Utah Down Syndrome Foundation is located in Salt Lake City, UT. The organization was established in 1986. According to its NTEE Classification (G25) the organization is classified as: Down Syndrome, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Utah Down Syndrome Foundation employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Utah Down Syndrome Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Utah Down Syndrome Foundation generated $127.9k in total revenue. This represents relatively stable growth, over the past 5 years the organization has increased revenue by an average of 4.3% each year. All expenses for the organization totaled $87.0k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2021
Describe the Organization's Program Activity:
Part 3
DURING 2021, THE UTAH DOWN SYNDROME FOUNDATION ACCOMPLISHED ITS MISSION OF PROVIDING HOPE TO INDIVIDUALS WITH DOWN SYNDROME, THEIR FAMILIES, AND THE COMMUNITY THROUGH SUPPORT, EDUCATION, ACTIVITIES, OUTREACH, AND ADVOCACY. SUPPORT: UDSF PROVIDED SUPPORT TO 40 NEW AND EXPECTANT PARENTS WHO RECEIVED A DOWN SYNDROME DIAGNOSIS FOR THEIR CHILD IN 2021 BY DELIVERING NEW PARENT CARE PACKAGES TO THEM. UDSF ALSO OFFERED SUPPORT AND EDUCATION TO 95 NEW PARENTS THROUGH ITS QUARTERLY NEW PARENT BREAKFASTS. EDUCATION: UDSF PROVIDED ESSENTIAL EDUCATION SPECIFIC TO DOWN SYNDROME TO OVER 12,000 VISITORS TO OUR WEBSITE, UDSF.ORG. UDSF'S LOWDOWN NEWSLETTER PROVIDED EDUCATION AND OUTREACH EACH MONTH TO OVER 1400 MEMBERS OF OUR DOWN SYNDROME COMMUNITY. DURING THE 2020-2021 SCHOOL YEAR, UDSF TAUGHT 12 DOWN TO LEARN WORKSHOPS AND EDUCATED 60 PARENTS ON HOW TO BUILD A STRONG FOUNDATION FOR THEIR CHILD WITH DOWN SYNDROME IN ELEMENTARY SCHOOL. UDSF HELPED EDUCATE 250 ELEMENTARY STUDENTS ABOUT DOWN SYNDROME THROUGH ITS PEER PRESENTATION TOOL KITS. UDSF ALSO EDUCATED 160 PARENTS ON HOW TO PLAN FOR THEIR CHILD'S FUTURE THROUGH THREE FINANCIAL WORKSHOPS. ACTIVITIES: UDSF PROVIDED OUTREACH, CONNECTION, AND SUPPORT TO OVER 950 PARTICIPANTS THROUGH UDSF'S COMMUNITY GROUP ACTIVITIES AND VIRTUAL MIGHTY STEPS FOR DOWN SYNDROME WALK. OUTREACH: UDSF MAILED OUT OVER 850 BIRTHDAY CARDS FOR A FREE ICE CREAM TO INDIVIDUALS WITH DOWN SYNDROME ACROSS THE STATE. UDSF ALSO CREATED AND PRINTED 300 NEW AND EXPECTANT PARENT RESOURCE GUIDE WITH THE HELP OF THE UTAH BOARD OF HEALTH TO BE DISTRIBUTED TO MEDICAL PROVIDERS TO OFFER SUPPORT AND RESOURCES TO NEW PARENTS WHO HAVE A CHILD WITH DOWN SYNDROME.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Cherlyn Johnson CEO | 30 | $41,676 | |
Jodi Lutkin Director | 5 | $0 | |
Kimberly Wedlick President | 2 | $0 | |
Brandon Pledger Director | 2 | $0 | |
Quin Stephens Director | 2 | $0 | |
Johnnie Rosser Treasurer | 2 | $0 |
Statement of Revenue | |
---|---|
Total Revenue from Contributions, Gifts, Grants & Similar | $124,475 |
Total Program Service Revenue | $2,688 |
Membership dues | $0 |
Investment income | $0 |
Gain or Loss | $0 |
Net Income from Gaming & Fundraising | $762 |
Other Revenue | $0 |
Total Revenue | $127,925 |
Statement of Expenses | |
---|---|
Grants and similar amounts paid | $0 |
Benefits paid to or for members | $0 |
Salaries, other compensation, and employee benefits | $57,750 |
Professional fees and other payments to independent contractors | $5,542 |
Occupancy, rent, utilities, and maintenance | $3,076 |
Printing, publications, postage, and shipping | $0 |
Other expenses | $20,582 |
Total expenses | $86,950 |
Balance Sheet | |
---|---|
Cash, savings, and investments | $157,402 |
Other assets | $0 |
Total assets | $162,287 |
Total liabilities | $5,422 |
Net assets or fund balances | $156,865 |
Over the last fiscal year, we have identified 1 grants that Utah Down Syndrome Foundation has recieved totaling $1,600.
Awarding Organization | Amount |
---|---|
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,600 |
Organization Name | Assets | Revenue |
---|---|---|
Rocky Mountain Down Syndrome Association Inc Denver, CO | $868,093 | $788,720 |
Down Syndrome Network Inc Tempe, AZ | $289,822 | $309,762 |
Southern Arizona Network For Down Syndrome Tucson, AZ | $0 | $0 |
Down Syndrome Organization Of Southern Nevada Las Vegas, NV | $539,283 | $169,424 |
Utah Down Syndrome Foundation Salt Lake City, UT | $162,287 | $0 |
Colorado Springs Down Syndrome Association Inc Colorado Springs, CO | $334,066 | $0 |
Southeastern New Mexico Down Syndrome Foundation Roswell, NM | $53,483 | $0 |
Down Syndrome Network Of Northern Nevada Reno, NV | $107,978 | $0 |