Association For Creatine Deficiencies
- Assets
- $674.7k
- Revenue
- $588.2k
- Investments
- $0.0
- Employees
- 4
- Location
- Carlsbad, CA
- Founding
- 07/2013
- Data as of
- 12/2023
- EIN
- 46-2133007
Organization Overview
Association For Creatine Deficiencies is located in Carlsbad, CA. The organization was established in 2013. According to its NTEE Classification (G99) the organization is classified as: Voluntary Health Associations & Medical Disciplines N.E.C., under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, Association For Creatine Deficiencies employed 4 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Association For Creatine Deficiencies is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Association For Creatine Deficiencies generated $588.2k in total revenue. This organization has experienced exceptional growth, as over the past 9 years, it has increased revenue by an average of 31.8% each year . All expenses for the organization totaled $602.6k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO PROMOTE AND FUND MEDIAL RESEARCH FOR TREATMENTS AND CURES, PROVIDE PATIENT, FAMILY, AND PUBLIC EDUCATION, AND ADVOCATE FOR EARLY INTERVENTION THROUGH NEWBORN SCREENING FOR CEREBRAL CREATINE DEFICIENCY SYNDROMES (CCDS).
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROVIDING ACCURATE AND UP TO DATE INFORMATION THROUGH ATTENDANCE AT MEDICAL & SCIENTIFIC CONFERENCES, MAINTAINING INFORMATIONAL WEBSITE, HOSTING CCDS CONFERENCE AND DISTRIBUTING RECORDINGS OF TALKS TO ACCELERATE KNOWLEDGE OF CREATINE DEFICIENCIES AND RELATED RESEARCH. ADVOCATING FOR INCREASED ADOPTION OF NEWBORN SCREENING. SUPPORTING CCDS CAREGIVERS WITH WEBINARS, OPPORTUNITIES TO ENGAGE WITH RESEARCHERS, AND A STRUCTURED VIRTUAL SUPPORT GROUP.SUPPORTING RESEARCH THROUGH FELLOWSHIP GRANTS AND MAINTENANCE OF A PATIENT REGISTRY AND NATURAL HISTORY PLATFORM. CO-SUPPORTING RESEARCH AND PATIENT COMMUNITIES THROUGH JOINT WEBINARS, QUARTERLY NEWSLETTERS, ONLINE RESOURCES, ETC.
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Heidi Wallis Executive Director | Officer | 40 | $105,000 |
Mikelle Law Director Of Compliance | Trustee | 10 | $0 |
Kim Tuminello Director Of Advocacy | Trustee | 10 | $0 |
Erin Coller Director Of Comm | Trustee | 10 | $0 |
Randy Allen Vice Chair | OfficerTrustee | 10 | $0 |
Daniel Coller Board Chair | OfficerTrustee | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $40,130 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $534,004 |
| Noncash contributions included in lines 1a–1f | $16,110 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $574,134 |
| Total Program Service Revenue | $5,000 |
| Investment income | $2,487 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $588,192 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $150,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $33,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $105,000 |
| Compensation of current officers, directors, key employees. | $15,366 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $35,766 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $10,782 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $18,943 |
| Fees for services: Accounting | $26,428 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $128,940 |
| Advertising and promotion | $13,182 |
| Office expenses | $17,100 |
| Information technology | $4,262 |
| Royalties | $0 |
| Occupancy | $2,100 |
| Travel | $25,548 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $9,370 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,049 |
| All other expenses | $20,143 |
| Total functional expenses | $602,613 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $385,706 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $148,265 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $3,118 |
| Net Land, buildings, and equipment | $67,905 |
| Investments—publicly traded securities | $69,685 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $674,679 |
| Accounts payable and accrued expenses | $26,722 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $26,722 |
| Net assets without donor restrictions | $480,600 |
| Net assets with donor restrictions | $167,357 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $674,679 |
Grants Awarded
Over the last fiscal year, Association For Creatine Deficiencies has awarded $150,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF UTAH | | | $140,000 |
UPLIFTING ATHLETES | | | $10,000 |