Amyloidosis Foundation
- Assets
- $951.2k
- Revenue
- $693.9k
- Investments
- $0.0
- Employees
- 3
- Location
- Clarkston, MI
- Founding
- 04/2005
- Data as of
- 12/2020
- EIN
- 20-0291856
Organization Overview
Amyloidosis Foundation is located in Clarkston, MI. The organization was established in 2005. According to its NTEE Classification (H25) the organization is classified as: Down Syndrome Research, under the broad grouping of Medical Research and related organizations. As of 12/2020, Amyloidosis Foundation employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Amyloidosis Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2020, Amyloidosis Foundation generated $693.9k in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 3.1% each year. All expenses for the organization totaled $591.6k during the year ending 12/2020. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
THE ORGANIZATIONS MISSION IS TO INCREASE EDUCATION AND AWARENESS OF AMYLOIDOSIS, TO ASSIST PATIENTS IN FINDING QUALIFIED MEDICAL CARE AND TO SUPPORT RESEARCH.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH AND TRAVEL GRANTS.
EXHIBIT AT MEDICAL CONFERENCES AND RAISE AWARENESS OF AMYLOIDOSIS THROUGHOUT THE WORLD.
PATIENT SUPPORT SERVICES AND PUBLIC EDUCATION.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Mary E Odonnell President/ceo | OfficerTrustee | 30 | $56,376 |
Dante Burchi Treasurer | OfficerTrustee | 5 | $0 |
Mark Sutherland Chief Financial Officer | OfficerTrustee | 5 | $0 |
Adrienne Molteni Director | Trustee | 5 | $0 |
Charlotte Haffner Director | Trustee | 5 | $0 |
Dan Lenihan Director | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $30,880 |
| All other contributions, gifts, grants, and similar amounts not included above | $645,530 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $676,410 |
| Total Program Service Revenue | $0 |
| Investment income | $14,707 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$5,991 |
| Net Income from Fundraising Events | $8,740 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $693,866 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $263,273 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $56,376 |
| Compensation of current officers, directors, key employees. | $28,188 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $116,839 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $16,803 |
| Advertising and promotion | $990 |
| Office expenses | $2,191 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $14,205 |
| Travel | $4,177 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $9,369 |
| Insurance | $2,535 |
| All other expenses | $10,835 |
| Total functional expenses | $591,592 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $173,913 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $3,294 |
| Investments—publicly traded securities | $773,961 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $951,168 |
| Accounts payable and accrued expenses | $9,744 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $9,744 |
| Net assets without donor restrictions | $941,424 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $951,168 |
Grants Awarded
Over the last fiscal year, Amyloidosis Foundation has awarded $200,000 in support to 7 organizations.
| Grant Recipient | Amount |
|---|---|
COLUMBIA UNIVERSITY PURPOSE: RESEARCH | $125,000 |
New Haven, CT PURPOSE: RESEARCH | $25,000 |
Baltimore, MD PURPOSE: RESEARCH | $25,000 |
Somerville, MA PURPOSE: RESEARCH | $25,000 |
Grants Recieved
Over the last fiscal year, we have identified 19 grants that Amyloidosis Foundation has recieved totaling $84,063.
| Awarding Organization | Amount |
|---|---|
Chip Miller Charitable Foundation Carlisle, PA PURPOSE: PROGRAM SPECIFIC SUPPORT | $40,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $15,791 |
Paypal Charitable Giving Fund Washington, DC PURPOSE: General Support | $7,637 |
Charities Aid Foundation America Alexandria, VA PURPOSE: CHARITABLE DONATION | $6,929 |
Tudor Foundation Inc Stamford, CT PURPOSE: CHARITABLE PURPOSES | $5,000 |
Jane And Frances Stein Foundation East Hanover, NJ PURPOSE: GENERAL | $3,333 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Van Andel Research Institute Grand Rapids, MI | $289,629,145 | $88,891,678 |
Stowers Institute For Medical Research Kansas City, MO | $238,524,295 | $116,367,619 |
Institute For Cancer Research Philadelphia, PA | $148,137,241 | $82,576,402 |
Wistar Institute Of Anatomy & Biology Philadelphia, PA | $414,460,000 | $115,831,000 |
American Association For Cancer Research Philadelphia, PA | $261,131,206 | $103,171,549 |
Philadelphia Fight Philadelphia, PA | $17,499,427 | $51,561,885 |
Stanley Manne Childrens Research Institute Chicago, IL | $169,123,650 | $39,027,696 |
Nsabp Foundation Inc Pittsburgh, PA | $90,333,934 | $55,869,172 |
Hennepin Healthcare Research Institute Minneapolis, MN | $65,628,312 | $47,615,744 |
Alliance For Clinical Trials In Oncology Foundation Chicago, IL | $119,602,728 | $39,942,446 |
Trilogy Inc Chicago, IL | $15,390,124 | $38,855,480 |
Family Institute Evanston, IL | $24,399,945 | $35,971,873 |