Propionic Acidemia Foundation
- Assets
- $431.8k
- Revenue
- $140.1k
- Investments
- $0.0
- Employees
- 0
- Location
- Highland Park, IL
- Founding
- 11/2003
- Data as of
- 07/2021
- EIN
- 33-1043399
Organization Overview
Propionic Acidemia Foundation is located in Highland Park, IL. The organization was established in 2003. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Propionic Acidemia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 07/2021, Propionic Acidemia Foundation generated $140.1k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 13.5% each year . All expenses for the organization totaled $176.8k during the year ending 07/2021. While expenses have increased by 16.5% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
FINDING IMPROVED TREATMENTS AND A CURE FOR PROPIONIC ACIDEMIA BY FUNDING RESEACH AND PROVIDING INFORMATION AND SUPPORT TO FAMILIES AND MEDICAL PROFESSIONALS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH GRANTS TO FIND BETTER TREATMENTS AND A CURE OR PROPIONIC ACIDEMIA AND PROPIONIC ACIDEMIA, PATIENT REGISTRY. CONTACTING RESEARCHERS.
OUTREACH, EDUCATION, AND AWARENESS OF MEDICAL PROFESSIONALS, AFFECTED FAMILIES AND COMMUNITY. DISTRIBUTED TWO NEWSLETTERS. HAD TO CANCEL PAF CONFERENCE IN ADDITION TO NOT ATTENDING AND EXHIBITING AT OTHER CONFERENCES DUE TO COVID-19. HELD VIRTUAL MEETINGS
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jill Chertow Franks President | OfficerTrustee | 15 | $0 |
Angela Waits Secretary | OfficerTrustee | 1 | $0 |
Brittany Smith Treasurer | OfficerTrustee | 10 | $0 |
Maria L Cotrina Board Member | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $139,492 |
| Investment income | $650 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $140,142 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $65,735 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $150 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $1,367 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $196 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,264 |
| All other expenses | $0 |
| Total functional expenses | $176,764 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $431,754 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $431,754 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Total liabilities and net assets/fund balances | $431,754 |
Grants Awarded
Over the last fiscal year, Propionic Acidemia Foundation has awarded $97,466 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Durham, NC PURPOSE: Research on Propionic Acidemia | $50,576 |
New York, NY PURPOSE: Research on Propionic Acidemia | $45,000 |
Topeka, IN PURPOSE: Community Testing for propionic acidemia | $1,890 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Propionic Acidemia Foundation has recieved totaling $8,509.
| Awarding Organization | Amount |
|---|---|
Paypal Charitable Giving Fund Washington, DC PURPOSE: General Support | $8,209 |
Verizon Foundation Basking Ridge, NJ PURPOSE: MIP PAYOUT FOR 01/12/21 | $250 |
Jp Morgan Chase Foundation New York, NY PURPOSE: GENERAL OPERATING SUPPORT | $50 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Swine Health Information Center Inc Ames, IA | $4,515,453 | $11,816 |
Longer Life Foundation Chesterfield, MO | $31,566 | $500,000 |
Cured Nfp Buffalo Grove, IL | $212,455 | $520,321 |
Propionic Acidemia Foundation Highland Park, IL | $431,754 | $140,142 |
Ellyn Satter Institute Inc Middleton, WI | $180,616 | $226,356 |
A Long Swim Barrington, IL | $107,071 | $0 |
Pks Kids Green Bay, WI | $110,839 | $0 |
Matthew And Andrew Akin Foundation Bridgeton, MO | $117,446 | $23,292 |
Erase Ptsd Now Chicago, IL | $2,953,306 | $3,044,101 |
Orthopaedic Surgery And Sportsmedicine Teaching And Research Foun Western Springs, IL | $53,003 | $0 |
Red Dog Cf Inc Canton, IL | $51,996 | $0 |
The Collaborative Study Group Chicago, IL | $4,237 | $11,163 |