Moebius Syndrome Foundation
- Assets
- $2.4m
- Revenue
- $1.0m
- Investments
- $2.2m
- Employees
- 0
- Location
- Pilot Grove, MO
- Founding
- 09/1994
- Data as of
- 12/2021
- EIN
- 13-3753992
Organization Overview
Moebius Syndrome Foundation is located in Pilot Grove, MO. The organization was established in 1994. According to its NTEE Classification (T30) the organization is classified as: Public Foundations, under the broad grouping of Philanthropy, Voluntarism & Grantmaking Foundations and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Moebius Syndrome Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Moebius Syndrome Foundation generated $1.0m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 6.9% each year. All expenses for the organization totaled $183.7k during the year ending 12/2021. While expenses have increased by 7.5% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF THE MOEBIUS SYNDROME FOUNDATION IS TO PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS WITH MOEBIUS SYNDROME AND THEIR FAMILIES, PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME, AND TO ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS WITH MOEBIUS SYNDROME AND THEIR FAMILIES. THE NEWSLETTER AND BIANNUAL CONFERENCE ARE THE PRIMARY MEANS OF ACCOMPLISHING THIS GOAL.
PROMOTE GREATER AWARENESS AND UNDERSTANDING OF MOEBIUS SYNDROME. THE NEWSLETTER AND BIANNUAL CONFERENCE ARE THE PRIMARY MEANS OF ACCOMPLISHING THIS GOAL.
ADVOCATE FOR SCIENTIFIC RESEARCH TO ADVANCE THE DIAGNOSIS AND TREATMENT OF MOEBIUS SYNDROME AND ITS ASSOCIATED CONDITIONS.
PROVIDE COLLEGE SCHOLARSHIPS TO STUDENTS WITH MOEBIUS SYNDROME. EXPENSES 8,000. INLCUDING GRANTS OF 8,000. REVENUE 0.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Vicki Mccarrell Treasurer | OfficerTrustee | 10 | $0 |
Rebecca Maher Secretary | OfficerTrustee | 10 | $0 |
Jacob Licht President | OfficerTrustee | 20 | $0 |
Steven Maldonado Vice Preside | OfficerTrustee | 2 | $0 |
Bryn Webb MD Board Member | Trustee | 2 | $0 |
Jon Fisher Board Member | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $988,888 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $988,888 |
| Total Program Service Revenue | $0 |
| Investment income | $21,766 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $27,282 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,037,936 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $8,000 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $104,713 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $14,050 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $16,793 |
| Office expenses | $37,622 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $1,248 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,316 |
| All other expenses | $0 |
| Total functional expenses | $183,742 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $128,953 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $69,492 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $2,195,388 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,393,833 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $71,000 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $71,000 |
| Net assets without donor restrictions | $2,180,397 |
| Net assets with donor restrictions | $142,436 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,393,833 |
Grants Awarded
Over the last fiscal year, Moebius Syndrome Foundation has awarded $184,344 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
New York, NY PURPOSE: FUNDS FOR RESEARCH | $160,000 |
OREGON STATE UNIVERSITY PURPOSE: FUNDS FOR RESEARCH | $24,344 |
Grants Recieved
Over the last fiscal year, we have identified 6 grants that Moebius Syndrome Foundation has recieved totaling $24,514.
| Awarding Organization | Amount |
|---|---|
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $16,074 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: OPERATIONAL SUPPORT | $4,000 |
Jablon Family Foundation Corp Antioch, IL PURPOSE: GRANTS TO PEOPLE WITH DISABILITIES | $2,280 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,655 |
Lilly Endowment Inc Indianapolis, IN PURPOSE: EMPLOYEE MATCHING GIFT(S) | $400 |
Gannett Foundations Inc Mclean, VA PURPOSE: CHARITABLE PURPOSE | $105 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Communities Foundation Of Oklahoma Inc Oklahoma City, OK | $155,793,943 | $76,729,791 |
Impact Investing Charitable Foundation Inc Overland Park, KS | $59,629,063 | $92,847,262 |
Schuler Education Foundation Lake Forest, IL | $54,673,241 | $7,067,242 |
Gary Sinise Foundation Nashville, TN | $79,715,180 | $58,070,139 |
Veterans United Foundation Columbia, MO | $54,107,159 | $30,165,811 |
Nebraska Philanthropic Trust Omaha, NE | $2,416,213 | $1,885,786 |
Omni Behavioral Health Omaha, NE | $19,278,605 | $23,477,571 |
Philanthropic Impact Foundation Nashville, TN | $919,847 | $18,241,201 |
University Of Louisville Real Estate Foundation Louisville, KY | $156,388,720 | $20,770,834 |
Stifel Charitable Inc St Louis, MO | $132,307,100 | $94,589,551 |
Faith Charitable Trust Omaha, NE | $0 | $922,113 |
Moose Charities Inc Mooseheart, IL | $5,385,966 | $15,548,845 |