Wilson Disease Association
- Assets
- $361.5k
- Revenue
- $335.3k
- Investments
- $0.0
- Employees
- 1
- Location
- New York, NY
- Founding
- 01/1985
- Data as of
- 12/2021
- EIN
- 16-1154397
Organization Overview
Wilson Disease Association is located in New York, NY. The organization was established in 1985. According to its NTEE Classification (G70) the organization is classified as: Digestive Diseases & Disorders, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Wilson Disease Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Wilson Disease Association generated $335.3k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 9.4% each year. All expenses for the organization totaled $1.3m during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO PROVIDE SUPPORT AND ASSISTANCE TO INDIVIDUALS WITH WILSON'S DISEASE AND AID IN RESEARCH FOR TREATMENT.
Describe the Organization's Program Activity:
Part 3 - Line 4a
SUPPORT OF RESEARCH THROUGH THE WILSON DISEASE PATIENT REGISTRY
MAINTAIN INFORMATIVE WEBSITE, PROVIDE MEDICATION ASSISTANCE, PUBLISH/MAIL NEWSLETTERS. SUPPORT LOCAL PATIENT MEETINGS. ANNUAL CONFERENCE FOR PATIENTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Mary L Graper Vice President | Officer | 4 | $0 |
Jean Perog President | Officer | 8 | $0 |
Carol Terry Secretary | Officer | 15 | $0 |
Steve Walsh Treasurer | Officer | 2 | $0 |
Rachel Albert Vice President | Officer | 2 | $0 |
Drew Katz Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $6,694 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $35,991 |
| All other contributions, gifts, grants, and similar amounts not included above | $234,090 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $276,775 |
| Total Program Service Revenue | $0 |
| Investment income | $3,599 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $33,969 |
| Net Income from Fundraising Events | $20,983 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $335,326 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $85,077 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $6,528 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $4,779 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $1,589 |
| Fees for services: Other | $1,725 |
| Advertising and promotion | $0 |
| Office expenses | $1,718 |
| Information technology | $12,627 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $1,185 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,387 |
| All other expenses | $743 |
| Total functional expenses | $1,315,468 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $124,412 |
| Savings and temporary cash investments | $61,500 |
| Pledges and grants receivable | $75,000 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $864 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $99,766 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $361,542 |
| Accounts payable and accrued expenses | $3,101 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $3,101 |
| Net assets without donor restrictions | -$445,654 |
| Net assets with donor restrictions | $804,095 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $361,542 |
Grants Recieved
Over the last fiscal year, we have identified 6 grants that Wilson Disease Association has recieved totaling $33,258.
| Awarding Organization | Amount |
|---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $11,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $10,844 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $8,418 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,496 |
Wkw Family Foundation Inc King Of Prussia, PA PURPOSE: TO SUPPORT THE ORGANIZATION IN ITS EFFORTS TO RESEARCH WILSON DISEASE | $1,000 |
Pfizer Foundation Inc New York, NY PURPOSE: MATCHING GIFTS | $500 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Life Raft Group Inc Wayne, NJ | $3,390,555 | $1,973,515 |
Gastroenterology & Hepatology Advanced Practice Providers Inc Clark, NJ | $1,094,862 | $2,355,713 |
Wilson Disease Association New York, NY | $361,542 | $335,326 |
Society For Surgery Of The Alimentary Tract Beverly, MA | $5,114,902 | $1,207,660 |
National Celiac Association Inc Needham, MA | $874,314 | $860,498 |
American Legion Clayton, NY | $434,217 | $242,230 |
Marks Colorectal Surgical Foundation Wynnewood, PA | $478,003 | $0 |
A Mothers Wish Media, PA | $78,055 | $0 |
Pennsylvania Society Of Gastroenterology Mechanicsburg, PA | $1,064,044 | $174,295 |
Cure For Ibd Basking Ridge, NJ | $131,265 | $103,462 |
Project Clio Inc Boston, MA | $162,211 | $0 |
New York Society Of Colon And Rectal Surgeons Inc Hauppauge, NY | $60,444 | $0 |