National Tuberous Sclerosis Association Inc
- Assets
- $14.8m
- Revenue
- $8.9m
- Investments
- $0.0
- Employees
- 27
- Location
- Silver Spring, MD
- Founding
- 10/1975
- Data as of
- 12/2022
- EIN
- 95-3018799
Organization Overview
National Tuberous Sclerosis Association Inc, operating under the name Tsc Alliance, is located in Silver Spring, MD. The organization was established in 1975. According to its NTEE Classification (G03) the organization is classified as: Professional Societies & Associations, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2022, Tsc Alliance employed 27 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Tsc Alliance is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Tsc Alliance generated $8.9m in total revenue. This organization has experienced exceptional growth, as over the past 8 years, it has increased revenue by an average of 10.5% each year . All expenses for the organization totaled $8.1m during the year ending 12/2022. While expenses have increased by 9.5% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Tsc Alliance has awarded 85 individual grants totaling $4,805,859. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
FINDING A CURE FOR TUBEROUS SCLEROSIS COMPLEX WHILE IMPROVING THE LIVES OF THOSE AFFECTED.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH PROGRAMS. SEE SCHEDULE O FOR FULL PROGRAM DESCRIPTION.
SUPPORT SERVICES. SEE SCHEDULE O FOR FULL PROGRAM DESCRIPTION.
PUBLIC HEALTH. SEE SCHEDULE O FOR FULL PROGRAM DESCRIPTION.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Steven Roberds Chief Scientific Officer | Officer | 45 | $233,206 |
Kari Luther Rosbeck President & CEO | Officer | 54 | $217,716 |
Dean Rager-Aguiar Vice President, Translational Research | 45 | $164,261 | |
Cynthia Arcuri Chief Financial Officer | Officer | 42 | $146,692 |
Jaye Isham Senior Vice President, Strategic Communications | 45 | $133,868 | |
Lisa Moss Vice President, Donor Relations | 45 | $122,204 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Psychogenics Inc Research Lab Services | 12/30/22 | $1,194,468 |
Mms Holdings Inc Research Lab Services | 12/30/22 | $121,387 |
Cavarocchi Ruscio Dennis & Associates Government Relations | 12/30/22 | $116,364 |
Geben Communications Marking Consulting | 12/30/22 | $102,875 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $51,247 |
| Membership dues | $4,057 |
| Fundraising events | $1,068,063 |
| Related organizations | $308,000 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $5,585,484 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $7,016,851 |
| Total Program Service Revenue | $2,720,317 |
| Investment income | $2,382 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $254 |
| Net Income from Fundraising Events | $365,607 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $8,909,542 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $857,545 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $174,610 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $726,880 |
| Compensation of current officers, directors, key employees. | $125,197 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,744,717 |
| Pension plan accruals and contributions | $47,394 |
| Other employee benefits | $202,902 |
| Payroll taxes | $174,453 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $29,466 |
| Fees for services: Accounting | $26,964 |
| Fees for services: Lobbying | $116,364 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $245,601 |
| Advertising and promotion | $8,650 |
| Office expenses | $336,605 |
| Information technology | $201,876 |
| Royalties | $0 |
| Occupancy | $132,836 |
| Travel | $196,970 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $982,138 |
| Interest | $2,499 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $68,866 |
| Insurance | $11,620 |
| All other expenses | $6,057 |
| Total functional expenses | $8,063,684 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,711,209 |
| Savings and temporary cash investments | $694,859 |
| Pledges and grants receivable | $5,280,316 |
| Accounts receivable, net | $181,490 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $277,696 |
| Net Land, buildings, and equipment | $463,272 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $6,219,095 |
| Total assets | $14,827,937 |
| Accounts payable and accrued expenses | $891,501 |
| Grants payable | $0 |
| Deferred revenue | $285,264 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $1,196,326 |
| Total liabilities | $2,373,091 |
| Net assets without donor restrictions | $5,151,339 |
| Net assets with donor restrictions | $7,303,507 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $14,827,937 |
Grants Awarded
Over the last fiscal year, National Tuberous Sclerosis Association Inc has awarded $657,611 in support to 12 organizations.
| Grant Recipient | Amount |
|---|---|
Somerville, MA PURPOSE: RESEARCH GRANT | $179,892 |
UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER PURPOSE: RESEARCH GRANT | $75,000 |
Quincy, MA PURPOSE: TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | $75,000 |
UNIVERSITY OF WASHINGTON PURPOSE: RESEARCH GRANT | $75,000 |
UNIVERSITY OF MARYLAND BALTIMORE PURPOSE: RESEARCH GRANT | $75,000 |
Boston, MA PURPOSE: RESEARCH GRANT | $57,409 |
Grants Recieved
Over the last fiscal year, we have identified 20 grants that National Tuberous Sclerosis Association Inc has recieved totaling $324,052.
| Awarding Organization | Amount |
|---|---|
Bny Mellon Charitable Gift Fund Boston, MA PURPOSE: TO FURTHER THE ORGANIZATION'S EXEMPT PURPOSE | $100,000 |
Ayco Charitable Foundation Cohoes, NY PURPOSE: MEDICAL / PUBLIC SERVICES | $74,500 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $32,442 |
Child Neurology Education And Research Foundation Lexington, KY PURPOSE: Infantile Spasms Awareness Week | $32,000 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $20,450 |
Morgan Stanley Global Impact Funding Trust Inc Indianapolis, IN PURPOSE: UNRESTRICTED GENERAL SUPPORT | $20,000 |
Endowment Analysis
| Beg. Balance | $6,711,748 |
| Earnings | -$860,036 |
| Admin Expense | $181,748 |
| Net Contributions | $68,423 |
| Other Expense | $238,000 |
| Ending Balance | $5,500,387 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American College Of Medical Genetics And Genomics Bethesda, MD | $5,251,363 | $10,964,294 |
American Association Of Immunologists Inc Rockville, MD | $91,493,241 | $15,247,854 |
American Roentgen Ray Society Leesburg, VA | $36,171,953 | $9,848,662 |
Acog Foundation Washington, DC | $128,825,789 | $4,640,041 |
National Tuberous Sclerosis Association Inc Silver Spring, MD | $14,827,937 | $8,909,542 |
Public Health Accreditation Board Alexandria, VA | $6,402,113 | $3,985,968 |
American College Of Veterinary Surgeons Germantown, MD | $7,052,683 | $4,060,999 |
Life Sciences Pennsylvania King Of Prussia, PA | $1,967,524 | $2,924,770 |
Society Of General Internal Medicine Alexandria, VA | $9,837,369 | $3,557,166 |
American College Of Physicians Services Inc Philadelphia, PA | $3,676,271 | $2,467,201 |
American Board Of Allergy & Immun A Cons Board Of Am Bd Int Med Etal Philadelphia, PA | $7,560,315 | $2,248,891 |
Pennsylvania Osteopathic Medical Association Inc Harrisburg, PA | $12,244,239 | $1,991,591 |