Wilson Disease Association
- Assets
- $460.9k
- Revenue
- $655.8k
- Investments
- $0.0
- Employees
- 1
- Location
- New York, NY
- Founding
- 01/1985
- Data as of
- 12/2022
- EIN
- 16-1154397
Organization Overview
Wilson Disease Association is located in New York, NY. The organization was established in 1985. According to its NTEE Classification (G70) the organization is classified as: Digestive Diseases & Disorders, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Wilson Disease Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Wilson Disease Association generated $655.8k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 9.8% each year. All expenses for the organization totaled $538.0k during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO PROVIDE SUPPORT AND ASSISTANCE TO INDIVIDUALS WITH WILSON'S DISEASE AND AID IN RESEARCH FOR TREATMENT.
Describe the Organization's Program Activity:
Part 3 - Line 4a
SUPPORT OF RESEARCH THROUGH THE WILSON DISEASE PATIENT REGISTRY
MAINTAIN INFORMATIVE WEBSITE, PROVIDE MEDICATION ASSISTANCE, PUBLISH/MAIL NEWSLETTERS. SUPPORT LOCAL PATIENT MEETINGS. ANNUAL CONFERENCE FOR PATIENTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Drew Katz Director | Trustee | 2 | $0 |
Rhonda Rowland Director | Trustee | 8 | $0 |
Jean Perog President | Officer | 8 | $0 |
Carol Terry Secretary | Officer | 15 | $0 |
Steve Walsh Treasurer | Officer | 2 | $0 |
Rachel Albert Vice President | Officer | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $9,365 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $641,672 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $651,037 |
| Total Program Service Revenue | $0 |
| Investment income | $2,915 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $1,852 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $655,804 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $85,000 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $6,503 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $851 |
| Fees for services: Other | $2,273 |
| Advertising and promotion | $5,570 |
| Office expenses | $808 |
| Information technology | $13,414 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $541 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $3,000 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,211 |
| All other expenses | $3,034 |
| Total functional expenses | $537,994 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $311,675 |
| Savings and temporary cash investments | $62,506 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $532 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $86,142 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $460,855 |
| Accounts payable and accrued expenses | $4,396 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $4,396 |
| Net assets without donor restrictions | $277,023 |
| Net assets with donor restrictions | $179,436 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $460,855 |