Fanconi Anemia Research Fund Inc
- Assets
- $8.6m
- Revenue
- $4.1m
- Investments
- $0.0
- Employees
- 11
- Location
- Eugene, OR
- Founding
- 03/1994
- Data as of
- 12/2020
- EIN
- 93-0995453
Organization Overview
Fanconi Anemia Research Fund Inc is located in Eugene, OR. The organization was established in 1994. According to its NTEE Classification (H90) the organization is classified as: Medical Disciplines Research, under the broad grouping of Medical Research and related organizations. As of 12/2020, Fanconi Anemia Research Fund Inc employed 11 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Fanconi Anemia Research Fund Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2020, Fanconi Anemia Research Fund Inc generated $4.1m in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 2.9% each year. All expenses for the organization totaled $2.0m during the year ending 12/2020. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, Fanconi Anemia Research Fund Inc has awarded 46 individual grants totaling $7,514,392. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
TO FIND EFFECTIVE TREATMENTS AND A CURE FOR.FANCONI ANEMIA AND TO PROVIDE.EDUCATION AND.SUPPORT SERVICES TO.FAMILIES. WORLD WIDE
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH. SINCE FARF WAS FOUNDED IN 1989, WE HAVE SUPPORTED MORE THAN $24 MILLION IN.RESEARCH, SUPPORTING ... MORE THAN 230 RESEARCH.GRANTS AT MORE THAN 74. CENTERS WORLDWIDE .. EVERY YEAR WE. HOST A.SCIENTIFIC SVMPOSIUM GATHERING OVER 200 FANCONI ANEMIA (FA) SCIENTISTS,.RESEARCHERS,.AND DOCTORS FROM AROUND THE WORLD TO PRESENT RESULTS. FROM THEIR RESEARCH AND TO. COLLABORATE WITH OTHERS IN THE.FIELD. IN ADDITION, WE. HOLD SMALL WORKSHOPS ON AREAS OF SPECIFIC INTEREST, SUCH AS HEAD AND NECK SQUAMOUS CELL CARCINOMA,.IDENTIFICATION.OFNEW DRUSG TO TREAT PATIENTS, AND.GENE THERAPY.
FAMILY SUPPORT AND EDUCATION SERVICES. CURRENTLY, THERE ARE NEARLY 1,000 FAMILIES. WORLDWIDE THAT ARE REGISTERED WITH. OUR ORGANIZATION. AND AN UNDETERMINED NUMBER OF NEWLY DIAGNOSED PATIENTS. WHEN. FACED WITH THIS DEVASTATING DIAGNOSIS, THEY LOOK TO FARF FOR SUPPORT .. WE.PRODUCE_INFORMATIONAL PUBLICATIONS, INCLUDING.OUR HANDBOOK."GUIDELINES FOR DIAGNOSIS AND.MANAGEMENT",.A FAMILY DIRECTORY, AND A RESOURCE GUIDE USING.ALL TREATMENT CENTERS AND DOCTORS WHO WORK FOR.FA .. WE ALSO ORGANIZE.A WEEKLONG.CAMP FOR.FAMILIES AFFECTED BY FA, WHERE WE BRING SCIENTISTS AND CLINICIANS TO PRESENT THE LATEST RESEARCH AND TREATMENT WE INCLUDE.SUPPORT GROUPS.FOR PARENTS AND PATIENTS,.RECREATIONAL ACTIVITIES FOR CHILDREN,
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Mark Quinlan Executive Director | Officer | 40 | $124,200 |
Isis Sroka Scientific Director | Officer | 40 | $111,395 |
Orion Marx Vice Presdident | OfficerTrustee | 5 | $0 |
Jhn Connelly Secretary | OfficerTrustee | 5 | $0 |
Andre Hessels President | OfficerTrustee | 5 | $0 |
Lynn Frohnmayer Founder | OfficerTrustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,860,743 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,860,743 |
| Total Program Service Revenue | $0 |
| Investment income | $638,552 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $4,056,234 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $453,345 |
| Grants and other assistance to domestic individuals. | $26,512 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $235,595 |
| Compensation of current officers, directors, key employees. | $124,200 |
| Compensation to disqualified persons | $514,807 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $198,338 |
| Fees for services: Management | $147,526 |
| Fees for services: Legal | $1,622 |
| Fees for services: Accounting | $63,643 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $100,844 |
| Information technology | $27,252 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $185,318 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $31,907 |
| Total functional expenses | $1,986,709 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $1,587,453 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $6,863,256 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $150,681 |
| Total assets | $8,601,390 |
| Accounts payable and accrued expenses | $217,088 |
| Grants payable | $438,707 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $655,795 |
| Net assets without donor restrictions | $7,794,914 |
| Net assets with donor restrictions | $150,681 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $8,601,390 |
Grants Awarded
Over the last fiscal year, Fanconi Anemia Research Fund Inc has awarded $1,376,893 in support to 8 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF PENSYLVANIA | | | $250,000 |
Minneapolis, MN | | $250,000 |
Minneapolis, MN | | $250,000 |
Washington, DC | | $250,000 |
New York, NY | | $150,589 |
OREGON HEALTH SCIENCES UNIVERSITY | | | $97,067 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that Fanconi Anemia Research Fund Inc has recieved totaling $5,000.
| Awarding Organization | Amount |
|---|---|
Lamoreaux Family Foundation Sisters, OR PURPOSE: MEDICAL RESEARCH ON DISEASE | $4,000 |
Giustina Foundation Eugene, OR PURPOSE: RESEARCH AND FAMILY SUPPORT | $1,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Veterans Medical Research Foundation Of Sd San Diego, CA | $7,321,086 | $16,367,755 |
Huntington Medical Research Institutes Pasadena, CA | $82,259,720 | $16,674,865 |
International Anesthesia Research Society San Francisco, CA | $39,176,119 | $7,595,072 |
California Heart Center Foundation Beverly Hills, CA | $198,494 | $2,474,527 |
House Institute Foundation Los Angeles, CA | $6,887,696 | $1,568,325 |
Fanconi Anemia Research Fund Inc Eugene, OR | $8,601,390 | $4,056,234 |
The Gpcr Institute San Marcos, CA | $1,290,580 | $0 |
Terasaki Innovation Center Inc Glendale, CA | $6,320,184 | $1,253,217 |
Chan Soon-Shiong Nanthealth Foundation El Segundo, CA | $24,916,368 | $63,681 |
Stemexpress Foundation Folsom, CA | $222,954 | $249,620 |
Alles Institute For Medical Research El Cerrito, CA | $8,526,362 | $1,074,198 |
North Bay Neuroscience Institute Sebastopol, CA | $0 | $0 |