Stiff Person Syndrome Research Foundation
- Assets
- $430.8k
- Revenue
- $557.0k
- Investments
- $0.0
- Employees
- 0
- Location
- Bethesda, MD
- Founding
- 11/2019
- Data as of
- 12/2022
- EIN
- 84-2291780
Organization Overview
Stiff Person Syndrome Research Foundation is located in Bethesda, MD. The organization was established in 2019. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Stiff Person Syndrome Research Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Stiff Person Syndrome Research Foundation generated $557.0k in total revenue. All expenses for the organization totaled $120.7k during the year ending 12/2022. While expenses have increased by 25.5% per year over the past 3 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Tara Zier President | 40 | $0 | |
Dan Robson Treasurer | 8 | $0 | |
Lara Vujovic Director | 8 | $0 | |
James Weiss Director | 8 | $0 | |
Carla Robson Secretary | 8 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Contributions, Gifts, Grants & Similar | $556,964 |
| Interest on Savings | $0 |
| Dividends & Interest | $0 |
| Net Rental Income | $0 |
| Net Gain on Sale of Assets | $0 |
| Capital Gain Net Income | $0 |
| Net ST Capital Gain | $0 |
| Income Modifications | $0 |
| Profit on Inventory Sales | $0 |
| Other Income | $0 |
| Total Revenue | $556,964 |
| Statement of Expenses | |
|---|---|
| Compensation of officers, directors, trustees, etc | $0 |
| Other employee salaries and wages | $0 |
| Pension plans, employee benefits | $0 |
| Interest | $0 |
| Taxes | $0 |
| Depreciation | $0 |
| Occupancy | $0 |
| Travel, conferences, and meetings | $6,962 |
| Printing and publications | $0 |
| Other expenses | $73,724 |
| Total operating and administrative expenses | $113,179 |
| Contributions, gifts, grants paid | $7,500 |
| Total expenses and disbursements | $120,679 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $425,447 |
| Savings and temporary cash investments | $0 |
| Net Accounts receivable | $5,378 |
| Net Pledges Receivable | $0 |
| Grants receivable | $0 |
| Receivables from Officers, Directors, or Controlling Persons | $0 |
| Net other notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Investments - land, buildings, equipment | $0 |
| Investments—mortgage loans | $0 |
| Investments—other | $0 |
| Net Land, buildings, and equipment | $0 |
| Other assets | $0 |
| Total assets | $430,825 |
| Accounts payable and accrued expenses | $10,350 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $64,192 |
| Mortgages and other notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $74,542 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Stiff Person Syndrome Research Foundation has recieved totaling $600,000.
| Awarding Organization | Amount |
|---|---|
Silicon Valley Community Foundation Mountain View, CA PURPOSE: Health | $600,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Go2 Foundation For Lung Cancer Washington, DC | $13,060,828 | $13,937,912 |
Service Coordination Unlimited Inc Pittsburgh, PA | $4,474,883 | $7,015,271 |
Townebank Foundation Suffolk, VA | $12,218,911 | $5,948,178 |
Eagles Autism Challenge Inc Philadelphia, PA | $4,671,801 | $3,218,137 |
The Abim Foundation Philadelphia, PA | $92,491,227 | $11,488,048 |
Bringing Hope Home Inc Malvern, PA | $706,369 | $2,303,858 |
Investigative Research Center Inc Arlington, VA | $96,743 | $0 |
Southern Chester County Emergency Medical Services Inc Avondale, PA | $1,825,972 | $1,565,526 |
Mesothelioma Applied Research Foundation Inc Washington, DC | $9,384,474 | $3,031,525 |
Cool Kids Campaign Foundation Inc Towson, MD | $935,182 | $1,348,951 |
Sharpe-Strumia Research Foundation Of The Bryn Mawr Hospital Bryn Mawr, PA | $25,307,489 | $1,417,708 |
Incyte Charitable Giving Foundation Wilmington, DE | $2,500 | $730,000 |