Choroideremia Research Foundation Inc
- Assets
- $801.2k
- Revenue
- $560.9k
- Investments
- $0.0
- Employees
- 7
- Location
- Springfield, MA
- Founding
- 03/2001
- Data as of
- 06/2023
- EIN
- 04-3511754
Organization Overview
Choroideremia Research Foundation Inc is located in Springfield, MA. The organization was established in 2001. According to its NTEE Classification (U05) the organization is classified as: Research Institutes & Public Policy Analysis, under the broad grouping of Science & Technology and related organizations. As of 06/2023, Choroideremia Research Foundation Inc employed 7 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Choroideremia Research Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2023, Choroideremia Research Foundation Inc generated $560.9k in total revenue. The organization has seen a slow decline revenue. Over the past 8 years, revenues have fallen by an average of (0.1%) each year. All expenses for the organization totaled $745.5k during the year ending 06/2023. As we would expect to see with falling revenues, expenses have declined by (6.7%) per year over the past 8 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Choroideremia Research Foundation Inc has awarded 26 individual grants totaling $1,829,524. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO RAISE FUNDS IN SUPPORT OF SCIENTIFIC RESEARCH LEADING TO A TREATMENT OR CURE OF CHOROIDEREMIA, A HEREDITARY RETINAL-DEGENERATIVE DISEASE THAT CAUSES BLINDNESS TO EDUCATE PEOPLE AFFECTED BY THE DISEASE AND THE PUBLIC.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO PROVIDE GRANTS FOR CHOROIDEREMIA RESEARCH AND PATIENT AND FAMILY EDUCATION AND ADVOCACY PROGRAMS
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kathi Wagner Executive Director | Officer | 40 | $93,474 |
Michael Laengsfeld Director | Trustee | 1 | $0 |
Jason Mckinney Director | Trustee | 1 | $0 |
John Oster Director | Trustee | 1 | $0 |
Tracey Pretorius Director | Trustee | 1 | $0 |
Dr John Ross Rizzo Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $536,725 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $536,725 |
| Total Program Service Revenue | $0 |
| Investment income | $24,167 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $560,892 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $359,320 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $93,474 |
| Compensation of current officers, directors, key employees. | $19,134 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $75,786 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $14,949 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $125 |
| Fees for services: Accounting | $8,524 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $77 |
| Advertising and promotion | $0 |
| Office expenses | $15,516 |
| Information technology | $16,156 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $105,730 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $5,613 |
| Insurance | $2,681 |
| All other expenses | $4,015 |
| Total functional expenses | $745,500 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $82,361 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $718,878 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $801,239 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $440,101 |
| Net assets with donor restrictions | $361,138 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $801,239 |
Grants Awarded
Over the last fiscal year, Choroideremia Research Foundation Inc has awarded $87,391 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
RENOVATE BIOSCIENCES INC | | | $50,000 |
UNIVERSITY OF ROCHESTER | | | $7,391 |
UNIVERSITY OF PHILADELPHIA | | | $30,000 |