Fibrolamellar Cancer Foundation
- Assets
- $11.0m
- Revenue
- $6.1m
- Investments
- $6.0m
- Employees
- 3
- Location
- Greenwich, CT
- Founding
- 08/2010
- Data as of
- 12/2022
- EIN
- 27-0341021
Organization Overview
Fibrolamellar Cancer Foundation is located in Greenwich, CT. The organization was established in 2010. According to its NTEE Classification (G19) the organization is classified as: Support N.E.C., under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2022, Fibrolamellar Cancer Foundation employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Fibrolamellar Cancer Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Fibrolamellar Cancer Foundation generated $6.1m in total revenue. This organization has experienced exceptional growth, as over the past 8 years, it has increased revenue by an average of 20.4% each year . All expenses for the organization totaled $2.6m during the year ending 12/2022. While expenses have increased by 19.3% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, Fibrolamellar Cancer Foundation has awarded 46 individual grants totaling $8,866,866. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
FIBROLAMELLAR CANCER FOUNDATION,(THE "FOUNDATION") WAS ESTABLISHED TO RAISE AWARENESS AND RESEARCH FUNDS FOR FIBROLAMELLAR CARCINOMA, A RARE FORM OF LIVER CANCER THAT IS PRIMARILY SEEN IN TEENS AND YOUNG ADULTS. CURRENTLY, THERE ARE NO VIABLE TREATMENT OPTIONS OTHER THAN LIVER RESECTION SURGERY. OUR MISSION IS TO FIND A CURE AND RELIABLE TREATMENT OPTIONS FOR THOSE DIAGNOSED WITH THIS RARE DISEASE AS WELL AS ENHANCE COMMUNICATIONS AMONG HEALTHCARE PROFESSIONALS AND PATIENTS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
GRANTS TO RESEARCH ORGANIZATIONS FOR FIBROLAMELLAR CARCINOMA STUDIES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Marna O Davis Co-Chairperson | OfficerTrustee | 25 | $0 |
Charles W Beerman Director | Trustee | 1 | $0 |
Derek Gilchrist Director, Secretary | OfficerTrustee | 2 | $0 |
Anne Adler Director | Trustee | 25 | $0 |
John Craig Director | Trustee | 1 | $0 |
Tal Friedman Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $908,169 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $5,165,411 |
| Noncash contributions included in lines 1a–1f | $1,064 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $6,073,580 |
| Total Program Service Revenue | $0 |
| Investment income | $3,055 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $6,076,635 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,373,548 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $49,999 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $200,000 |
| Compensation of current officers, directors, key employees. | $200,000 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $286,543 |
| Pension plan accruals and contributions | $18,799 |
| Other employee benefits | $46,619 |
| Payroll taxes | $31,078 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $95,203 |
| Advertising and promotion | $6,324 |
| Office expenses | $10,125 |
| Information technology | $50,400 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $10,995 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $783 |
| Insurance | $12,443 |
| All other expenses | $0 |
| Total functional expenses | $2,563,688 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $4,930,500 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $80,900 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $653 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $5,969,369 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $10,981,422 |
| Accounts payable and accrued expenses | $148,677 |
| Grants payable | $1,559,243 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $1,707,920 |
| Net assets without donor restrictions | $9,273,502 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $10,981,422 |
Grants Awarded
Over the last fiscal year, Fibrolamellar Cancer Foundation has awarded $1,373,548 in support to 8 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF WISCONSIN PURPOSE: SCIENTIFIC RESEARCH | $49,999 |
CORNELL UNIVERSITY COLLEGE OF VETERINARY MEDICINE PURPOSE: SCIENTIFIC RESEARCH | $388,554 |
UIVERSITY OF WASHINGTON PURPOSE: SCIENTIFIC RESEARCH | $270,000 |
JOHNS HOPKINS PURPOSE: SCIENTIFIC RESEARCH | $49,999 |
UNIVERSITY OF CALIFORNIA SAN DIEGO PURPOSE: SCIENTIFIC RESEARCH | $165,000 |
MASSACHUSETTS GENERAL HOSPITAL CANCER CENTER PURPOSE: SCIENTIFIC RESEARCH | $199,997 |