Cure Jm Foundation

Organization Overview

Cure Jm Foundation is located in Leesburg, VA. The organization was established in 2004. According to its NTEE Classification (G19) the organization is classified as: Support N.E.C., under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 09/2022, Cure Jm Foundation employed 10 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cure Jm Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 09/2022, Cure Jm Foundation generated $1.8m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 12.1% each year . All expenses for the organization totaled $1.8m during the year ending 09/2022. While expenses have increased by 11.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2019, Cure Jm Foundation has awarded 32 individual grants totaling $3,139,008. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

TO FIND BETTER TREATMENTS AND A CURE FOR JUVENILE MYOSITIS AND IMPROVE THE LIVES OF FAMILIES.

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE ORGANIZATION DIRECTLY SUPPORTED RESEARCH AS FOLLOWS: 1) 142,010 TO THE CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE (CARRA) TO LAUNCH A MULTI-CENTER JM PATIENT REGISTRY TO COLLECT INFORMATION AT THE TIME OF DIAGNOSIS AND AT REGULAR INTERVALS ABOUT HOW A PATIENT IS DOING, MEDICATIONS USED, AND SIDE EFFECTS; 2) 118,000 TO THE UNIVERSITY OF CALIFORNIA 3) 112,500 TO GEORGE WASHINGTON UNIVERSITY'S PROJECT TO MEASURE OXIDATIVE STRESS AND MITOCHONDRIAL FUNCTION AS POSSIBLE CAUSES OF FATIGUE; 4) 93,750 TO DUKE UNIVERSITY MEDICAL CENTER IN DURHAM, NC TO IDENTIFY ABERRANT PATTERNS OF METABOLITE EXPRESSION IN THEBLOOD AND MUSCLE OF CHILDREN WITH JDM; 5) 62,884 TO THE SEATTLE CHILDREN'S HOSPITAL IN SEATTLE, WA; 6) 62,500 TO THE MEDICAL COLLEGE OF WISCONSIN, INC. 7) 37,500 TO BINGHAMPTON UNIVERITY 8) 25,000 TO THE ANN & ROBERT H. LURIE CHILDREN'S HOSPITAL IN CHICAGO, IL FOR CURE JM PROGRAM OF EXCELLENCE RESEARCH; 9) 98,851 TO THE UNIVERSITY OF BATH (UK) 10) 61,985 TO THE TORONTO HOSPITAL FOR SICK CHILDREN (CA)


THE ANNUAL NATIONAL FAMILY CONFERENCE & WALK STRONG TO CURE JM EVENT WAS HELD IN VARIOUS LOCATIONS ACROSS THE UNITED STATES. FAMILIES ATTENDED INCLUDING GRANDPARENTS, PARENTS, CHILDREN, TEENS, YOUNG ADULTS. MEDICAL PROFESSIONALS ALSO PARTICIPATED IN A MEDICAL CONFERENCE TO SHARE THE LATEST ADVANCEMENTS IN JM RESEARCH AND TREATMENTS. FAMILIES CAPPED THE WEEKEND WITH ATTENDANCE AT THE WALK STRONG TO CURE JM EVENTS.


THE ORGANIZATION IS COMMITTED TO INCREASING AWARENESS AND EDUCATION OF THIS RARE, INCURABLE AUTOIMMUNE DISEASE AS WELL AS PROVIDING A SUPPORT COMMUNITY FOR IMPACTED FAMILIES. THESE EFFORTS ARE ACCOMPLISHED THROUGH A VARIETY OF METHODS SUCH AS: ATTENDANCE AT MEDICAL CONFERENCES REPRESENTING CURE JM FOUNDATION AND ITS WORK/ACTIVITIES; DISTRIBUTION OF PRINTED INFORMATION CARDS, BROCHURES AND EDUCATIONAL BOOKS TO IMPACTED FAMILIES AND THE MEDICAL COMMUNITY; DISTRIBUTION OF WELCOME KITS TO NEWLY DIAGNOSED FAMILIES; NEWSLETTERS; EDUCATIONAL EVENTS AND GATHERINGS; FAMILY SUPPORT; SURVEY AND METRIC TOOLS; MAINTENANCE OF A PATIENT REGISTRY AND MESSAGE BOARD AND UPDATES/MAINTENANCE OF THE ORGANIZATION' S WEBSITE.


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Board, Officers & Key Employees

Name (title)Compensation
James Minow
Executive Di
$143,000
Nikki Hahn
President
$0
Brent Hauser
Treasurer
$0
Mitali Dave
Chairman
$0
Kristine Alderfer
Director
$0
Shari Hume
Co-Founder
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$1,559,125
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$1,559,125
Total Program Service Revenue$0
Investment income $9
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,824,036

Grants Awarded

Over the last fiscal year, Cure Jm Foundation has awarded $629,144 in support to 7 organizations.

Grant RecipientAmount

CHILDHOOD ARTHRITIS & RHEUMATOLOGYRESEARCH ALLIANCE

Org PageRecipient Profile

Washington, DC

PURPOSE: SUPPORT THE EXPANSIO

$142,010

UNIVERSITY OF CALIFORNIA SAN FRANC

Org PageRecipient Profile

San Francisco, CA

PURPOSE: CURE JM FELLOW UNDER

$118,000

THE GEORGE WASHINGTON UNIVERSITY

Org PageRecipient Profile

Ashburn, VA

PURPOSE: STUDY TO EXPLORE REL

$112,500

DUKE UNIVERSITY MEDICAL CENTER

Org PageRecipient Profile

Durham, NC

PURPOSE: JUVENILE IDIOPATHIC

$93,750

SEATTLE CHILDRENS HOSPITAL

Org PageRecipient Profile

Seattle, WA

PURPOSE: SUPPORT CHILDREN'S

$62,884

MEDICAL COLLEGE OF WISCONSIN INC

Org PageRecipient Profile

Milwaukee, WI

PURPOSE: SUPPORT DISEASE RESE

$62,500
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 3 grants that Cure Jm Foundation has recieved totaling $7,809.

Awarding OrganizationAmount
Jeanne V And Joel E Reed Charitable Foundation Inc

Austin, TX

PURPOSE: GENERAL SUPPORT

$4,800
Cjr Foundation Inc

Austin, TX

PURPOSE: RESEARCH TO CURE JUVENILE MYOSITIS

$2,100
Towe Foundation

Lakeway, TX

PURPOSE: FOR PATIENT CARE AND THE DEVELOPMENT OF NEW TREATMENTS

$909
View Grant Recipient Profile

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