Hht Foundation International Inc

Organization Overview

Hht Foundation International Inc, operating under the name Cure Hht, is located in Monkton, MD. The organization was established in 1991. According to its NTEE Classification (S41) the organization is classified as: Chambers of Commerce & Business Leagues, under the broad grouping of Community Improvement & Capacity Building and related organizations. As of 06/2022, Cure Hht employed 13 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cure Hht is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 06/2022, Cure Hht generated $2.4m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 14.1% each year . All expenses for the organization totaled $1.9m during the year ending 06/2022. While expenses have increased by 7.3% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

OUR MISSION IS TO FIND A CURE FOR HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) WHILE SAVING THE LIVES AND IMPROVING THE WELL-BEING OF INDIVIDUALS AND FAMILIES AFFECTED BY HHT.

Describe the Organization's Program Activity:

Part 3 - Line 4a

RESEARCH - THE RESEARCH PROGRAM IS SUPPORTIVE IN FUNDING RESEARCH FOR THE UNDERSTANDING OF THE MECHANISM OF HHT DISEASE, NOVEL THERAPEUTIC APPROACHES TO TREATMENT AND MANAGEMENT, AND TRANSLATIONAL RESEARCH LEADING TO MULTI-CENTER TRIALS. THE HHT INTERNATIONAL SCIENTIFIC CONFERENCE IS HELD EVERY OTHER YEAR.


PUBLIC INFORMATION - THE GOAL OF PUBLIC INFORMATION PROGRAM IS TO INCREASE PUBLIC, PRIVATE AND GOVERNMENTAL AWARENESS OF THE HHT DISORDER THROUGH THE PRESS AND MEDIA.


EDUCATION - THE GOAL OF EDUCATION PROGRAM IS TO PROMOTE EDUCATION, DIAGNOSIS, AND BEST PRACTICE TREATMENTS RELATED TO HHT THROUGH ITS SUPPORT OF CONFERENCES, MEETINGS, AND COMPREHENSIVE HHT CLINICAL CENTERS OF EXCELLENCE.


ADVOCACY - THE GOAL OF THE ADVOCACY PROGRAM IS TO ADVOCATE FOR AND SUPPORT THOSE WITH HHT BYPURSUING RECOGNITION AND FUNDING FOR AWARENESS, ACCESS TO EXPERT CARE AND CLINICAL TRIALS.


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Board, Officers & Key Employees

Name (title)Compensation
Marianne Clancy
Executive Director
$153,068
Nicole Schaefer
Chief Operating Officer
$89,583
John Dunn
President
$0
Marc Topaz
Treasurer
$0
Benjamin Holt
Vice President
$0
Savanah Schott
Secretary
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$151,666
Related organizations$0
Government grants $699,199
All other contributions, gifts, grants, and similar amounts not included above$1,505,289
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$2,356,154
Total Program Service Revenue$23,936
Investment income $13,736
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $1,780
Net Income from Fundraising Events -$22,807
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $2,377,085

Grants Awarded

Over the last fiscal year, Hht Foundation International Inc has awarded $95,990 in support to 2 organizations.

Grant RecipientAmount

GEISEL SCHOOL OF MEDICINE AT DARTMOUTH COLLEGE

Org PageRecipient Profile

Hanover, NH

PURPOSE: RESEARCH

$70,990

UNIVERSITY OF FLORIDA

Org PageRecipient Profile

Gainesville, FL

PURPOSE: RESEARCH

$25,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 6 grants that Hht Foundation International Inc has recieved totaling $198,922.

Awarding OrganizationAmount
Schwab Charitable Fund

San Francisco, CA

PURPOSE: PUBLIC, SOCIETAL BENEFIT

$139,050
American Thrombosis And Hemostasisnetwork Inc

Rochester, NY

PURPOSE: DATA MANAGEMENT CAPACITY RESEARCH

$41,271
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$10,399
Mutual Of America Foundation

New York, NY

PURPOSE: GENERAL OPERATING PURPOSE

$5,000
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$3,152
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: OPERATIONAL SUPPORT

$50
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$197,326
Earnings-$30,139
Net Contributions$7,308
Ending Balance$174,495

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