Life Raft Group Inc

Organization Overview

Life Raft Group Inc is located in Wayne, NJ. The organization was established in 2002. According to its NTEE Classification (G70) the organization is classified as: Digestive Diseases & Disorders, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2022, Life Raft Group Inc employed 17 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Life Raft Group Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2022, Life Raft Group Inc generated $1.4m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 8 years, the organization has seen revenues fall by an average of (12.8%) each year. All expenses for the organization totaled $1.9m during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

ENHANCING SURVIVAL AND QUALITY OF LIFE FOR PEOPLE LIVING WITH GIST THROUGH PATIENT-POWERED RESEARCH, EDUCATION, EMPOWERMENT AND GLOBAL ADVOCACY EFFORTS. THE VISION IS TO CHAMPION PATIENT-POWERED SCIENCE AND DRASTICALLY INCREASE LONG-TERM SURVIVORSHIP FOR GIST CANCER PATIENTS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

RESEARCH: WE FUND AND MANAGE UNIQUELY COORDINATED RESEARCH INITIATIVES THAT ALWAYS KEEP THE NEEDS OF GIST PATIENTS FOREMOST. THE LIFE RAFT GROUP (LRG) CONTINUES TO LEAD A COLLABORATIVE TEAM OF WORLD-RENOWNED SCIENTISTS AND CLINICIANS IN GIST. LRG HAS THE LARGEST GIST PATIENT REGISTRY IN THE WORLD. OUR RESEARCH PARADIGM IS PATIENT-POWERED SCIENCE FOR LIFE. A COMPREHENSIVE APPROACH THAT COMPLIMENTS TRADITIONAL RESEARCH WITH REAL WORLD EVIDENCE SUPPORTED BY DATA.


INFORMATION, EDUCATION, ADVOCACY, OUTREACH & ENGAGEMENT: THE LRG PROVIDES SUPPORT, INTERVENTION, EDUCATION AND ADVOCACY TO GIST PATIENTS, THEIR FAMILIES, AND CAREGIVERS. LOCAL SUPPORT IS AVAILABLE TO THE GIST COMMUNITY THROUGH A NETWORK OF LRG MENTORS AND VOLUNTEERS. OUR EDUCATION PROGRAMS ARE OFFERED WORLDWIDE. OUR GIST DAYS OF LEARNING ANDOUR BIENNIAL LIFE FEST EVENT GATHER EXPERTS FROM ACROSS THE GLOBE TO BRING THE MOST UP TO DATE INFORMATION ON GIST RESEARCH, EMERGING THERAPIES AND UPDATES ON THE WORLD OF GIST. OUR OUTREACH AND ENGAGEMENT EFFORTS ALSO INCLUDE PATIENT SUPPORT GROUPS, FOCUS GROUPS, MONTHLY WEBCASTS, OUR WEBSITE, ACCESS TO OUR CLINICAL TRIALS DATABASE AND OUR WORLDWIDE GIST SPECIALIST DATABASE. EXPERT PATIENT TRAINING IS OFFERED TO ALL MEMBERS.


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Board, Officers & Key Employees

Name (title)Compensation
Jerry Cudzil
President
$0
Stan Bunn
Past President
$0
Jim Hughes
Trustee
$0
Rodrigo Salas
Trustee
$0
John Poss
Trustee
$0
Teena Petersohn
Trustee
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$64,725
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$1,248,945
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$1,313,670
Total Program Service Revenue$0
Investment income $41,019
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $41,182
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,396,538

Grants Awarded

Over the last fiscal year, Life Raft Group Inc has awarded $262,500 in support to 7 organizations.

Grant RecipientAmount

UNIVERSITY OF PITTSBURGH

PURPOSE: TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS.

$37,500

PORTLAND VA RESEARCH FOUNDATION

PURPOSE: TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS.

$37,500

CLEVELAND CLINIC

PURPOSE: TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS.

$37,500

STANFORD UNIVERSITY

PURPOSE: TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS.

$37,500

BRIGHAM & WOMEN'S HOSPITAL

PURPOSE: TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS.

$37,500

PORTLAND VA MEDICAL CENTER

PURPOSE: TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS.

$37,500
View Grant Profile

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