Down Syndrome Diagnosis Network
- Assets
- $701.3k
- Revenue
- $636.3k
- Investments
- $0.0
- Employees
- 2
- Location
- Stillwater, MN
- Founding
- 07/2014
- Data as of
- 10/2023
- EIN
- 46-3042112
Organization Overview
Down Syndrome Diagnosis Network is located in Stillwater, MN. The organization was established in 2014. According to its NTEE Classification (G25) the organization is classified as: Down Syndrome, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 10/2023, Down Syndrome Diagnosis Network employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Down Syndrome Diagnosis Network is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 10/2023, Down Syndrome Diagnosis Network generated $636.3k in total revenue. The organization has seen a slow decline revenue. Over the past 4 years, revenues have fallen by an average of (1.2%) each year. All expenses for the organization totaled $575.9k during the year ending 10/2023. As we would expect to see with falling revenues, expenses have declined by (0.4%) per year over the past 4 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO CONNECT SUPPORT AND PROVIDE ACCURATE INFORMATION TO FAMILIES WITH A DOWN SYNDROME DIAGNOSIS
Describe the Organization's Program Activity:
Part 3 - Line 4a
CONNECT - DSDN HOSTS ANNUAL RETREATS FOR MOMS AND DADS (SEPARATELY) OF CHILDREN WITH DOWN SYNDROME TO ALLOW THEM TO CONNECT, BE INSPIRED, RECHARGE, AND WORK ON SERVICE PROJECTS FOR FUTURE EXPECTANT AND NEW PARENTS. THE RETREATS ARE A 2-DAY EVENT WITH MEALS INCLUDED, MOTIVATIONAL SPEAKERS, PAMPERING SESSIONS, AND ACTIVITIES TO PROMOTE CONNECTION AMONGST ATTENDEES. REVENUE LISTED ABOVE INCLUDES REGISTRATION AND ACTIVITY FEES, EXHIBITOR FEES, AND RETREAT SPONSORSHIPS.
INFORM - DSDN'S BOARD MEMBERS AND VOLUNTEERS ATTEND DOWN SYNDROME RELATED CONFERENCES TO SHARE INFORMATION ABOUT DSDN'S SERVICES TO FAMILIES, LOCAL DOWN SYNDROME ORGANIZATIONS, AND MEDICAL PROFESSIONALS. DSDN TEAM MEMBERS ALSO ATTEND NATIONAL MEDICAL CONFERENCES TO ADVOCATE FOR AN UNBIASED, UP-TO-DATE AND FACTUAL DOWN SYNDROME DIAGNOSIS FOR FAMILIES, AS WELL AS TO SHARE ABOUT DSDN'S SERVICES. DSDN ALSO CREATES AND DISTRIBUTES MATERIALS ON DELIVERING A DOWN SYNDROME DIAGNOSIS TO LOCAL ORGANIZATIONS AND MEDICAL PROFESSIONALS.
SUPPORT - DSDN PROVIDES SUPPORT TO EXPECTANT AND NEW FAMILIES THROUGH ONLINE SUPPORT GROUPS, WHICH ARE NOW PART OF A DSDN MOBILE APP. DSDN ALSO PROVIDES PREGNANCY GIFTS, NEW BABY GIFTS, AND WELCOME GIFTS WHEN A NEW FAMILY JOINS OUR COMMUNITY, AS WELL AS CARE PACKAGES WHEN A CHILD IS IN THE HOSPITAL, AND MEMORIAL GIFTS WHEN A CHILD PASSES AWAY. EACH YEAR, DSDN ALSO OFFERS ADOPTION GRANTS FOR FAMILIES IN THE PROCESS OF ADOPTING A CHILD WITH DOWN SYNDROME. ALSO PART OF OUR SUPPORT SERVICES, DSDN OFFERS SCHOLARSHIPS TO ATTEND THE DSDN ROCKIN' MOM AND ROCKIN' DAD RETREATS. DSDN ALSO AWARDED GRANTS TO LOCAL DOWN SYNDROME ORGANIZATIONS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kathleen Seitz President | OfficerTrustee | 1 | $0 |
Patricia Nesbitt Vice President | OfficerTrustee | 1 | $0 |
Julia Kaufman Treasurer | OfficerTrustee | 1 | $0 |
Taryn Lagonigro Secretary | OfficerTrustee | 1 | $0 |
Jenny Di Benedetto Director | Trustee | 1 | $0 |
Cassandra Drake Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $4,815 |
| Related organizations | $0 |
| Government grants | $47,690 |
| All other contributions, gifts, grants, and similar amounts not included above | $457,287 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $509,792 |
| Total Program Service Revenue | $118,949 |
| Investment income | $7,110 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $199 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $636,269 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $16,000 |
| Grants and other assistance to domestic individuals. | $1,500 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $69,310 |
| Compensation of current officers, directors, key employees. | $6,931 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $48,140 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $9,216 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $40,769 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $1,387 |
| Office expenses | $49,234 |
| Information technology | $2,866 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $65,530 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $258,718 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $311 |
| Insurance | $2,472 |
| All other expenses | $0 |
| Total functional expenses | $575,865 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $110,294 |
| Savings and temporary cash investments | $404,136 |
| Pledges and grants receivable | $23,780 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $1,226 |
| Prepaid expenses and deferred charges | $10,079 |
| Net Land, buildings, and equipment | $151,749 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $701,264 |
| Accounts payable and accrued expenses | $13,027 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $13,027 |
| Net assets without donor restrictions | $688,237 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $701,264 |
Grants Awarded
Over the last fiscal year, Down Syndrome Diagnosis Network has awarded $14,600 in support to 9 organizations.
| Grant Recipient | Amount |
|---|---|
DOWN SYNDROME ASSOCIATION OF GREATER WINSTON-SALEM PURPOSE: DONATION | $2,100 |
DOWN SYNDROME ASSOCIATION OF CONNECTICUT PURPOSE: DONATION | $500 |
DOWN SYNDROME ASSOCIATION OF TULSA PURPOSE: DONATION | $2,100 |
DOWN SYNDROME ASSOCIATION OF LOUISVILLE PURPOSE: DONATION | $500 |
DOWN SYNDROME ASSOCIATION OF CENTRAL TEXAS PURPOSE: DONATION | $2,100 |
DOWN SYNDROME ASSOCIATION OF CENTRAL NEW JERSEY PURPOSE: DONATION | $1,000 |