Andrews Firefly Fund
- Assets
- $465.7k
- Revenue
- $553.8k
- Investments
- $0.0
- Employees
- 1
- Location
- Austin, TX
- Founding
- 03/2017
- Data as of
- 12/2021
- EIN
- 81-3737330
Organization Overview
Andrews Firefly Fund, operating under the name Firefly Fund, is located in Austin, TX. The organization was established in 2017. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Firefly Fund is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Firefly Fund generated $553.8k in total revenue. This represents relatively stable growth, over the past 5 years the organization has increased revenue by an average of 6.9% each year. All expenses for the organization totaled $342.2k during the year ending 12/2021. While expenses have increased by 0.5% per year over the past 5 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
NEWBORN SCREENING PREPAREDNESS AND ADVOCACY; MEDICAL RESEARCH; PATIENTS ACCESS/IMPACT
Describe the Organization's Program Activity:
Part 3 - Line 4a
SINCE 2017 FIREFLY FUND HAS BEEN LEADING THE NPC NBS INITIATIVE WITH A VISION THAT ALL NEWBORNS WILL BE SCREENED FOR NPC, ENABELING EARLY DIAGNOSIS AND INTERVENTION. THE INITIATIVE IS LED BY A BROAD STAKEHOLDER WORKING GROUP, CHAIRED BY DRS. ELIZABETH BERRY-KRAVIS OF RUSH AND MARC PATTERSON OF MAYO CLINIC, WHICH INCLUDES THE NPC COMMUNITY AND INDUSTRY STAKEHOLDERS. TWENTY NINE (29) NPC AND NBS EXPERT CLINICIANS FROM AROUND THE US AND CANADA MAKE UP THE NPC NBS CLINICAL ROUNDTABLE SERVING THE INITIATIVE AS ADVISORS.
FIREFLY FUND SUPPORTS MEDICAL RESEARCH THAT COULD PROVIDE THERAPEUTICS FOR THE TREATMENT OF NIEMANN PICK TYPE C DISEASE.
WORK WITH ACADEMIC CENTERS OF EXCELLENCE AND PATIENT ADVOCACY ORGANIZATIONS TO REMOVE BARRIERS TO CARE AND ACCESS TO THERAPIES NECESSARY FOR THEIR LOVED ONES WITH AN NPC DIAGNOSIS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Beryl Pam Andrews Executive Director | Officer | 40 | $95,000 |
Marianne Dwight Co-Chair | OfficerTrustee | 5 | $0 |
Beryl Crowley Director | OfficerTrustee | 5 | $0 |
Mariben Ramsey Co-Chair | OfficerTrustee | 5 | $0 |
Chris Andrews Board Of Directors | Trustee | 5 | $0 |
Ben Machielse Director | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $18,700 |
| All other contributions, gifts, grants, and similar amounts not included above | $427,945 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $446,645 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $553,765 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $185,456 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $95,000 |
| Compensation of current officers, directors, key employees. | $9,500 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $7,267 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $3,294 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $19,945 |
| Advertising and promotion | $0 |
| Office expenses | $24,724 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $4,178 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $570 |
| All other expenses | $0 |
| Total functional expenses | $342,210 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $419,158 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $39,829 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $6,699 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $465,686 |
| Accounts payable and accrued expenses | $2,515 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $2,515 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $463,171 |
| Total liabilities and net assets/fund balances | $465,686 |
Grants Awarded
Over the last fiscal year, Andrews Firefly Fund has awarded $185,456 in support to 6 organizations.
| Grant Recipient | Amount |
|---|---|
MONTEFIORE CHILDREN'S HOSPITAL PURPOSE: NEWBORN SCREENINGS | $100,000 |
3D COMMUNICATIONS PURPOSE: NEWBORN SCREENINGS | $30,456 |
UNIVERSITY OF MICHIGAN MEDICAL SCHOOL PURPOSE: MEDICAL RESEARCH | $25,000 |
NATIONAL INSTITUTES OF HEALTH PURPOSE: NEWBORN SCREENINGS | $10,000 |
Fort Atkinson, WI PURPOSE: PATIENT ACCESS PROGRAM | $10,000 |
RUSH UNIVERSITY CHILDREN'S HOSPITAL PURPOSE: PATIENT ACCESS PROGRAM | $10,000 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Andrews Firefly Fund has recieved totaling $274,757.
| Awarding Organization | Amount |
|---|---|
Together Strong Npc Foundation Wilmington, DE PURPOSE: FIREFLY'S NPC NEWBORN SCREENING INITIATIVE FUND | $266,667 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $7,795 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $295 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Recovery Resource Council Fort Worth, TX | $4,759,649 | $9,904,846 |
Sanford P & Irene F Burnstein Charitable Foundation Tulsa, OK | $81,529,191 | $9,320,612 |
Chi St Josephs Children Albuquerque, NM | $107,979,051 | $7,915,838 |
Hoy Recovery Program Inc Espanola, NM | $1,722,107 | $2,184,561 |
Halo House Foundation Houston, TX | $16,177,181 | $1,104,819 |
Apple Group Inc Jonesboro, AR | $624,729 | $1,402,805 |
Houston Va Research & Education Foundation Houston, TX | $8,399,149 | $1,838,829 |
Face To Face Enrichment Center Hammond, LA | $70,764 | $435,702 |
Sturge-Weber Foundation Houston, TX | $522,921 | $376,017 |
El Paso Diabetes Association Inc El Paso, TX | $281,963 | $572,135 |
Imagine A Way Leander, TX | $1,264,102 | $735,284 |
American Syringomyelia Alliance Project Inc Longview, TX | $3,398,622 | $1,211,738 |