Down Syndrome Guild Of Greater Kansas City Inc

Organization Overview

Down Syndrome Guild Of Greater Kansas City Inc is located in Shawnee Mission, KS. The organization was established in 1987. According to its NTEE Classification (H25) the organization is classified as: Down Syndrome Research, under the broad grouping of Medical Research and related organizations. As of 12/2020, Down Syndrome Guild Of Greater Kansas City Inc employed 31 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Down Syndrome Guild Of Greater Kansas City Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2020, Down Syndrome Guild Of Greater Kansas City Inc generated $2.6m in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 19.3% each year . All expenses for the organization totaled $1.6m during the year ending 12/2020. While expenses have increased by 14.1% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2020

Describe the Organization's Mission:

Part 3 - Line 1

MISSION IS TO PROVIDED SUPPORT AND RESOUCES FOR INDIVIDUALS WITH DOWN SYNDROME, THEIR FAMILIES AND THE PROFESSIONALS WHO SERVE THEM. DSG SEEKS TO PROVIDE THE ENTIRE COMMUNITY WITH INFORMATION AND EDUCATION TO BROADEN AWARENESS AND FOSTER POSITIVE ATITUDES REGARDING PEOPLE WITH DOWN SYNDROME. DSG CURRENTLY SERVES 37 COUNTIES IN KANSAS AND MISSOURI. WE PROVIDE SUPPORT TO OVER 1600 INDIVIDUALS WITH DOWN SYNDROME.

Describe the Organization's Program Activity:

Part 3 - Line 4a

PUBLIC AWARENESS - DSG WELCOMES 50-60 NEW BABIES AND THEIR FAMILIES EACH YEAR. OUR PARENT-TO-PARENT PROGRAM PROVIDES A WELCOME BASKET, QUARTERLY SUPPORT BREAKFASTS AND PARENT-TO-PARENT MATCHES. OUR BI-MONTHLY CONNECTIONS NEWSLETTER IS DISTRIBUTED TO 3,500 HOUSEHOLDS AND CONTAINS UPCOMING EVENTS, COMMUNITY GROUP ACTIVITIES, AND UP-TO-DATE ARTICLES ON MEDICAL OR EDUCATIONAL BEST PRACTIVES FOR PEOPLE WITH DOWN SYNDROME. DSG SUPPORTS 14 COMMUNITY GROUPS TO HOST 8-10 ACTIVITIES IN THEIR IMMEDIATE GEOGRAPHICAL REGION TO CONNECT MEMBERS ON A SMALLER SCALE. THROUGHOUT THE YEAR, DSG FACILITATES AWARENESS INITIATIVES IN SCHOOLS AND IN THE COMMUNITY OFTEN SHOWING JUST LIIKE YOU-DOWN SYNDROME FILM, TO FOSTER POSITIVE ATTITUDES AND EDUCATE INDIVIDUALS ABOUT DOWN SYNDROME. SHOULD ANY OF OUR MEMBERS EXPERIENCE AN OVERNIGHT STAY IN THE HOSPITAL, DSG PROVIDES A $50 MEAL VOUCHER TO SUPPORT COSTS ASSOCIATED WITH THE STAY. MEMBERS CAN SHOW SUPPORT OF THE DSG BRAND BY PURCHASING BRANDED ITEMS TO GENERATE AWARENESS WTIHIN THEIR COMMUNITY. ALL OF THESE PROGRAMS AND OTHERS ARE SHARED IN DETAIL IN THE DSG ANNUAL REPORT.


PUBLIC EDUCATION - DSG HOSTS ANNUAL EDUCATIONAL CONFERENCES TO BRING TOGETHER EXPERTS IN THE FIELD TO DISCUSS BEST PRACTICES IN WORKING WITH INDIVIUDALS WITH DOWN SYNDROME. SCHOLARSHIPS ARE AVAILABLE FOR DSG SPONSORED OR NATIONAL SPONORED CONFERENCES. DSG ALSO HOSTS SEMINARS AND WORKSHOPS THROUGHOUT THE YEAR AS REQESTED BY DSG MEMBERS. DSG PARTNERS WITH 45 LOCAL SCHOOL DISTRICTS WHO HAVE NAMED DOWN SYNDROME SPECIALISTS WHO ACT AS LIAISONS BETWEEN DSG, SCHOOLS, AND FAMILIES IMPACTED BY DOWN SYNDROME. WE OFFER THE SPECAILISTS A RESOURCE MANUAL, FREE REGISTRATION TO DSG CONFERENCES, BI-ANNUAL BREAKFASTS TO EXCHANGE IDEAS AND MAKE DSG AREA OF SCHOOL DISTRICT NEEDS AND ONGOING UPDATES REGARDING RESEARCH AND BEST PRACTICES FOR EDUCATING STUDENTS WITH DOWN SYNDROM. DSG ALSO OFFERS INDIVIDUALIZED TRAINING AND PRIVATE CONSULTATIONS FOR SCHOOL DISTRICTS WHO HAVE DOWN SYNDROME SPECIALISTS. INFORMATION CAN BE ACCESSED BY ANYONE IN THE COMMUNITY THROUGH DSG'S 24-HOUR PHONE INFORMATION LINE.


