Adnp Kids Research Foundation
- Assets
- $438.0k
- Revenue
- $158.2k
- Investments
- $0.0
- Employees
- 0
- Location
- Brush Prairie, WA
- Founding
- 03/2017
- Data as of
- 05/2023
- EIN
- 30-0964243
Organization Overview
Adnp Kids Research Foundation is located in Brush Prairie, WA. The organization was established in 2017. According to its NTEE Classification (H11) the organization is classified as: Single Organization Support, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Adnp Kids Research Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 05/2023, Adnp Kids Research Foundation generated $158.2k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 3 years, the organization has seen revenues fall by an average of (6.6%) each year. All expenses for the organization totaled $87.8k during the year ending 05/2023. As we would expect to see with falling revenues, expenses have declined by (16.8%) per year over the past 3 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
ADNP SYNDROME RARE DISEASE PATIENT SUPPORT ADVOCACY EDUCATION DRUG DEVELOPMENT AND SCIENTIFIC RESEARCH AND FUNDER OF TREATMENT STUDIES AND DRUG TRIALS FOR ADNP SYNDROME. WE ARE A 100% VOLUNTEER ORG WORKING ON RESEARCH FOR DRUG DEVELOPMENT AND A CURE FOR ADNP SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROGRAM PAYMENTS FOR RESEARCH INCLUDING PREP FOR PHASE 2B STUDY AN ADNP SPECIFIC PAPER JOINT NEURODEVELOPMENTAL RARE DISEASE STUDY PART 2 AND DEVELOPMENT OF RESEARCH OF CELL LINES
PROGRAM PAYMENTS FOR OUR CONTACT AND PATIENT REGISTRY. WE UPDATED AND REDESIGNED THE ONLINE PLATFORM TO INCLUDE INSTANT LIVE INFORMATION GRAFTS ON SECURE PATIENT PORTAL TO MAKE DE-IDENTIFIED REAL TIME DATA AVAILABLE TO FAMILIES PARTICIPANTS OF PATIENT REGISTRY AS WELL AS THE ONGOING HIPPA COMPLIANT PLATFORM.
ADVOCACY AND RESEARCH CONFERENCES AND MEETINGS ARE PART OF OUR "ADVOCACY AND RESEARCH DRUG DEVELOPMENT PROGRAMS". THIS YEAR WE MADE AN EFFORT TO ATTEND MANY IMPORTANT EVENTS. THESE EVENTS WERE HELD AROUND THE COUNTRY AND RESULTED IN IMPORTANT INTERACTIONS WITH THE NIH FDA AND PHARMACEUTICAL COMPANY ENGAGEMENT FOR POSSIBLE ACQUISITION OF OUR DRUG TRIAL AND MULTIPLE MEETINGS AT DIFFERENT LOCATIONS WORKING ON CURRENT RESEARCH DRUG DEVELOPMENT GENE THERAPY AND ANIMAL MODEL CHARACTERIZATION AND PROVIDE PROJECT MANAGEMENT.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Sandra Sermone President | Officer | 30 | $0 |
Genie Egerton-Warburton Vice President | Officer | 0.5 | $0 |
Tim Mosier Treasurer | Officer | 0.25 | $0 |
Debbie Abraham Secretary | Officer | 0.25 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $158,160 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $158,160 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $158,160 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $29,179 |
| Grants and other assistance to domestic individuals. | $5,000 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $826 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $24 |
| Office expenses | $191 |
| Information technology | $3,703 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $16,502 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $439 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $903 |
| All other expenses | $35 |
| Total functional expenses | $87,757 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $438,008 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $438,008 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $438,008 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $438,008 |
Grants Awarded
Over the last fiscal year, Adnp Kids Research Foundation has awarded $17,200 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
MOUNT SINAI SEAVER AUTISM CENTER PURPOSE: Ketamine Trial and ADNP paper | $10,000 |
JOHN CARROLL UNIVERSITY PURPOSE: Net Study Part 2 | $7,200 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Friends Of Fsh Research Kirkland, WA | $903,709 | $869,343 |
Southern Oregon Foundation Supporting A Cure For Cancer Medford, OR | $35,723 | $187,728 |
Marvin Thomas Memorial Seattle, WA | $60,396 | $0 |
Ghost Tree Invitational Ltd Eugene, OR | $184,963 | $198,467 |
Adnp Kids Research Foundation Brush Prairie, WA | $438,008 | $158,160 |
Foundation Of The Chidrens Cancer Association Portland, OR | $1,660,282 | $41,041 |