Sickle Cell Medical Advocacy

Organization Overview

Sickle Cell Medical Advocacy is located in Orlando, FL. According to its NTEE Classification (B99) the organization is classified as: Education N.E.C., under the broad grouping of Education and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Sickle Cell Medical Advocacy is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2023, Sickle Cell Medical Advocacy generated $318.9k in total revenue. All expenses for the organization totaled $326.2k during the year ending 12/2023.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2023

Describe the Organization's Mission:

Part 3 - Line 1

SICKLE CELL MEDICAL ADVOCACYS (SCMA) MISSION IS TO NAVIGATE TRANSFORMATIVE HEALTHCARE FOR PATIENTS WITH SICKLE CELL DISEASE, FOLLOWING NATIONAL GUIDELINES FOR URGENT INTERVENTION AND PROMOTING FASTER HEALING AND SHORTER HOSPITALIZATIONS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE MEDICAL ADVOCACY TRAINING PROGRAM IS A 9-WEEK SIGNATURE COURSE DEVELOPED AND DESIGNED TO ADDRESS A SPECIFIC PAIN POINT EXPRESSED LOUDLY BY PATIENTS AND CAREGIVERS IN THE SICKLE CELL COMMUNITY, NAMELY THE INCONSISTENCY OF EMERGENCY ROOM AND HOSPITAL MANAGEMENT OF SICKLE CELL DISEASE. THE ORGANIZATION INTERVIEWED 40 PEOPLE AND ACCEPTED 25 AND OUT OF WHICH 18 PEOPLE COMPLETED THE PROGRAM AND GRADUATED. SCMA NOW HAS A TOTAL OF 61 ADVOCATES, EXPANDING TO 21 STATES.


THE MEDICAL ADVOCACY TRAINING PROGRAM IS A 9-WEEK SIGNATURE COURSE DEVELOPED AND DESIGNED TO ADDRESS A SPECIFIC PAIN POINT EXPRESSED LOUDLY BY PATIENTS AND CAREGIVERS IN THE SICKLE CELL COMMUNITY, NAMELY THE INCONSISTENCY OF EMERGENCY ROOM AND HOSPITAL MANAGEMENT OF SICKLE CELL DISEASE. THE ORGANIZATION INTERVIEWED 40 PEOPLE AND ACCEPTED 25 AND OUT OF WHICH 18 PEOPLE COMPLETED THE PROGRAM AND GRADUATED. SCMA NOW HAS A TOTAL OF 61 ADVOCATES, EXPANDING TO 21 STATES.


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Board, Officers & Key Employees

Name (title)Compensation
Annette Gant
President
$0
Debi Sabotin
Treasurer
$0
Jennifer Valentin RN
Secretary
$0
Ade Adeyokunnu
Board Member
$0
Kara Oconnor
Board Member
$0
Dale Hardaway
Board Member
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$318,852
Noncash contributions included in lines 1a–1f $278,568
Total Revenue from Contributions, Gifts, Grants & Similar$318,852
Total Program Service Revenue$0
Investment income $0
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $318,852

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