Thrive With Pyruvate Kinase Deficiency Organization
- Assets
- $9.1k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- Bloomington, MN
- Founding
- Data as of
- 12/2022
- EIN
- 87-1365230
Organization Overview
Thrive With Pyruvate Kinase Deficiency Organization is located in Bloomington, MN. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Thrive With Pyruvate Kinase Deficiency Organization is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2022
Describe the Organization's Program Activity:
Part 3
THE ORGANIZATION'S MAIN ACCOMPLISHMENT IN 2022 WAS HOSTING A CONFERENCE IN ORLANDO FLORIDA. THIS CONFERENCE BROUGHT TOGETHER PATIENTS DOCTORS AND RESEARCHERS IN ORDER FOR EACH GROUP TO BETTER UNDERSTAND THE DISEASE AND THE BEST WAY TO TREAT IT. THERE WERE NOTABLE VISITS FROM TWO PHARMA COMPANIES WHICH ARE LEADING IN THE DEVELOPMENT OF A TREATMENT TO KEEP PATIENTS BLOOD STATS IN ORDER. OUR CONFERENCE IS THOUGHT TO BE THE LARGEST MEETING OF PEOPLE WITH PKD IN THE WORLD AND WE WERE HAPPY WITH THE SUCCESS OF IT. AS STATED ABOVE MUCH OF THE EXPENSE INCURRED WAS AROUND THIS CONFERENCE AND IT INCLUDED ITEMS SUCH AS TRAVEL AWARDS LODGING FOOD ENTERTAINMENT ETC. THERE WERE ROUGHLY 100 PEOPLE IN ATTENDANCE FROM ALL OVER THE WORLD
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Tamara Schryver President | 10 | $0 | |
Carl Lander International Collaboration Coordinator | 2 | $0 | |
Jason Blackman Record Keeper | 2 | $0 | |
Becky Herzog Patient Caregiver Outreach Director | 7 | $0 | |
Tara Paluilis Social Media Director | 7 | $0 | |
Conor Stoebner Treasurer | 0.5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $144,795 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $0 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $0 |
| Total Revenue | $144,795 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $15,969 |
| Occupancy, rent, utilities, and maintenance | $0 |
| Printing, publications, postage, and shipping | $0 |
| Other expenses | $95,083 |
| Total expenses | $160,215 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $5,080 |
| Other assets | $0 |
| Total assets | $9,080 |
| Total liabilities | $10,000 |
| Net assets or fund balances | -$920 |