Curegrin Foundation is located in Parker, CO. The organization was established in 2019. According to its NTEE Classification (T12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Philanthropy, Voluntarism & Grantmaking Foundations and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Curegrin Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 04/2023, Curegrin Foundation generated $422.7k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 4 years, the organization has seen revenues fall by an average of (9.5%) each year. All expenses for the organization totaled $836.4k during the year ending 04/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
SEEKING TREATMENTS AND CURES FOR GRI DISORDERS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CUREGRIN AWARDED 3 GRANTS WORTH $446,323 IN THE FISCAL YEAR. THESE INCLUDE: 1) $200,000 TO RESEARCHERS AT UNIVERSITY OF AUCKLAND AND UNIVERSITY OF TORONTO TO VALIDATE BLOOD BIOMARKERS. 2) $146,332 TO RESEARCHERS AT UNIVERSITY COLLEGE LONDON FOR GRIA DISORDER DRUG DISCOVERY AND 3) $99,992 TO COLUMBIA UNIVERSITY FOR GENE THERAPY TRIALS ON GRIN2A MICE.
AFTER YEARS OF COVID RELATED DELAYS, CUREGRIN HOSTED A THREE-DAY CONFERENCE IN BOSTON. MORE THAN 300 FAMILIES, RESEARCHERS, CLINICIANS AND REPRESENTATIVES FROM THE BIOPHARM INDUSTRY PARTICIPATED, INCLUDING OVER 230 IN-PERSON ATTENDEES. THE CONFERENCE RECEIVED RAVE REVIEWS FROM BOTH FAMILIES AND RESEARCHERS. THE LARGEST EXPENSES WERE FOOD AND AUDIO-VISUAL EQUIPMENT. REVENUE WAS ASSOCIATED WITH REGISTRATION FEES AND SPONSORSHIPS.
CUREGRINS PROGRAMS FALL INTO TWO CATEGORIES. 1) IMPROVING THE LIVES OF PEOPLE AROUND THE WORLD LIVING WITH GRI DISORDERS (GRIN, GRIA, GRIK AND GRID), AND THEIR FAMILIES, THROUGH RESEARCH, EDUCATION AND CONNECTIVITY. THESE PROGRAMS INCLUDE GRICONNECT, DEVELOPMENT OF EDUCATIONAL CONTENT AND THE FAMILY AMBASSADOR PROGRAM. 2) WORKING WITH SCIENTISTS, CLINICIANS AND THE BIOPHARM INDUSTRY TO DRIVE RESEARCH AND CURES. THESE PROGRAMS INCLUDE IN-HOUSE RESEARCH, GRI GENES ROUNDTABLE AND BIOPHARM ENGAGEMENT.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Keith Mcarthur CEO | OfficerTrustee | 40 | $75,000 |
Denise Rehner President | OfficerTrustee | 20 | $35,000 |
Paulo Domingues Board Member | Trustee | 2 | $0 |
Kaitlyne Leblanc Board Member | Trustee | 2 | $0 |
Jillian Hastings Board Member | Trustee | 2 | $0 |
Natasha Lesmana Board Member | Trustee | 2 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $0 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $374,601 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $374,601 |
Total Program Service Revenue | $48,063 |
Investment income | $64 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $422,728 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $99,992 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $346,331 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $112,500 |
Compensation of current officers, directors, key employees. | $9,375 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $9,375 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $0 |
Fees for services: Management | $833 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $1,730 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $59,441 |
Advertising and promotion | $7,805 |
Office expenses | $703 |
Information technology | $18,293 |
Royalties | $0 |
Occupancy | $0 |
Travel | $5,372 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $161,648 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $0 |
All other expenses | $0 |
Total functional expenses | $836,416 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $855,204 |
Savings and temporary cash investments | $0 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $47,838 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $0 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $903,042 |
Accounts payable and accrued expenses | $49,320 |
Grants payable | $446,293 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $495,613 |
Net assets without donor restrictions | $367,165 |
Net assets with donor restrictions | $40,264 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $903,042 |