- 12/2021
- EIN
- 46-4128016
Organization Overview
Lgmd2d Foundation is located in Kentfield, CA. The organization was established in 2015. According to its NTEE Classification (G01) the organization is classified as: Alliances & Advocacy, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Lgmd2d Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Lgmd2d Foundation generated $1.0 in total revenue. All expenses for the organization totaled $2.9k during the year ending 12/2021.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO SUPPORT RESEARCH AND CLINICAL TRIALS TO SPEED THE DEVELOPMENT OF TREATMENTS AND CURES FOR LIMB-GIRDLE MUSCULAR DYSTROPHY TYPE 2D (LGMD2D). FORMED IN SEPTEMBER 2013, THE FOUNDATION IS COMMITTED TO THE DEVELOPMENT AND MAINTENANCE OF INTERNATIONAL PATIENT REGISTRY FOR INDIVIDUALS DIAGNOSED WITH LGMD2D AND TO SUPPORTING RELEVANT SCIENTIFIC RESEARCH.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ORGANIZATION HAS DESIGNED AND DEVELOPED ONE (1) PROGRAM IN FURTHERANCE OF ITS CHARITABLE AND EDUCATIONAL PURPOSE.THE PROGRAM IS ENTITLED: LIMB-GIRDLE MUSCULAR DYSTROPHY 2D (LGMD2D). THE ORGANIZATION FURTHERS ITS PURPOSE UNDER THIS PROGRAM BY RAISING MONEY AND SUPPORTING LGMD2D RESEARCH IN A MANNER CONSISTENT WITH THE HOSPITAL STRATEGIC PLAN.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Bryan Barber President/ceo | Officer | 1 | $0 |
Caroline Barber Treasurer/secretary | Officer | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $0 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $0 |
| Total Program Service Revenue | $0 |
| Investment income | $1 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $2,500 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $2,927 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $103,066 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $103,066 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $103,066 |
| Total liabilities and net assets/fund balances | $103,066 |
Grants Awarded
Over the last fiscal year, Lgmd2d Foundation has awarded $556,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
EMORY GENETICS LABORATORY (EGL GENETICS) PURPOSE: TO SUPPORT RESEARCH AND CLINICAL TRIALS TO SPEED THE DEVELOPMENT OF TREATMENTS AND CURES FOR LIMB-GIRDLE MUSCULAR DYSTROPHY TYPE 2D (LGMD2D). | $420,000 |
Seattle, WA PURPOSE: TO SUPPORT RESEARCH AND CLINICAL TRIALS TO SPEED THE DEVELOPMENT OF TREATMENTS AND CURES FOR LIMB-GIRDLE MUSCULAR DYSTROPHY TYPE 2D (LGMD2D). | $130,000 |
Rochester, MN PURPOSE: TO SUPPORT EDUCATION, RESEARCH ACCESS AND PATIENT RESOURCES RELATED TO THE ADVANCEMENT OF NEUROMUSCULAR, MUSCULOSKELETAL AND ELECTRODIAGNOSTIC MEDICINE. | $6,000 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Lgmd2d Foundation has recieved totaling $13.
| Awarding Organization | Amount |
|---|---|
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $13 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Coalition For Headache And Migraine Patients San Rafael, CA | $1,163,677 | $2,095,914 |
Inland Empire Liver Foundation Pasadena, CA | $66,005 | $461,992 |
Caring Ambassadors Program Inc Oregon City, OR | $86,924 | $91,385 |
Northwest Kidney Council Portland, OR | $25,361 | $0 |
Sofies Journey Inc Irvine, CA | $0 | $0 |
Psoriasis And Psoriatic Arthritis Clinics Multicenter Advancement Ne Roseville, CA | $2,548,253 | $1,048,830 |
Wpa4a Inc Canyon Lake, CA | $11,397 | $0 |
Cyan Gray Hope Foundation Los Angeles, CA | $29,593 | $0 |
California Nurse-Midwives Foundation San Francisco, CA | $69,561 | $92,261 |
Love That Surpasses Santa Clara, CA | $31,343 | $0 |
Ca Action Link For Rare Diseases Inc Pleasanton, CA | $54,612 | $0 |
Resting K Corp West Linn, OR | $29,948 | $0 |