Spinal Muscular Atrophy Foundation
- Assets
- $2.0m
- Revenue
- $123.3k
- Investments
- $0.0
- Employees
- 0
- Location
- Jackson, WY
- Founding
- 05/2003
- Data as of
- 12/2021
- EIN
- 01-0759380
Organization Overview
Spinal Muscular Atrophy Foundation is located in Jackson, WY. The organization was established in 2003. According to its NTEE Classification (B99) the organization is classified as: Education N.E.C., under the broad grouping of Education and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Spinal Muscular Atrophy Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Spinal Muscular Atrophy Foundation generated $123.3k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (41.9%) each year. All expenses for the organization totaled $1.2m during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Spinal Muscular Atrophy Foundation has awarded 55 individual grants totaling $11,526,798. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990PF
Mission & Program ActivityExcerpts From the 990PF Filing
TAX YEAR
2021
Describe the Organization's Program Activity:
Part 3 - Line 4a
SEE STATEMENT 9
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Karen Chen Chief Scientific Off | 40 | $626,000 | |
Ying Qian Director Of Strat. & | 40 | $155,843 | |
Kelly Howell Associate Director | 40 | $127,500 | |
Dinakar Singh Board Chairman | 1 | $0 | |
Douglas Cole MD Director | 1 | $0 | |
Andrew Knight Director | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Mylogica | 12/30/16 | $222,518 |
Pharmaoptima | 12/30/16 | $57,040 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Contributions, Gifts, Grants & Similar | $101,956 |
| Interest on Savings | $28 |
| Dividends & Interest | $0 |
| Net Rental Income | $0 |
| Net Gain on Sale of Assets | $0 |
| Capital Gain Net Income | $0 |
| Net ST Capital Gain | $0 |
| Income Modifications | $0 |
| Profit on Inventory Sales | $0 |
| Other Income | $21,328 |
| Total Revenue | $123,312 |
| Statement of Expenses | |
|---|---|
| Compensation of officers, directors, trustees, etc | $0 |
| Other employee salaries and wages | $780,152 |
| Pension plans, employee benefits | $91,122 |
| Interest | $0 |
| Taxes | $297 |
| Depreciation | $0 |
| Occupancy | $0 |
| Travel, conferences, and meetings | $33,945 |
| Printing and publications | $0 |
| Other expenses | $48,117 |
| Total operating and administrative expenses | $987,633 |
| Contributions, gifts, grants paid | $185,141 |
| Total expenses and disbursements | $1,172,774 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $987,203 |
| Savings and temporary cash investments | $74,135 |
| Net Accounts receivable | $0 |
| Net Pledges Receivable | $959,662 |
| Grants receivable | $0 |
| Receivables from Officers, Directors, or Controlling Persons | $0 |
| Net other notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $9,374 |
| Net Investments - land, buildings, equipment | $0 |
| Investments—mortgage loans | $0 |
| Investments—other | $0 |
| Net Land, buildings, and equipment | $0 |
| Other assets | $3,378 |
| Total assets | $2,033,752 |
| Accounts payable and accrued expenses | $168,698 |
| Grants payable | $687,500 |
| Deferred revenue | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Mortgages and other notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $856,198 |
Grants Awarded
Over the last fiscal year, Spinal Muscular Atrophy Foundation has awarded $597,641 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
STANFORD UNIVERSITY PURPOSE: MODAILTY-AGNOSTIC DRUG PROTOTYPING RESEARCH PROJECTS | $412,500 |
New York, NY PURPOSE: TO SUPPORT PNCR RESEARCH | $79,047 |
CHILDREN'S HOSPITAL OF BOSTON PURPOSE: TO SUPPORT PNCR RESEARCH | $53,154 |
UNIVERSITY OF ROCHESTER PURPOSE: TO SUPPORT PNCR RESEARCH | $52,940 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Spinal Muscular Atrophy Foundation has recieved totaling $5,920.
| Awarding Organization | Amount |
|---|---|
Fightsma Inc Richmond, VA PURPOSE: MEDICAL RESEARCH | $5,920 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Community Action Partnership Of Mid-Nebraska Kearney, NE | $10,567,482 | $13,526,656 |
Denver Scholarship Foundation Denver, CO | $33,817,323 | $13,999,484 |
Bluum Inc Boise, ID | $2,040,780 | $9,996,338 |
Early Light Academy South Jordan, UT | $20,669,504 | $8,816,501 |
Omaha Early Learning Centers Inc Omaha, NE | $0 | $8,526,168 |
East Dakota Educational Cooperative Sioux Falls, SD | $5,426,642 | $6,544,285 |
Riverstone Community School Inc Boise, ID | $14,062,968 | $7,409,648 |
Utah Healthcare Institute Inc Slc, UT | $1,273,255 | $6,142,860 |
Clear Global Inc Garden City, ID | $1,164,863 | $4,482,626 |
Scholar Academy Tooele, UT | $13,228,733 | $5,957,332 |
Bair Ranch Foundation Billings, MT | $61,742,372 | $8,939,986 |
Tomorrows Hope Inc Meridian, ID | $1,190,251 | $4,513,856 |