Child Neurology Education And Research Foundation
- Assets
- $2.7m
- Revenue
- $1.9m
- Investments
- $0.0
- Employees
- 11
- Location
- Lexington, KY
- Founding
- 05/2001
- Data as of
- 12/2022
- EIN
- 41-1984675
Organization Overview
Child Neurology Education And Research Foundation, operating under the name Child Neurology Foundation, is located in Lexington, KY. The organization was established in 2001. According to its NTEE Classification (H50) the organization is classified as: Nerve, Muscle & Bone Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2022, Child Neurology Foundation employed 11 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Child Neurology Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Child Neurology Foundation generated $1.9m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 2.4% each year. All expenses for the organization totaled $3.7m during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Child Neurology Foundation has awarded 48 individual grants totaling $2,082,648. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO SERVE AS A COLLABORATIVE CENTER OF EDUCATION, RESOURCES, AND SUPPORT FOR CHILDREN AND THEIR FAMILIES LIVING WITH NEUROLOGIC CONDITIONS, AND FACILITATE CONNECTION WITH MEDICAL PROFESSIONALS WHO CARE FOR THEM.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH GRANTS: SINCE 2001, CNF HAS PROUDLY AWARDED GRANTS AND SCHOLARSHIPS TOTALING OVER $4.87M TO CHILD NEUROLOGISTS, MEDICAL STUDENTS, INSTITUTIONS, AND RESEARCHERS WHO ARE WORKING ON TREATMENTS AND CURES FOR PEDIATRIC NE UROLOGIC DISEASES. TO ENCOURAGE COLLABORATION AND INCREASE RESEARCH, THE FOUNDATION AWARDED A $150,000 PEDIATRIC EPILEPSY RESEARCH FOUNDATION (PERF) ELTERMAN AND A $150,000 PERF SHIELDS RESEARCH GRANT IN 2022 TO SUPPORT CLINICAL OR BASIC SCIENCE RESEARCH BY A CHILD NEUROLOGIST OR DEVELOPMENTAL PEDIATRICIAN EARLY IN THEIR ACADEMIC CAREER WHO ARE MEMBERS OF THE CHILD NEUROLOGY SOCIETY. TO FURTHER SUPPORT INTEREST IN THE FIELD OF CHILD NEUROLOGY, THE FOUNDATION ALSO AWARDED THREE OF THE THE DR. KENNETH F. SWAIMAN MEDICAL STUDENT SCHOLARSHIPS IN THE AMOUNT OF $5,000 FOR MEDICAL STUDENTS INTERESTED IN EXPLORING A CAREER IN CHILD NEUROLOGY, PLUS $1,000 TRAVEL STIPEND FOR ATTENDANCE AT THE CHILD NEUROLOGY SOCIETY ANNUAL MEETING, AND THE NEURODEVELOPMENTAL DISABILITIES SUMMER RESEARCH SCHOLARSHIP OF $3,500 TO A MEDICAL STUDENT WHO HAS AN INTEREST IN TRAINING IN NEURODEVELOPMENTAL DISABILITIES OR CHILD NEUROLOGY.
