Choroideremia Research Foundation Inc
- Assets
- $985.9k
- Revenue
- $664.9k
- Investments
- $0.0
- Employees
- 8
- Location
- Springfield, MA
- Founding
- 03/2001
- Data as of
- 06/2022
- EIN
- 04-3511754
Organization Overview
Choroideremia Research Foundation Inc is located in Springfield, MA. The organization was established in 2001. According to its NTEE Classification (U05) the organization is classified as: Research Institutes & Public Policy Analysis, under the broad grouping of Science & Technology and related organizations. As of 06/2022, Choroideremia Research Foundation Inc employed 8 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Choroideremia Research Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Choroideremia Research Foundation Inc generated $664.9k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 2.3% each year. All expenses for the organization totaled $584.7k during the year ending 06/2022. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Choroideremia Research Foundation Inc has awarded 27 individual grants totaling $1,920,133. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO RAISE FUNDS IN SUPPORT OF SCIENTIFIC RESEARCH LEADING TO A TREATMENT OR CURE OF CHOROIDEREMIA, A HEREDITARY RETINAL-DEGENERATIVE DISEASE THAT CAUSES BLINDNESS TO EDUCATE PEOPLE AFFECTED BY THE DISEASE AND THE PUBLIC.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO PROVIDE GRANTS FOR CHOROIDEREMIA RESEARCH AND PATIENT AND FAMILY EDUCATION AND ADVOCACY PROGRAMS
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Neal Bench President | OfficerTrustee | 1 | $0 |
John Trott 1st Vice President | OfficerTrustee | 1 | $0 |
Michael Mullen 2nd Vice President | OfficerTrustee | 1 | $0 |
Tara Cassidy-Driscoll Director | OfficerTrustee | 1 | $0 |
Brian Mayer Secretary | OfficerTrustee | 1 | $0 |
Kathi Wagner Executive Director | Officer | 40 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $652,492 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $652,492 |
| Total Program Service Revenue | $707 |
| Investment income | $11,682 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $664,881 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $274,353 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $161,146 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $14,076 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $125 |
| Fees for services: Accounting | $7,506 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $20,937 |
| Office expenses | $16,427 |
| Information technology | $17,147 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $20,017 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $8,421 |
| Insurance | $2,678 |
| All other expenses | $2,595 |
| Total functional expenses | $584,677 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $158,944 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $821,349 |
| Intangible assets | $5,613 |
| Other assets | $0 |
| Total assets | $985,906 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $658,464 |
| Net assets with donor restrictions | $327,442 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $985,906 |
Grants Awarded
Over the last fiscal year, Choroideremia Research Foundation Inc has awarded $143,250 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF WISCONSIN | | | $60,000 |
RENOVATE BIOSCIENCES INC | | | $45,010 |
UNIVERSITY OF PHILADELPHIA | | | $26,700 |
UNIVERSITY OF MICHIGAN | | | $11,540 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that Choroideremia Research Foundation Inc has recieved totaling $27,766.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $12,341 |
Within Sight Foundation Inc Canton, GA PURPOSE: SUPPORT RESEARCH FOR CURE OF DISEASE | $7,350 |
Edwards Lifesciences Foundation Irvine, CA PURPOSE: MATCHING GIFTS GRANT | $3,090 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $2,985 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: OPERATIONAL SUPPORT | $1,000 |
Ge Foundation Norwalk, CT PURPOSE: MATCHING GIFTS | $500 |
Endowment Analysis
| Beg. Balance | $250,300 |
| Net Contributions | $40,042 |
| Ending Balance | $290,342 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Stockholm Environment Institute Usinc Somerville, MA | $5,389,275 | $5,787,254 |
Sustainable Manufacturing Innovation Alliance Corp West Henrietta, NY | $5,170,750 | $6,786,054 |
Mccourt Institute New York, NY | $300,000 | $5,000,000 |
Seeding Labs A Non Profit Corporation Boston, MA | $3,266,031 | $2,907,900 |
Aurelia Institute Inc Cambridge, MA | $1,155,648 | $1,900,000 |
Choroideremia Research Foundation Inc Springfield, MA | $985,906 | $664,881 |
Sailing Yacht Research Foundation Inc Jamestown, RI | $70,482 | $72,424 |
Terasem Movement Foundation Inc Lincoln, VT | $5,839,286 | $987,846 |
Station 1 Laboratory Lawrence, MA | $241,896 | $541,890 |
Human Computation Institute Ithaca, NY | $12,843 | $184,979 |
Frontiers Of Tech Governance Inc Cambridge, MA | $4,505 | $0 |
Maritime Cybersecurity Center Middletown, RI | $922 | $0 |