Scleroderma Foundation Southern California Chapter

Organization Overview

Scleroderma Foundation Southern California Chapter is located in Los Angeles, CA. The organization was established in 1994. As of 12/2021, Scleroderma Foundation Southern California Chapter employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Scleroderma Foundation Southern California Chapter is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Scleroderma Foundation Southern California Chapter generated $422.6k in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of (0.1%) each year. All expenses for the organization totaled $328.8k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (0.2%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

EMPOWERING THE SCLERODERMA COMMUNITY THROUGH PROGRAMS IN RESEARCH, SUPPORT AND EDUCATION.

Describe the Organization's Program Activity:

Part 3 - Line 4a

PROVIDE PATIENT SUPPORT AND EDUCATION SERVICES FOR OVER 1000 PATIENTS AFFECTED BY SCLERODERMA IN SOUTHERN CALIFORNIA AND WORK TO BUILD OVERALL AWARENESS OF THE DISEASE.SUPPORT GROUPS: SUPPORT GROUPS PROVIDE A FORUM TO SHARE FEELINGS, CONCERNS, INFORMATION, AS WELL AS A PLACE TO OFFER PEER SUPPORT AND ENCOURAGEMENT. SOLICITATIONS OR RESEARCH PROJECTS ARE NOT CONDUCTED AT SUPPORT GROUP MEETINGS. SUPPORT GROUPS OFTEN FEATURE SPEAKERS SPECIALIZING IN SCLERODERMA OR RELATED TOPICS. ALL SUPPORT GROUPS ARE FREE OF CHARGE AND OPEN TO EVERYONE, INCLUDING PATIENTS, CAREGIVERS, FAMILY AND FRIENDS. THE FOUNDATION CURRENTLY HAS 17 LOCAL SUPPORT GROUPS. WHILE MOST GROUPS WOULD GENERALLY MEET BI-MONTHLY AND HAVE AN AVERAGE ATTENDANCE OF 25-20 PEOPLE. IN 2021 MOST OF OUR SUPPORT GROUPS TRANSITIONED TO ONLINE THROUGH THE ZOOM PLATFORM AND WE WERE ABLE TO SERVE APPROXIMATELY 1500+ PATIENTS/CAREGIVERS AND FAMILY MEMBERS AND ARE NOW SLOWLY RETURNING TO IN-PERSON MEETINGS.EDUCATION DAYS: THE SCLERODERMA FOUNDATION HOSTED AN ONLINE EDUCATION EVENT FOR PATIENTS, FAMILY MEMBERS AND CAREGIVERS IN 2021 WITH THE TOTAL NUMBER WHO BENEFITTED APPROXIMATELY 200.


AS FOUNDING MEMBERS OF THE ORIGINAL SCLERODERMA FOUNDATION, WE WILL CONTINUE OUR AFFILIATION WITH THE SCLERODERMA FOUNDATION OF GREATER CHICAGO AND THE SCLERODERMA FOUNDATION OF GREATER WASHINGTON DC. WORKING TOGETHER, OUR ORGANIZATIONS SHARE A MISSION COMMITTED TO IMPROVING THE QUALITY OF LIFE AND FULLY SUPPORTING RESEARCH. THROUGH THIS PARTNERSHIP WE WILL EXPAND OUR EDUCATION MISSION INITIATIVES TO INCLUDE OUTREACH TO THE MEDICAL COMMUNITY PROVIDING THE EDUCATION NEEDED TO FULLY UNDERSTAND AND PROPERLY DIAGNOSIS SCLERODERMA. ADDITIONALLY, WE WILL HELP FUND GLOBAL RESEARCH PROJECTS.


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Board, Officers & Key Employees

Name (title)Compensation
Andrew Emmett
Executive Director
$115,000
Chris Pettit
Vice President
$0
David Parker
Secretary
$0
Dr Dan Furst
Vice President
$0
Maria Salinas
Treasurer
$0
Peggy Hickman
President
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$225
Fundraising events$88,288
Related organizations$0
Government grants $105,700
All other contributions, gifts, grants, and similar amounts not included above$228,449
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$422,662
Total Program Service Revenue$0
Investment income $0
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events -$228
Net Income from Gaming Activities $160
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $422,594

Grants Recieved

Over the last fiscal year, we have identified 3 grants that Scleroderma Foundation Southern California Chapter has recieved totaling $27,096.

Awarding OrganizationAmount
Frontstream Global Fund

Alexandria, VA

PURPOSE: Use by the organization's general fund

$26,061
The Duke Energy Foundation

Charlotte, NC

PURPOSE: MATCHING GIFTS

$1,000
Pfizer Foundation Inc

New York, NY

PURPOSE: MATCHING GIFTS

$35
View Grant Recipient Profile

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