Down Syndrome Indiana Inc

Organization Overview

Down Syndrome Indiana Inc is located in Indianapolis, IN. The organization was established in 2011. According to its NTEE Classification (P82) the organization is classified as: Developmentally Disabled Centers, under the broad grouping of Human Services and related organizations. As of 12/2021, Down Syndrome Indiana Inc employed 8 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Down Syndrome Indiana Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Down Syndrome Indiana Inc generated $468.6k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.1% each year. All expenses for the organization totaled $314.6k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

WE ENHANCE THE LIVES OF INDIVIDUALS WITH DOWN SYNDROME AND THEIR FAMILIES. WE ADVISE, EDUCATE, ENCOURAGE, CONNECT, INCLUDE, AND ADVOCATE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

BUDDY WALKTHE BUDDY WALK PROGRAM WELCOMES PARTICIPANTS OF ALL AGES AND ABILITIES. THE GOAL OF THE PROGRAM IS TO PROMOTE ACCEPTANCE AND INCLUSION OF PEOPLE WITH DOWN SYNDROME. THIS PROGRAM IS HELD ANNUALLY IN THREE CITIES IN INDIANA INCLUDING INDIANAPOLIS, LAFYETTE, AND TERRE HAUTE. DUE TO COVID-19, THE REGIONAL BUDDY WALKS IN TERRE HAUTE AND LAFAYETTE WERE VIRTUAL. THE INDIANAPOLIS BUDDY WALK WAS IN-PERSON. THESE EVENTS HAD A COMBINED 2,200 PARTICIPANTS.


PARENT SUPPORT AND EDUCATIONNEW PARENT PACKETS - DOWN SYNDROME INDIANA PROVIDES COMPREHENSIVE PARENT PACKETS THAT CONTAIN A WEALTH OF INFORMATION TO PARENTS THAT HAVE A NEWBORN WITH DOWN SYNDROME OR HAVE JUST LEARNED OF THE DIAGNOSIS BEFORE THEIR CHILD IS BORN. THESE PACKETS ARE DISTRIBUTED TO THE FAMILIES UPON REQUEST OR THROUGH LOCAL HOSPITALS. A SPANISH VERSION OF THE NEW PARENT PACKET IS ALSO AVAILABLE! THERE WERE 185 NEW PARENT PACKETS DISTRIBUTED IN 2021.COMMUNITY SUPPORT GROUPS - DOWN SYNDROME INDIANA RECOGNIZES THAT THERE ARE VARIED INTERESTS AMONG THE DOWN SYNDROME COMMUNITY. EXAMPLES INCLUDE GEOGRAPHICAL CONSIDERATIONS, CULTURAL CONSIDERATIONS, EDUCATIONAL CONSIDERATIONS, AND AGE CONSIDERATIONS. DOWN SYNDROME INDIANA RECOGNIZES THE BENEFITS OF A COMMUNITY GROUP AMONG THESE FAMILIES. COMMUNITY GROUPS INCLUDE: CASS AREA DOWN SYNDROME (CADS), CUENTA CONMIGO, DADS APPRECIATING DOWN SYNDROME (DADS), DOWN SYNDROME INDIANA LAFAYETTE, DOWN SYNDROME INDIANA TERRE HAUTE, MADISON HANCOCK PLAYGROUP, MOM'S NIGHT OUT, SELF-ADVOCATES, AND WESTSIDE.FIRST CALL - FIRST CALL VOLUNTEERS MAKE A DIFFERENCE IN LIVES BY SERVING AS THE FIRST POINT OF CONTACT WITH A NEW FAMILY. A FIRST CALL PARENT IS TRAINED IN EMPATHETIC LISTENING SKILLS AND IS A NEW PARENT'S FIRST LOOK AT WHAT LIFE WITH A CHILD WITH DOWN SYNDROME IS LIKE.MEDICAL OUTREACH - THE GOAL IS TO BUILD RELATIONSHIPS OF TRUST AND RESPECT BETWEEN MEDICAL PROVIDERS AND THE DOWN SYNDROME COMMUNITY. PROVIDE ACCURATE AND UP-TO-DATE INFORMATION ABOUT DOWN SYNDROME TO MEDICAL PROVIDERS.THE LEARNING PROGRAM - THE LEARNING PROGRAM PROVIDES DIRECT SERVICES THROUGH THE COMMUNITY AND WAS DEVELOPED TO SUPPLEMENT TRADITIONAL EDUCATION IN READING AND MATH THROUGH DIRECT INSTRUCTION AND MATERIALS FOR STUDENTS WITH DOWN SYNDROME OR OTHER DEVELOPMENTAL DISABILITIES.AWARENESS PRESENTATIONS - DOWN SYNDROME INDIANA REPRESENTATIVES SPOKE TO OVER 980 PEOPLE IN 2021 THROUGH DOWN SYNDROME AWARENESS PRESENTATIONS. WE SPEAK TO K-12 STUDENTS, COLLEGE STUDENTS, MEDICAL PROFESSIONALS, SERVICE PROVIDERS, AND CORPORATE PARTNERS AND ORGANIZATIONS.DURING 2021, DOWN SYNDROME INDIANA WAS ABLE TO REACH 2,553 PARENTS AND 1,291 INDIVIDUALS WITH DOWN SYNDROME THROUGH THEIR PROGRAMMING.


