Propionic Acidemia Foundation
- Assets
- $460.5k
- Revenue
- $146.0k
- Investments
- $0.0
- Employees
- 0
- Location
- Deerfield, IL
- Founding
- 11/2003
- Data as of
- 07/2024
- EIN
- 33-1043399
Organization Overview
Propionic Acidemia Foundation is located in Deerfield, IL. The organization was established in 2003. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Propionic Acidemia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 07/2024, Propionic Acidemia Foundation generated $146.0k in total revenue. This represents relatively stable growth, over the past 5 years the organization has increased revenue by an average of 8.4% each year. All expenses for the organization totaled $123.6k during the year ending 07/2024. While expenses have increased by 6.8% per year over the past 5 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2024
Describe the Organization's Mission:
Part 3 - Line 1
FINDING IMPROVED TREATMENTS AND A CURE FOR PROPIONIC ACIDEMIA BY FUNDING RESEACH AND PROVIDING INFORMATION AND SUPPORT TO FAMILIES AND MEDICAL PROFESSIONALS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH GRANTS TO FIND BETTER TREATMENTS AND A CURE FOR PROPIONIC ACIDEMIA AND PROPIONIC ACIDEMIA, PATIENT REGISTRY. CONTACTING RESEARCHERS
OUTREACH, EDUCATION, AND AWARENESS OF MEDICAL PROFESSIONALS, AFFECTED FAMILIES AND COMMUNITY. DISTRIBUTED TWO NEWSLETTERS. HELD VIRTURAL MEETINGS. ATTENDED AND EXHIBITED AT MEDICAL PROFESSIONAL MEETINGS
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jill Chertow Franks President | OfficerTrustee | 20 | $0 |
Angela Waits Secretary | OfficerTrustee | 10 | $0 |
Maria L Cotrina Board Member | Trustee | 4 | $0 |
Brittany Smith Treasurer | OfficerTrustee | 10 | $0 |
Sue Weaver Board Member | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $119,441 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $119,441 |
| Total Program Service Revenue | $0 |
| Investment income | $26,516 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $145,957 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $4,822 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $96,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $245 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $11,153 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $561 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $3,520 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,250 |
| All other expenses | $0 |
| Total functional expenses | $123,551 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $5,231 |
| Savings and temporary cash investments | $455,255 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $460,486 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $460,486 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $460,486 |
Grants Awarded
Over the last fiscal year, Propionic Acidemia Foundation has awarded $55,432 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
ICAHN SCHOOL OF MEDICINE PURPOSE: Research of Propionic Acidemia | $4,590 |
UNIVERSITY OF COLORADO DENVER PURPOSE: Research of Propionic Acidemia | $50,000 |
THE COMMUNITY HEALTH CLINIC PURPOSE: Community Outreach-Education or Research of Propionic Acidemia | $842 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Swine Health Information Center Inc Ames, IA | $6,710,364 | $4,434,819 |
Erase Ptsd Now Schaumburg, IL | $1,402,178 | $36,751 |
Longer Life Foundation Chesterfield, MO | $42,430 | $500,000 |
Cured Nfp Buffalo Grove, IL | $246,573 | $494,876 |
Ellyn Satter Institute Inc Middleton, WI | $170,581 | $177,548 |
Propionic Acidemia Foundation Deerfield, IL | $460,486 | $145,957 |
Matthew And Andrew Akin Foundation Bridgeton, MO | $117,446 | $23,292 |
1j Foundation Chicago, IL | $52,238 | $0 |
A Long Swim Barrington, IL | $29,472 | $0 |
Pks Kids Green Bay, WI | $109,739 | $0 |
Orthopaedic Surgery And Sportsmedicine Teaching And Research Foun Western Springs, IL | $19,621 | $0 |
Red Dog Cf Inc Canton, IL | $62,210 | $0 |
Radler Foundation For Innovation And Education Inc Greenfield, WI | $376,906 | $125,382 |
Warrior William Project Imperial, MO | $36,268 | $0 |
Westyns Light Colgate, WI | $26,493 | $0 |
The Collaborative Study Group Chicago, IL | $0 | $11,290 |
Megan Hoogeveen Memorial Foundation Inc Pella, IA | $7,591 | $0 |