American Porphyria Foundation
- Assets
- $693.3k
- Revenue
- $630.4k
- Investments
- $0.0
- Employees
- 13
- Location
- Western Springs, IL
- Founding
- 02/2001
- Data as of
- 12/2021
- EIN
- 36-4401266
Organization Overview
American Porphyria Foundation is located in Western Springs, IL. The organization was established in 2001. According to its NTEE Classification (B90) the organization is classified as: Educational Services, under the broad grouping of Education and related organizations. As of 12/2021, American Porphyria Foundation employed 13 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. American Porphyria Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, American Porphyria Foundation generated $630.4k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 0.0% each year. All expenses for the organization totaled $1.1m during the year ending 12/2021. While expenses have increased by 5.4% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, American Porphyria Foundation has awarded 13 individual grants totaling $190,000. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
PORPHYRIA EDUCATION AND RESEARCH.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PORPHYRIA EDUCATION AND RESEARCH - DISSEMINATION OF INFORMATION TO THOUSANDS OF INDIVIDUALS AFFECTED BY PORPHYRIA AND GRANTS TO PHYSICIANS FOR RESEARCH
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Desiree Lyon Howe Executive Director | Officer | 40 | $65,000 |
Warren Hudson President | OfficerTrustee | 10 | $0 |
James Young Treasurer | OfficerTrustee | 0.5 | $0 |
Nicole Castellano Trustee | Trustee | 0.5 | $0 |
Paul Stickler Trustee | Trustee | 0.5 | $0 |
Ronald Polly Trustee | Trustee | 0.5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $630,316 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $630,316 |
| Total Program Service Revenue | $0 |
| Investment income | $125 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $630,441 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $11,300 |
| Grants and other assistance to domestic individuals. | $60,000 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $389,135 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $32,717 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $136,032 |
| Fees for services: Accounting | $5,377 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $31,160 |
| Advertising and promotion | $5,703 |
| Office expenses | $14,633 |
| Information technology | $9,494 |
| Royalties | $0 |
| Occupancy | $27,078 |
| Travel | $29,651 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $125,505 |
| Interest | $101 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $9,418 |
| All other expenses | $214,887 |
| Total functional expenses | $1,110,462 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $691,373 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1,897 |
| Total assets | $693,270 |
| Accounts payable and accrued expenses | $4,529 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $4,529 |
| Net assets without donor restrictions | $688,741 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $693,270 |
Grants Awarded
Over the last fiscal year, American Porphyria Foundation has awarded $40,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Seattle, WA PURPOSE: PORPHYRIA RESEARCH | $15,000 |
UNIVERSITY OF MIAMI PURPOSE: PORPHYRIA RESEARCH | $15,000 |
CONNECT FOR STRATAGIES - RECORDATI GRANT PURPOSE: PORPHYRIA RESEARCH | $10,000 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that American Porphyria Foundation has recieved totaling $25,277.
| Awarding Organization | Amount |
|---|---|
Paypal Charitable Giving Fund Washington, DC PURPOSE: General Support | $13,219 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $12,058 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Riverbend Head Start Delegate Inc Alton, IL | $2,230,032 | $11,645,370 |
Edchoice Inc Indianapolis, IN | $20,542,454 | $10,117,129 |
Teachers Treasures Inc Indianapolis, IN | $1,070,406 | $9,359,257 |
Academy For Urban School Leadership Chicago, IL | $9,385,123 | $10,302,671 |
Primo Center For Women And Children Chicago, IL | $5,281,489 | $8,337,109 |
North Chicago Education Fund Chicago, IL | $29,249,144 | $33,611 |
Racine Charter One Inc Racine, WI | $5,378,275 | $6,487,272 |
Rockford Rescue Mission Ministries Rockford, IL | $21,367,986 | $9,020,470 |
Hands Of Hope Of Illinois Joliet, IL | $1,296,526 | $5,994,753 |
Communities In Schools Of Chicago Chicago, IL | $8,973,055 | $9,274,759 |
Uw-Platteville Real Estate Foundation Inc Platteville, WI | $45,856,338 | $5,901,983 |
Iowa Western Community College Foundation Council Bluffs, IA | $36,011,501 | $4,880,435 |