Sickle Cell Disease Foundation Of California
- Assets
- $4.4m
- Revenue
- $2.8m
- Investments
- $0.0
- Employees
- 29
- Location
- Ontario, CA
- Founding
- 07/1967
- Data as of
- 12/2022
- EIN
- 95-6155962
Organization Overview
Sickle Cell Disease Foundation Of California, operating under the name Sickle Cell Disease Foundation, is located in Ontario, CA. The organization was established in 1967. According to its NTEE Classification (G30) the organization is classified as: Cancer, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2022, Sickle Cell Disease Foundation employed 29 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Sickle Cell Disease Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Sickle Cell Disease Foundation generated $2.8m in total revenue. This organization has experienced exceptional growth, as over the past 4 years, it has increased revenue by an average of 32.7% each year . All expenses for the organization totaled $4.1m during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO BUILD A WORLD WHERE INDIVIDUALS LIVING WITH SICKLE CELL DISEASE GET THE CARE AND COMPASSION THEY DESERVE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
NETWORKING CALIFORNIA FOR SICKLE CELL CARE (NCSCC). THE MAIN OBJECTIVE OF NCSCC PROCESS IS FOR PROVIDERS, AGENCIES, AND THE COMMUNITY TO COLLABORATIVELY IMPLEMENT THIS COLLECTIVELY DEVELOPED COHESIVE PLAN. THE PLAN ARTICULATES SPECIFIC GOALS TO ENSURE THAT INDIVIDUALS WITH SICKLE CELL DISEASE RECEIVE COMPREHENSIVE, PATIENT-CENTERED, COORDINATED, ACCESSIBLE, SAFE, AND HIGH-QUALITY CARE NO MATTER WHERE THEY LIVE OR SEEK CARE IN CALIFORNIA. THE NCSCC PARTNERING ORGANIZATIONS ARE THE SICKLE CELL DISEASE FOUNDATION AND THE CENTER FOR INHERITED BLOOD DISORDERS (CIBD), A NON-PROFIT HEMATOLOGY CENTER OF EXCELLENCE THAT PROVIDES EDUCATION, SUPPORT, AND MULTIDISCIPLINARY, FAMILY-CENTERED SERVICES TO ADULTS AND CHILDREN WITH ALL FORMS OF AN INHERITED DISORDERS.
OTHER PROGRAMS AND SERVICES EXPENSES AND REVENUE INCLUDES: FAMILY PROGRAMS, SPECIAL PROJECTS, PACIFIC SICKLE CELL REGIONAL COLLABORATIVE, HEALTH RESOURCES SERVICES ADMINISTRATION NEWBORN SCREENING.
VACCINE ACCESS GRANT. THE SCDF WAS AWARDED A GRANT FROM THE HEALTH RESOURCES SERVICE AGENCY (HRSA) TO EDUCATE AND ENCOURAGE INDIVIDUALS WITH SICKLE CELL DISEASE AND THE GENERAL PUBLIC TO GET VACCINATED. FUNDS WERE DISTRIBUTED THROUGHOUT THE STATE TO OTHER SICKLE CELL PROGRAMS AND ARIZONA, WASHINGTON STATE, OREGON, AND NEVADA. IT IS A ONE-YEAR GRANT FOR $1 MIL.
CALIFORNIA NEWBORN SCREENING PROGRAM - SINCE 1978, THE SICKLE CELL DISEASE FOUNDATION HAS PROVIDED COUNSELING, EDUCATION, AND TRAINING SERVICES THROUGHOUT CALIFORNIA. COUNSELING FOR PARENTS OF NEWBORNS IDENTIFIED WITH A HEMOGLOBIN TRAIT IS OFFERED FREE FOLLOW-UP COUNSELING AND TESTING. THE SCDF ALSO PROVIDES A CERTIFICATION COURSE IN SINGLE-GENE COUNSELING. IN ADDITION, THE FOUNDATION OFFERS CLASSES IN SICKLE CELL DISEASE AND UNDERSTANDING THE SCIENCE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Mary E Brown President & CEO | 40 | $202,098 | |
Deborah Green Director, Health Education | 40 | $101,017 | |
Gerald Miller CFO | Officer | 40 | $91,108 |
Rahman Cooper Board Chairman | Trustee | 0 | $0 |
Damon Oliver Board Member | Trustee | 0 | $0 |
Charlotte Dixon- Burke Board Member | Trustee | 0 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $670,194 |
| All other contributions, gifts, grants, and similar amounts not included above | $112,762 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $782,956 |
| Total Program Service Revenue | $2,017,417 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,848,547 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $293,206 |
| Compensation of current officers, directors, key employees. | $48,504 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,227,835 |
| Pension plan accruals and contributions | $2,638 |
| Other employee benefits | $132,307 |
| Payroll taxes | $115,376 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $4,791 |
| Office expenses | $85,465 |
| Information technology | $60,360 |
| Royalties | $0 |
| Occupancy | $144,795 |
| Travel | $60,383 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $22,017 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $4,055,032 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $4,053,309 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $163,801 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $23,798 |
| Net Land, buildings, and equipment | $123,901 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $4,364,809 |
| Accounts payable and accrued expenses | $56,706 |
| Grants payable | $0 |
| Deferred revenue | $1,471,411 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $1,528,117 |
| Net assets without donor restrictions | $162,453 |
| Net assets with donor restrictions | $2,674,239 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $4,364,809 |