Histiocytosis Association Inc
- Assets
- $2.4m
- Revenue
- $1.4m
- Investments
- $0.0
- Employees
- 8
- Location
- Pitman, NJ
- Founding
- 05/1988
- Data as of
- 12/2021
- EIN
- 22-2827069
Organization Overview
Histiocytosis Association Inc is located in Pitman, NJ. The organization was established in 1988. According to its NTEE Classification (G40) the organization is classified as: Diseases of Specific Organs, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Histiocytosis Association Inc employed 8 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Histiocytosis Association Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Histiocytosis Association Inc generated $1.4m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 0.7% each year. All expenses for the organization totaled $1.0m during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
HISTIOCYTOSIS ASSOCIATION, INC. IS DEDICATED TO RAISING AWARENESS ABOUT HISTIOCYTIC DISORDERS, PROVIDING EDUCATION AND EMOTIONAL SUPPORT, AND FUNDING RESEARCH LEADING TO BETTER TREATMENTS AND A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
EDUCATION AND OUTREACH: THE HISTIOCYTOSIS ASSOCIATION PROVIDES EDUCATIONAL INFORMATION AND OPPORTUNITIES TO PATIENTS AND THEIR FAMILIES AS WELL AS TO THE MEDICAL COMMUNITY THROUGH OUR ONLINE PRESENCE AT WWW.HISTIO.ORG, EDUCATIONAL VIDEOS, PRINTED MATERIALS AND ECOMMUNICATIONS. WE PROVIDE EMOTIONAL SUPPORT WITH OUR CIRCLE OF FRIENDS PROGRAM, SOCIAL MEDIA ACTIVITY, TELEPHONE-BASED HELPLINE AND HISTIO WARRIORS DIRECTORY WHICH CONNECTS PATIENTS AND FAMILIES IN A PRIVATE AND SECURE SETTING. THROUGH OUR PHYSICIAN DIRECTORY, PATIENTS AND DOCTORS ALIKE CAN FIND EXPERIENCED PHYSICIANS IN THEIR AREA. WE ADVOCATE FOR PATIENTS WITH HISTIOCYTIC DISORDERS THROUGHOUT THE YEAR, PARTICULARLY DURING SEPTEMBER HISTIOCYTOSIS AWARENESS MONTH, TO RAISE FUNDS AND AWARENESS ABOUT THESE RARE DISORDERS.
RESEARCH INITIATIVES: WE FUND THE VERY BEST BASIC SCIENCE RESEARCH BEING CONDUCTED WORLDWIDE AS IDENTIFIED THROUGH A COMPETITIVE EVALUATION PROCESS; THE RESULTS OF THIS FUNDING CONTINUE TO PAVE THE PATH TO A CURE. WE FUND CLINICAL STUDIES THAT RESULT IN IDENTIFYING THE BEST POSSIBLE TREATMENTS FOR HISTIOCYTIC DISORDERS; THIS PROVIDES IMMEDIATE AID TO PATIENTS BATTLING THESE DISEASES. AND WE DIRECTLY FACILITATE RESEARCH BY MANAGING THE HISTIOCYTE SOCIETY, THE ONLY PROFESSIONAL MEDICAL ORGANIZATION SPECIFICALLY DEDICATED TO THE RESEARCH AND TREATMENT OF HISTIOCYTIC DISORDERS; THIS UNIQUE RELATIONSHIP PROVIDES US WITH UNPARALLELED ACCESS TO THE LATEST ADVANCEMENTS AND INFORMATION IN THE SCIENTIFIC COMMUNITY, FROM WHICH ALL PATIENTS CAN BENEFIT.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Tracy Brown Chairwoman | OfficerTrustee | 1 | $0 |
Robert List Treasurer | OfficerTrustee | 1 | $0 |
Kimo Stine MD Secretary | OfficerTrustee | 1 | $0 |
Bradley Comp Board Member | Trustee | 1 | $0 |
Eli Diamond MD Board Member | Trustee | 1 | $0 |
James Hassan ESQ Board Member | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $813,493 |
| Related organizations | $0 |
| Government grants | $174,937 |
| All other contributions, gifts, grants, and similar amounts not included above | $350,146 |
| Noncash contributions included in lines 1a–1f | $12,908 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,338,576 |
| Total Program Service Revenue | $0 |
| Investment income | $12,201 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $19,959 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,416,505 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $413,611 |
| Pension plan accruals and contributions | $12,259 |
| Other employee benefits | $0 |
| Payroll taxes | $33,103 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $37,495 |
| Advertising and promotion | $4,376 |
| Office expenses | $0 |
| Information technology | $55,586 |
| Royalties | $0 |
| Occupancy | $8,355 |
| Travel | $7,074 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $7,144 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $8,505 |
| Insurance | $99,159 |
| All other expenses | $44,183 |
| Total functional expenses | $1,026,638 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $726,551 |
| Savings and temporary cash investments | $846,539 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $46,815 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $21,264 |
| Net Land, buildings, and equipment | $307,353 |
| Investments—publicly traded securities | $439,110 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,387,632 |
| Accounts payable and accrued expenses | $258,338 |
| Grants payable | $0 |
| Deferred revenue | $150 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $258,488 |
| Net assets without donor restrictions | $1,842,952 |
| Net assets with donor restrictions | $286,192 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,387,632 |
Grants Awarded
Over the last fiscal year, Histiocytosis Association Inc has awarded $150,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Pitman, NJ PURPOSE: RESEARCH | $50,000 |
ST JUDES RESEARCH HOSPITAL PURPOSE: RESEARCH | $50,000 |
CINCINNATI CHILDREN'S HOSPITAL PURPOSE: RESEARCH | $50,000 |
Grants Recieved
Over the last fiscal year, we have identified 16 grants that Histiocytosis Association Inc has recieved totaling $54,277.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $19,694 |
Paypal Charitable Giving Fund Washington, DC PURPOSE: General Support | $11,094 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $7,400 |
American Express Foundation New York, NY PURPOSE: GENERAL SUPPORT | $5,350 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $4,266 |
Roma Bank Community Foundation Inc Short Hills, NJ PURPOSE: GENERAL PURPOSE | $2,500 |
Endowment Analysis
| Beg. Balance | $151,500 |
| Ending Balance | $151,500 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
National Foundation For Celiac Awareness Ambler, PA | $4,645,706 | $2,656,405 |
Dystrophic Epidermolysis Bullosa Research Assn Of America Inc New York, NY | $2,216,777 | $1,109,789 |
Histiocytosis Association Inc Pitman, NJ | $2,387,632 | $1,416,505 |
National Renal Administrators Association Mount Royal, NJ | $21,861,692 | $2,274,258 |
Pennsylvania Workforce Development Association Camp Hill, PA | $576,596 | $904,674 |
Lets Win Pancreatic Cancer Foundation New York, NY | $1,768,476 | $1,270,755 |
Foundation For Ichthyosis And Related Skin Types Lansdale, PA | $2,615,716 | $1,013,506 |
Community Liver Alliance Pittsburgh, PA | $995,592 | $709,800 |
Halachic Organ Donor Society Inc New York, NY | $197,834 | $485,319 |
Advancing Innovation In Dermatology Inc Mendham, NJ | $1,825,386 | $432,441 |
Calliope Joy Foundation Bala Cynwyd, PA | $207,880 | $223,118 |
Help America Hear Inc Smithtown, NY | $105,244 | $195,272 |