Amyloidosis Foundation
- Assets
- $1.1m
- Revenue
- $710.4k
- Investments
- $0.0
- Employees
- 3
- Location
- Clarkston, MI
- Founding
- 04/2005
- Data as of
- 12/2022
- EIN
- 20-0291856
Organization Overview
Amyloidosis Foundation is located in Clarkston, MI. The organization was established in 2005. According to its NTEE Classification (H25) the organization is classified as: Down Syndrome Research, under the broad grouping of Medical Research and related organizations. As of 12/2022, Amyloidosis Foundation employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Amyloidosis Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Amyloidosis Foundation generated $710.4k in total revenue. The organization has seen a slow decline revenue. Over the past 4 years, revenues have fallen by an average of (0.9%) each year. All expenses for the organization totaled $598.2k during the year ending 12/2022. As we would expect to see with falling revenues, expenses have declined by (3.3%) per year over the past 4 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2020, Amyloidosis Foundation has awarded 17 individual grants totaling $745,000. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE ORGANIZATIONS MISSION IS TO INCREASE EDUCATION AND AWARENESS OF AMYLOIDOSIS, TO ASSIST PATIENTS IN FINDING QUALIFIED MEDICAL CARE AND TO SUPPORT RESEARCH.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH AND TRAVEL GRANTS.
EXHIBIT AT MEDICAL CONFERENCES AND RAISE AWARENESS OF AMYLOIDOSIS THROUGHOUT THE WORLD.
PATIENT SUPPORT SERVICES AND PUBLIC EDUCATION.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Mary E Odonnell President/ceo | OfficerTrustee | 30 | $56,160 |
Dante Burchi Treasurer | OfficerTrustee | 5 | $0 |
Mark Sutherland Chief Financial Officer | OfficerTrustee | 5 | $0 |
Charlotte Haffner Director | Trustee | 5 | $0 |
Adrienne Molteni Director | Trustee | 5 | $0 |
Dan Lenihan Director | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $606,782 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $606,782 |
| Total Program Service Revenue | $0 |
| Investment income | $14,415 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$5,583 |
| Net Income from Fundraising Events | $94,821 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $710,435 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $240,866 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $56,160 |
| Compensation of current officers, directors, key employees. | $5,641 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $103,488 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $12,167 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $21,836 |
| Advertising and promotion | $0 |
| Office expenses | $3,710 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $16,265 |
| Travel | $11,164 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $775 |
| Insurance | $2,903 |
| All other expenses | -$1,465 |
| Total functional expenses | $598,170 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $397,518 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $1,744 |
| Investments—publicly traded securities | $656,925 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,056,187 |
| Accounts payable and accrued expenses | $21,399 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $21,399 |
| Net assets without donor restrictions | $1,034,788 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,056,187 |
Grants Awarded
Over the last fiscal year, Amyloidosis Foundation has awarded $150,000 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
MAYO CLINIC PURPOSE: RESEARCH | $50,000 |
UNIVERSITY OF PENNSYLVANIA PURPOSE: RESEARCH | $25,000 |
BOSTON UNIVERSITY PURPOSE: RESEARCH | $50,000 |
HARVARD MEDICAL CENTER (B&W) PURPOSE: RESEARCH | $25,000 |