Hidradenitis Suppurativa Foundation
- Assets
- $1.3m
- Revenue
- $1.1m
- Investments
- $402.7k
- Employees
- 1
- Location
- Cary, NC
- Founding
- Data as of
- 12/2023
- EIN
- 92-0598936
Organization Overview
Hidradenitis Suppurativa Foundation is located in Cary, NC. According to its NTEE Classification (P20) the organization is classified as: Human Service Organizations, under the broad grouping of Human Services and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hidradenitis Suppurativa Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE HIDRADENITIS SUPPURATIVA FOUNDATION (HSF) IS A NONPROFIT PUBLIC BENEFIT CORPORATION DEDICATED TO IMPROVING THE QUALITY OF LIFE AND QUALITY OF CARE FOR INDIVIDUALS AND FAMILIES AFFECTED BY HIDRADENITIS SUPPURATIVA (HS). THE HSF FOSTERS AND ENCOURAGES WORLDWIDE RESEARCH BY DEVELOPING AND SUPPORTING AN INTERDISCIPLINARY FAMILY OF SCIENTISTS AND PHYSICIANS DEVOTED TO STUDYING THE MOLECULAR AND CELLULAR BASIS OF HS, IN ORDER TO DEVELOP AND DELIVER MORE EFFECTIVE FORMS OF TREATMENT AND PREVENTATIVE MEASURES FOR THOSE WITH THIS DEBILITATING AND EMINENTLY CHRONIC DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE EIGHTH ANNUAL SYMPOSIUM ON HIDRADENITIS SUPPURATIVA ADVANCES (SHSA) WAS HELD OCTOBER 13-15, 2023, IN PHOENIX, ARIZONA. CO-ORGANIZED WITH THE CANADIAN HS FOUNDATION (CHSF), OVER 270 ATTENDEES FROM TEN COUNTRIES PARTICIPATED IN THE EVENT, INCLUDING 36 PATIENTS AND OVER 40 MEDICAL STUDENTS. THE LATEST ADVANCEMENTS IN HS TREATMENT AND RESEARCH WERE PRESENTED, INCLUDING THE SUBMISSION OF OVER 100 ABSTRACTS.
OVER $280,000 IN GRANT FUNDING WAS PROVIDED THROUGH THREE HSF PROGRAMS. THE DANBY GRANT PROVIDED FIVE GRANTS TOTALING OVER $100,000, WHILE THE TRANSLATIONAL GRANT PROGRAM PROVIDED TWO GRANTS TOTALING $150,000. FINALLY, THE HSF FUNDED ITS FIRST EVER HS FELLOWSHIP THROUGH A PARTNERSHIP WITH THE DERMATOLOGY FOUNDATION FOR $30,000. THE GRANTS ALL FUND RESEARCH AND RESEARCHERS FOCUSED ON THE FIELD OF HS.
THE HS FOUNDATION HELD ITS THIRD ANNUAL EDUCATIONAL EVENT FOR DERMATOLOGY RESIDENTS, CALLED HS ACADEMY. THE PURPOSE OF THE EVENT IS TO EDUCATE THE NEXT GENERATION OF PRACTICING DERMATOLOGISTS ABOUT THE LATEST ADVANCEMENTS IN DIAGNOSIS, PATHOGENESIS, EPIDEMIOLOGY, AND COMORBIDITIES, AS WELL AS MEDICAL AND PROCEDURE-BASED TREATMENTS FOR HIDRADENITIS SUPPURATIVA THROUGH LECTURE, BREAK-OUT SESSIONS, AND CASE-BASED STUDIES WITH RENOWNED EXPERTS AND PATIENT FACULTY. THE EVENT TAKES PLACE OVER THE COURSE OF THREE DAYS AND ALL EXPENSES FOR ATTENDEES, INCLUDING TRAVEL, IS COMPLETELY COVERED BY THE FOUNDATION.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Iltefat Hamzavi MD Immediate Past President | Trustee | 1 | $0 |
Joslyn R Sciacca Kirby MD President | OfficerTrustee | 3 | $0 |
Hadar Lev-Tov MD Vice President | OfficerTrustee | 1 | $0 |
Martin Okun MD Secretary | OfficerTrustee | 1 | $0 |
Athena Gierbolini Director | Trustee | 1 | $0 |
Jennifer Hsiao MD Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $637,160 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $637,160 |
| Total Program Service Revenue | $414,320 |
| Investment income | $27,263 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,078,743 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $294,384 |
| Grants and other assistance to domestic individuals. | $6,117 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $217,770 |
| Compensation of current officers, directors, key employees. | $118,229 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $49,832 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $1,225 |
| Fees for services: Accounting | $14,385 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $1,430 |
| Fees for services: Other | $65,300 |
| Advertising and promotion | $2,972 |
| Office expenses | $6,022 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $36,906 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $537,910 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,527 |
| All other expenses | $0 |
| Total functional expenses | $1,245,076 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $691,865 |
| Savings and temporary cash investments | $4,661 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $128,400 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $40,946 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $402,689 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,268,561 |
| Accounts payable and accrued expenses | $270,751 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $270,751 |
| Net assets without donor restrictions | $997,810 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,268,561 |
Grants Awarded
Over the last fiscal year, Hidradenitis Suppurativa Foundation has awarded $289,384 in support to 8 organizations.
| Grant Recipient | Amount |
|---|---|
EMORY UNIVERSITY PURPOSE: GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. | $95,000 |
BRIGHAM & WOMENS HOSPITAL PURPOSE: GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. | $20,000 |
REGENTS OF THE UNIVERSITY OF MINNESOTA PURPOSE: GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. | $75,000 |
YALE UNIVERSITY PURPOSE: GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. | $20,000 |
MARY HITCHCOCK MEMORIAL HOSPITAL PURPOSE: GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. | $20,000 |
UMASS CHAN MEDICAL SCHOOL PURPOSE: GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. | $9,384 |