Hht Foundation International Inc, operating under the name Cure Hht, is located in Monkton, MD. The organization was established in 1991. According to its NTEE Classification (S41) the organization is classified as: Chambers of Commerce & Business Leagues, under the broad grouping of Community Improvement & Capacity Building and related organizations. As of 06/2022, Cure Hht employed 13 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cure Hht is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Cure Hht generated $2.4m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 14.1% each year . All expenses for the organization totaled $1.9m during the year ending 06/2022. While expenses have increased by 7.3% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
OUR MISSION IS TO FIND A CURE FOR HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) WHILE SAVING THE LIVES AND IMPROVING THE WELL-BEING OF INDIVIDUALS AND FAMILIES AFFECTED BY HHT.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH - THE RESEARCH PROGRAM IS SUPPORTIVE IN FUNDING RESEARCH FOR THE UNDERSTANDING OF THE MECHANISM OF HHT DISEASE, NOVEL THERAPEUTIC APPROACHES TO TREATMENT AND MANAGEMENT, AND TRANSLATIONAL RESEARCH LEADING TO MULTI-CENTER TRIALS. THE HHT INTERNATIONAL SCIENTIFIC CONFERENCE IS HELD EVERY OTHER YEAR.
PUBLIC INFORMATION - THE GOAL OF PUBLIC INFORMATION PROGRAM IS TO INCREASE PUBLIC, PRIVATE AND GOVERNMENTAL AWARENESS OF THE HHT DISORDER THROUGH THE PRESS AND MEDIA.
EDUCATION - THE GOAL OF EDUCATION PROGRAM IS TO PROMOTE EDUCATION, DIAGNOSIS, AND BEST PRACTICE TREATMENTS RELATED TO HHT THROUGH ITS SUPPORT OF CONFERENCES, MEETINGS, AND COMPREHENSIVE HHT CLINICAL CENTERS OF EXCELLENCE.
ADVOCACY - THE GOAL OF THE ADVOCACY PROGRAM IS TO ADVOCATE FOR AND SUPPORT THOSE WITH HHT BYPURSUING RECOGNITION AND FUNDING FOR AWARENESS, ACCESS TO EXPERT CARE AND CLINICAL TRIALS.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Marianne Clancy Executive Director | Officer | 40 | $153,068 |
Nicole Schaefer Chief Operating Officer | Officer | 40 | $89,583 |
John Dunn President | OfficerTrustee | 1 | $0 |
Marc Topaz Treasurer | OfficerTrustee | 1 | $0 |
Benjamin Holt Vice President | OfficerTrustee | 1 | $0 |
Savanah Schott Secretary | OfficerTrustee | 1 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $151,666 |
Related organizations | $0 |
Government grants | $699,199 |
All other contributions, gifts, grants, and similar amounts not included above | $1,505,289 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $2,356,154 |
Total Program Service Revenue | $23,936 |
Investment income | $13,736 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $1,780 |
Net Income from Fundraising Events | -$22,807 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $2,377,085 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $24,963 |
Grants and other assistance to domestic individuals. | $4,937 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $311,048 |
Compensation of current officers, directors, key employees. | $11,478 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $346,491 |
Pension plan accruals and contributions | $1,811 |
Other employee benefits | $33,489 |
Payroll taxes | $48,419 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $70,352 |
Fees for services: Lobbying | $36,005 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $420,574 |
Advertising and promotion | $48,904 |
Office expenses | $90,470 |
Information technology | $32,579 |
Royalties | $0 |
Occupancy | $13,726 |
Travel | $4,066 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $166,234 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $4,273 |
Insurance | $0 |
All other expenses | $0 |
Total functional expenses | $1,884,387 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $583,916 |
Savings and temporary cash investments | $0 |
Pledges and grants receivable | $451,242 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $21,429 |
Net Land, buildings, and equipment | $7,801 |
Investments—publicly traded securities | $2,157,352 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $101,547 |
Total assets | $3,323,287 |
Accounts payable and accrued expenses | $178,682 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $178,682 |
Net assets without donor restrictions | $1,254,191 |
Net assets with donor restrictions | $1,890,414 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $3,323,287 |
Over the last fiscal year, Hht Foundation International Inc has awarded $95,990 in support to 2 organizations.
Grant Recipient | Amount |
---|---|
Hanover, NH PURPOSE: RESEARCH | $70,990 |
Gainesville, FL PURPOSE: RESEARCH | $25,000 |
Over the last fiscal year, we have identified 6 grants that Hht Foundation International Inc has recieved totaling $198,922.
Awarding Organization | Amount |
---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: PUBLIC, SOCIETAL BENEFIT | $139,050 |
American Thrombosis And Hemostasisnetwork Inc Rochester, NY PURPOSE: DATA MANAGEMENT CAPACITY RESEARCH | $41,271 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $10,399 |
Mutual Of America Foundation New York, NY PURPOSE: GENERAL OPERATING PURPOSE | $5,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $3,152 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: OPERATIONAL SUPPORT | $50 |
Beg. Balance | $197,326 |
Earnings | -$30,139 |
Net Contributions | $7,308 |
Ending Balance | $174,495 |
Organization Name | Assets | Revenue |
---|---|---|
Amt-The Association For Manufacturing Technology Mclean, VA | $46,538,427 | $7,983,774 |
Personal Care Products Council Washington, DC | $26,566,920 | $19,071,135 |
American Hotel & Lodging Association Directory Corporation Washington, DC | $39,158,961 | $23,973,024 |
Responsible Business Alliance Inc Alexandria, VA | $17,217,182 | $20,384,843 |
Asis International Inc Alexandria, VA | $27,323,586 | $13,144,142 |
National Institute For Automotive Service Exellence Leesburg, VA | $25,163,895 | $18,755,834 |
International Masonry Institute Bowie, MD | $25,662,049 | $19,254,775 |
Association For Financial Professionals Inc Bethesda, MD | $30,134,135 | $15,069,162 |
Portland Cement Association Alexandria, VA | $21,852,055 | $18,216,465 |
American College Of Radiology Association Reston, VA | $28,168,186 | $16,951,008 |
Plastics Industry Association Inc Washington, DC | $19,265,703 | $12,261,158 |
Aerospace Industries Association Of America Inc Arlington, VA | $34,239,387 | $18,520,879 |