Friends Of Fsh Research is located in Kirkland, WA. The organization was established in 2004. According to its NTEE Classification (H11) the organization is classified as: Single Organization Support, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Friends Of Fsh Research is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 05/2024, Friends Of Fsh Research generated $869.3k in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 4.7% each year. All expenses for the organization totaled $611.0k during the year ending 05/2024. While expenses have increased by 3.5% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Friends Of Fsh Research has awarded 74 individual grants totaling $4,161,016. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2024
Describe the Organization's Mission:
Part 3 - Line 1
FRIENDS OF FSH RESEARCH A 501C3 ORGANIZATION IS WORKING TO IMPACT THE LIVES OF THOSE AFFECTED BY FSH MUSCULAR DYSTROPHY BY FINANCIALLY SUPPORTING FSHD RESEARCH
Describe the Organization's Program Activity:
Part 3 - Line 4a
FOR COMPLETE AND UP-TO-DATE INFORMATION,ON MULTIPLE ONGOING LINES OF RESEARCH, PLEASE REFER TO WWW.FSHFRIENDS.ORG AND THE ATTACHED PDF DOCUMENT.
PUBLIC EDUCATION AND AWARENESS
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Karl Voss Board Member | Trustee | 1 | $0 |
Chris Haven Board Member | Trustee | 2 | $0 |
Premi Haynes Board Member | Trustee | 2 | $0 |
Erik Svenson Board Member | Trustee | 1 | $0 |
Elizabeth Jas Board Member | Trustee | 1 | $0 |
Amanda Rickard Board Member | Trustee | 2 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $496,655 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $426,593 |
Noncash contributions included in lines 1a–1f | $94,423 |
Total Revenue from Contributions, Gifts, Grants & Similar | $923,248 |
Total Program Service Revenue | $0 |
Investment income | $25,769 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | -$80,884 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $1,210 |
Miscellaneous Revenue | $0 |
Total Revenue | $869,343 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $594,177 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $0 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $0 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $1,460 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $0 |
Advertising and promotion | $0 |
Office expenses | $520 |
Information technology | $1,843 |
Royalties | $0 |
Occupancy | $0 |
Travel | $0 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $1,698 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $0 |
All other expenses | $0 |
Total functional expenses | $611,002 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $43,124 |
Savings and temporary cash investments | $847,076 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $3,138 |
Prepaid expenses and deferred charges | $10,371 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $903,709 |
Accounts payable and accrued expenses | $0 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $0 |
Net assets without donor restrictions | $0 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $903,709 |
Total liabilities and net assets/fund balances | $903,709 |
Over the last fiscal year, Friends Of Fsh Research has awarded $524,628 in support to 7 organizations.
Grant Recipient | Amount |
---|---|
FRED HUTCHINSON CANCER RESEARCH CEN PURPOSE: RESEARCH STUDIES | $164,000 |
ST LOUIS UNIVERSITY PURPOSE: RESEARCH STUDIES | $30,000 |
FRED HUTCHINSON CANCER RESEARCH CEN PURPOSE: RESEARCH STUDIES | $75,000 |
SPRINGBOK ANALYTICS PURPOSE: RESEARCH STUDIES | $50,000 |
SEATTLE CHILDRENS HOSPITAL RESEARC PURPOSE: RESEARCH STUDIES | $35,000 |
UNIVERSITY OF NEVADA PURPOSE: RESEARCH STUDIES | $94,403 |
Organization Name | Assets | Revenue |
---|---|---|
Friends Of Fsh Research Kirkland, WA | $903,709 | $869,343 |
Southern Oregon Foundation Supporting A Cure For Cancer Medford, OR | $35,723 | $187,728 |
Marvin Thomas Memorial Seattle, WA | $60,396 | $0 |
Ghost Tree Invitational Ltd Eugene, OR | $184,963 | $198,467 |
Adnp Kids Research Foundation Brush Prairie, WA | $438,008 | $158,160 |
Foundation Of The Chidrens Cancer Association Portland, OR | $1,660,282 | $41,041 |