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Board, Officers & Key Employees

Name (title)Compensation
Lisa Wells
Executive Director
$54,075
Richard Schreiner
President
$0
Rob Morgan
Treasurer
$0
Jennifer Buechler
Secretary
$0
Brad Wilt
Vice President
$0
Aaron Brezko
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$186,397
Related organizations$0
Government grants $32,500
All other contributions, gifts, grants, and similar amounts not included above$184,287
Noncash contributions included in lines 1a–1f $13,872
Total Revenue from Contributions, Gifts, Grants & Similar$403,184
Total Program Service Revenue$0
Investment income $198
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales -$2,750
Net Income from Fundraising Events $64,243
Net Income from Gaming Activities $1,700
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $468,575

Grants Awarded

Over the last fiscal year, Down Syndrome Indiana Inc has awarded $18,924 in support to 2 organizations.

Grant RecipientAmount

RILEY CHILDRENS FOUND

PURPOSE: Camp HI Lite

$10,000

NATIONAL DOWN SYNDROME SOCIET

Org PageRecipient Profile

Washington, DC

PURPOSE: Buddy Walk supports organization

$8,924
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 5 grants that Down Syndrome Indiana Inc has recieved totaling $23,000.

Awarding OrganizationAmount
Care Institute Group Inc

Indianapolis, IN

PURPOSE: GENERAL PURPOSE

$10,000
Blue River Foundation Inc

Shelbyville, IN

PURPOSE: OPERATING SUPPORT

$7,000
Healthcare Initiatives Inc

Indianapolis, IN

PURPOSE: GENERAL SUPPORT

$5,000
Lilly Endowment Inc

Indianapolis, IN

PURPOSE: EMPLOYEE MATCHING GIFT(S)

$800
Ge Foundation

Norwalk, CT

PURPOSE: MATCHING GIFTS

$200
View Grant Recipient Profile

Endowment Analysis

Earnings$13,878
Net Contributions$110,500
Ending Balance$124,378

Peer Organizations

Organization NameAssets
Misericordia Home
Chicago, IL
$136,708,430
Easter Seals Midwest
Saint Louis, MO
$87,505,864
Damar Services Inc
Indianapolis, IN
$82,679,779
Arc Of The Ozarks
Springfield, MO
$66,576,030
Clearbrook
Arlington Heights, IL
$59,950,645
United Cerebral Palsy Seguin Of Greater Chicago
Cicero, IL
$46,527,213
Envision Unlimited
Chicago, IL
$44,628,110
Community Living Options Inc
Galesburg, IL
$37,185,624
Association For Individual Development
Aurora, IL
$39,395,517
The Whole Person Inc
Kansas City, MO
$33,207,318
Milestone Inc
Loves Park, IL
$34,095,532
The Arc Of Northeast Indiana Inc
Fort Wayne, IN
$36,152,112

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