SOCIAL EVENTS - DSG SUPPORTS MEMBERS THROUGHOUT THEIR LIFE SPAN BY HOSTING SPECIAL EVENTS TO HELP MEMBERS AND FAMILIES ENGAGE AND CONNECT WITH ONE ANOTHER. SOCIAL EVENTS OFFER UNIQUE OPPORTUNITIES FOR FAMILIES TO MEET, FORM FRIENDSHIPS, AND SHARE RESOURCES. WE HOST 5 ALL GUID ACTIVITIES THROUGHOUT THE YEAR WHICH WELCOME THE MEMBER WITH DOWN SYNDROME AND IMMEDIATE FAMILTY MEMBERS TO ACTIVITIES LOCATED AROUND THE METRO. ELEMENTARY AGED STUDENTS MEET QUARTERLY AT THE DSG OFFICE FOR EVENTS AND PREPARATION FOR THE S.T.A.R.S. PROGRAM WHICH MEETS WEEKLY ONCE MEMBERS TURN 12 YEARS OLD. ADULTS CAN ENJOY MONTHLY DSG ACTIVITIES IN ADDITION TO REGULAR COMMUNITY EVENTS AVAILABLE TO THEM. EACH MEMBER IS RECOGNIZED DURING HIS/HER BIRTHDAY MONTH THROUGH THE DSG BIRTHDAY BLUB WHICH SENDS A CARD TO EACH MEMBER.


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Board, Officers & Key Employees

Name (title)Compensation
Jason Drummond
Chief Executive Officer
$200,709
Amy Allison
Chief Operating Officer
$115,802
Amy Stoll
Chief Development Officer
$101,829
Mike Frazier
President
$0
Bob Fagan
Vice President
$0
Joe Roos
Treasurer
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$436,863
Related organizations$0
Government grants $10,000
All other contributions, gifts, grants, and similar amounts not included above$1,884,639
Noncash contributions included in lines 1a–1f $111,057
Total Revenue from Contributions, Gifts, Grants & Similar$2,331,502
Total Program Service Revenue$93,559
Investment income $16,443
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales -$2,023
Net Income from Fundraising Events $139,090
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $2,582,114

Grants Awarded

Over the last fiscal year, Down Syndrome Guild Of Greater Kansas City Inc has awarded $11,000 in support to 2 organizations.

Grant RecipientAmount

CHILDREN'S MERCY HOSPITAL

Org PageRecipient Profile

Kansas City, MO

PURPOSE: PUBLIC EDUCATION ASSISTANCE

$6,000

LUMIND RESEARCH FOUNDATION

Org PageRecipient Profile

Burlington, MA

PURPOSE: ASSIST ONGOING RESEARCH TO IMPROVE THE LIVES OF PEOPLE WITH DOWNS SYNDROME

$5,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 6 grants that Down Syndrome Guild Of Greater Kansas City Inc has recieved totaling $57,316.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$16,236
Royals Charities Inc

Kansas City, MO

PURPOSE: PROGRAMS

$10,000
Servant Foundation

Overland Park, KS

PURPOSE: COMMUNITY DEVELOPMENT

$10,000
Veterans United Foundation

Columbia, MO

PURPOSE: 10 YEARS: EQUIPMENT FOR TELETHERAPY SERVICES

$7,805
$6,700
Paypal Charitable Giving Fund

Washington, DC

PURPOSE: General Support

$6,575
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$661,050
Earnings$10,881
Admin Expense$4,586
Net Contributions$42,292
Ending Balance$709,637

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