Ash Registry Inc
- Assets
- $2.5m
- Revenue
- $1.1m
- Investments
- $0.0
- Employees
- 0
- Location
- Washington, DC
- Founding
- 01/2020
- Data as of
- 06/2021
- EIN
- 82-4218205
Organization Overview
Ash Registry Inc, operating under the name Ash Research Collaborative, is located in Washington, DC. The organization was established in 2020. According to its NTEE Classification (U20) the organization is classified as: General Science, under the broad grouping of Science & Technology and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Ash Research Collaborative is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2021, Ash Research Collaborative generated $1.1m in total revenue. All expenses for the organization totaled $7.4m during the year ending 06/2021. While expenses have increased by 21.3% per year over the past 3 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
SEE PART III, LINE 1.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ASH RC DATA HUB WAS CREATED TO FACILITATE THE SHARING OF DATA ON BENIGN AND MALIGNANT HEMATOLOGIC CONDITIONS IN SUPPORT OF SCIENTIFIC INQUIRY AND DISCOVERY. AS A MAJOR INITIATIVE WITHIN ASH RC, THE DATA HUB AIMS TO CREATE THE LARGEST SHARED INFORMATION RESOURCE WITHIN THE GLOBAL HEMATOLOGY COMMUNITY. THE DATA HUB IS CURRENTLY COLLECTING DATA ON THE NOVEL CORONAVIRUS (COVID-19) AND ITS IMPACT ON INDIVIDUALS LIVING WITH HEMATOLOGIC CONDITIONS (COVID-19 REGISTRY), MULTIPLE MYELOMA AND SICKLE CELL DISEASE. THE LONG-TERM GOAL OF THE ASH RC IS TO ADDRESS THE ENTIRE SPECTRUM OF MALIGNANT AND NONMALIGNANT HEMATOLOGIC DISEASES, WHICH MEANS THE DATA HUB WILL EXPAND ITS SCOPE ONCE THESE INITIAL EFFORTS HAVE REACHED MATURITY. CURRENTLY, THE DATA HUB HOUSES DATA ON MORE THAN 3,000 PATIENTS WITH SCD AND 2,000 PATIENTS WITH MULTIPLE MYELOMA.
THE ASH RC SICKLE CELL DISEASE CLINICAL TRIALS NETWORK WAS LAUNCHED WITH THE MISSION OF IMPROVING OUTCOMES FOR INDIVIDUALS WITH SICKLE CELL DISEASE (SCD) BY EXPEDITING THE DEVELOPMENT OF TREATMENTS AND FACILITATING INNOVATION IN CLINICAL TRIAL RESEARCH. THE NETWORK IS AN UNPRECEDENTED NATIONAL EFFORT TO STREAMLINE OPERATIONS AND FACILITATE DATA SHARING TO EXPEDITE THE DEVELOPMENT OF NEW TREATMENTS FOR THIS RARE DISEASE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Cynthia E Dunbar Councillor To Sec. (eff. 01/21) | OfficerTrustee | 2 | $0 |
Mark Crowther Treasurer | OfficerTrustee | 2 | $0 |
Stephanie Lee President (through 12/20) | OfficerTrustee | 2 | $0 |
Martin S Tallman Pres.-Elect To Pres. (eff 01/21) | OfficerTrustee | 2 | $0 |
Jane N Winter VP To Pres.-Elect (eff. 01/21) | OfficerTrustee | 2 | $0 |
Robert A Brodsky Sec. To Vice Pres. (eff. 01/21) | OfficerTrustee | 2 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Mary Ann Fallon Clinical Trials Operations Expert | 6/29/21 | $167,138 |
Powers Pyles Sutter & Verville Legal Services | 6/29/21 | $143,265 |
Breakthrough Healthcare Data Info./analytics & Grant Mgmt | 6/29/21 | $231,500 |
Prometheus Research Software Development And Data Management | 6/29/21 | $1,926,864 |
Geekhive It Consulting | 6/29/21 | $498,750 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $431,333 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $200,000 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $631,333 |
| Total Program Service Revenue | $500,000 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,111,574 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $275,614 |
| Compensation of current officers, directors, key employees. | $18,643 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,437,569 |
| Pension plan accruals and contributions | $64,726 |
| Other employee benefits | $149,317 |
| Payroll taxes | $127,695 |
| Fees for services: Management | $980,000 |
| Fees for services: Legal | $193,595 |
| Fees for services: Accounting | $414 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $30,721 |
| Office expenses | -$1,408 |
| Information technology | $14,230 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $3,927,398 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $24,477 |
| Insurance | $119,650 |
| All other expenses | $0 |
| Total functional expenses | $7,388,211 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,334,526 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $985,573 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $1,518 |
| Net Land, buildings, and equipment | $225,558 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,547,175 |
| Accounts payable and accrued expenses | $720,170 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $20,768,203 |
| Total liabilities | $21,488,373 |
| Net assets without donor restrictions | -$18,941,198 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,547,175 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Ash Registry Inc has recieved totaling $431,333.
| Awarding Organization | Amount |
|---|---|
American Society Of Hematology Inc Washington, DC PURPOSE: SUBRECIPIENT AWARD - PROGRAM SUPPORT | $431,333 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Academy Of Managed Care Pharmacy A New Jersey Nonprofit Corporation Alexandria, VA | $27,096,439 | $20,779,074 |
Energetics Technology Center Inc Indian Head, MD | $3,510,946 | $10,768,646 |
Virginia Health Information Richmond, VA | $10,541,245 | $9,704,861 |
Ash Registry Inc Washington, DC | $2,547,175 | $1,111,574 |
Patuxent Partnership Inc Lexington Park, MD | $2,842,060 | $6,374,195 |
Deltares Usa Inc Silver Spring, MD | $2,728,282 | $4,807,660 |
If Foundation Washington, DC | $30,380,143 | $2,916,137 |
Virginia Biosciences Health Research Corporation Richmond, VA | $18,803,065 | $7,801,213 |
Institute For The Advancement Of Food And Nutrition Sciences Washington, DC | $7,160,347 | $2,744,380 |
Data Catalyst Institute Washington, DC | $0 | $1,410,054 |
Building Change Inc Richmond, VA | $163,183 | $1,312,788 |
Low Impact Development Center Inc Beltsville, MD | $671,271 | $1,331,714 |