COMMUNITY SUPPORT AND EDUCATION: IN 2022 , CNF PROVIDED 75 FAMILIES WITH CHROMEBOOKS AND HOTSPOTS TO BETTER ACCESS TELEHEALTH, PROVIDED EMOTIONAL SUPPORT TO OVER 190 FAMILIES, REACHED OVER 550 CLINICIANS WITH EDUCATION, AND BUILT COLLABORATIONS WITH OVER 50 OTHER PATIENT ADVOCACY ORGANIZATIONS. PROGRAM TOPICS INCLUDED FAMILY SUPPORT, DIGITAL ACCESS, INFANTILE SPAMS ACTION NETWORK, TRANSITION OF CARE, AND SHORTENING THE DIAGNOSTIC ODYSSEY, TRANSITION OF CARE, CARE COORDINATION, PREVENTING EPILEPSY DEATHS, AND CLINICAL TRIALS. CNF ALSO COLLECTED INSIGHTS FROM OVER 1,600 FAMILIES AND CHILD NEUROLOGISTS VIA SURVEYS AND FOCUS GROUPS. THIS INFORMATION INFLUENCES THE DEVELOPMENT OF CNF PROGRAMMING GOING FORWARD.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Amy Brin Executive Director Ex Officio Non-Voting Member | Officer | 45 | $299,644 |
Greta Wright Chief Operations Officer | Officer | 41 | $191,270 |
Katie Hentges Director Of Programs | 44 | $102,756 | |
Dr Amaris Sanchez Larragoity Director | Trustee | 1 | $0 |
Dr Donald Pearl Director | Trustee | 1 | $0 |
Dr John Millichap Director | Trustee | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Digital Health Solutions Llc Development Of Child Health Improvement Through Computer Automation System For Child Neurology | 12/30/21 | $591,293 |
Cyndi Wright Project And Event Management | 12/30/21 | $105,468 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $59,013 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,110,733 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,169,746 |
| Total Program Service Revenue | $728,465 |
| Investment income | -$30,731 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,869,480 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $475,375 |
| Grants and other assistance to domestic individuals. | $1,000 |
| Grants and other assistance to Foreign Orgs/Individuals | $5,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $645,318 |
| Compensation of current officers, directors, key employees. | $477,001 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $664,680 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $155,019 |
| Payroll taxes | $45,141 |
| Fees for services: Management | $21,276 |
| Fees for services: Legal | $65,708 |
| Fees for services: Accounting | $15,544 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $12,188 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,027,169 |
| Advertising and promotion | $1,926 |
| Office expenses | $12,390 |
| Information technology | $260,564 |
| Royalties | $0 |
| Occupancy | $49,661 |
| Travel | $168,662 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $16,028 |
| Interest | $1,900 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $8,367 |
| Insurance | $9,575 |
| All other expenses | $0 |
| Total functional expenses | $3,680,696 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $170,536 |
| Savings and temporary cash investments | $1,063,446 |
| Pledges and grants receivable | $954,169 |
| Accounts receivable, net | $5,907 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $8,896 |
| Net Land, buildings, and equipment | $25,987 |
| Investments—publicly traded securities | $446,669 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $68,590 |
| Total assets | $2,744,200 |
| Accounts payable and accrued expenses | $290,630 |
| Grants payable | $391,965 |
| Deferred revenue | $158,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $90,000 |
| Other liabilities | $70,485 |
| Total liabilities | $1,001,080 |
| Net assets without donor restrictions | $575,013 |
| Net assets with donor restrictions | $1,168,107 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,744,200 |
Grants Awarded
Over the last fiscal year, Child Neurology Education And Research Foundation has awarded $446,875 in support to 7 organizations.
| Grant Recipient | Amount |
|---|---|
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO PURPOSE: 2023 PERF Grant - $150,000; 2023 Transition of Care Quality Improvement Grant - $25,000 | $175,000 |
UNIVERSITY OF ROCHESTER PURPOSE: 2023 PERF Grant - $150,000 | $150,000 |
NATIONAL TUBEROUS SCLEROSIS ASSOCIATIONDBA TSC ALLIANCE PURPOSE: 2022 Infantile Spasms Awareness Network Governance Grant - $36,375; 2022 Infantile Spasms Awareness Week Grant - $5,000 | $41,375 |
CHILD NEUROLOGY SOCIETY PURPOSE: 2022 Unrestricted Symposium Grant - $30,000; Dodge Research Grant Contribution - $1,000 | $31,000 |
CHILDREN'S HOSPITAL CORPORATIONDBA BOSTON CHILDREN'S HOSPITAL PURPOSE: 2022 Transition of Care Quality Improvement Grant | $25,000 |
AMERICAN EPILEPSY SOCIETY PURPOSE: 2022 Unrestricted Symposium Grant - $10,000; 2022 Parents Against Mortality in Epilepsy (PAME) Grant - $2,500 | $12,500 |