American Syringomyelia Alliance Project Inc
- Assets
- $3.4m
- Revenue
- $1.2m
- Investments
- $0.0
- Employees
- 3
- Location
- Longview, TX
- Founding
- 01/1989
- Data as of
- 05/2022
- EIN
- 75-2245195
Organization Overview
American Syringomyelia Alliance Project Inc, operating under the name American Syringomyelia & Chiari Alliance Project Inc, is located in Longview, TX. The organization was established in 1989. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 05/2022, American Syringomyelia & Chiari Alliance Project Inc employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. American Syringomyelia & Chiari Alliance Project Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 05/2022, American Syringomyelia & Chiari Alliance Project Inc generated $1.2m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 17.8% each year . All expenses for the organization totaled $346.8k during the year ending 05/2022. While expenses have increased by 1.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, American Syringomyelia & Chiari Alliance Project Inc has awarded 24 individual grants totaling $596,741. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO PROVIDE SUPPORT FOR PERSONS AFFECTED BY SYRINGOMYELIA AND CHIARI MALFORMATION WHILE RAISING FUNDS TO CONDUCT RESEARCH FOR A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
ASAP WORKS TOWARD ACCOMPLISHING ITS MISSION BY PROVIDING SUPPORT AND EDUCATION, INCREASING AWARENESS, EARLY IDENTIFICATION OF PATIENTS AND UNDERSTANDING OF SYMPTOMS, CAUSE AND MANAGEMENT OF THE DISORDERS. WE ACCOMPLISH THIS THROUGH NEWSLETTERS, WEBSITE, ANNUAL MEDICAL CONFERENCE, SUPPORT GROUP MEETINGS, AND WEBINARS.
ASAP WORKS TOWARD ACCOMPLISHING ITS MISSION BY FUNDING RESEARCH. ASAPS GOALS INCLUDE INCREASING PUBLIC AWARENESS OF THE EXISTENCE OF THE DISORDER AND ITS DEVASTATING EFFECTS FINANCIALLY SUPPORTING RESEARCH EFFORTS AND RAISING FUNDS TO FIND ALL CAUSES, TO DEVELOP NEW TREATMENTS AND TO IMPROVE EXISTING TREATMENTS COORDINATING THE EFFORTS OF ORGANIZATIONS WORKING TOWARDS IMPROVING THE LIVES OF PEOPLE WITH SYRINGOMYELIA AND/OR CHIARI
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Patrice Schaublin Executive Director | Officer | 35 | $65,735 |
Michele Raye Secretary | OfficerTrustee | 2 | $0 |
Eric Berning President | OfficerTrustee | 1 | $0 |
Annie Chapman Treasurer | OfficerTrustee | 2 | $0 |
Brian Dlouhy MD Director | Trustee | 1 | $0 |
Richard Simon Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $160 |
| Fundraising events | $40,000 |
| Related organizations | $0 |
| Government grants | $39,563 |
| All other contributions, gifts, grants, and similar amounts not included above | $76,405 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $156,128 |
| Total Program Service Revenue | $0 |
| Investment income | -$17,894 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $1,065,799 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $7,012 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $344 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,211,738 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $80,123 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $65,984 |
| Compensation of current officers, directors, key employees. | $9,898 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $104,025 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $13,237 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $24,039 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $9,437 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $2,785 |
| Information technology | $12,351 |
| Royalties | $0 |
| Occupancy | $3,600 |
| Travel | $519 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $2,221 |
| Insurance | $5,214 |
| All other expenses | $790 |
| Total functional expenses | $346,847 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $477,595 |
| Savings and temporary cash investments | $2,055,518 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $79,525 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $16,946 |
| Net Land, buildings, and equipment | $1,028 |
| Investments—publicly traded securities | $749,170 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $1,417 |
| Other assets | $17,423 |
| Total assets | $3,398,622 |
| Accounts payable and accrued expenses | $2,142 |
| Grants payable | $34,117 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $36,259 |
| Net assets without donor restrictions | $3,362,363 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,398,622 |
Grants Awarded
Over the last fiscal year, American Syringomyelia Alliance Project Inc has awarded $80,123 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
GLOBAL NEUROSCIENCES INSTITUTE PURPOSE: Medical Research | $39,340 |
Redwood City, CA PURPOSE: Medical Research | $34,117 |
Salt Lake City, UT PURPOSE: Medical Research | $6,666 |
Grants Recieved
Over the last fiscal year, we have identified 5 grants that American Syringomyelia Alliance Project Inc has recieved totaling $26,512.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $13,601 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $6,208 |
Berger Family Foundation Inc New York, NY PURPOSE: FOR CHARITABLE PURPOSE OF ORGANIZATION | $5,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,652 |
Westfield Insurance Foundation Westfield Center, OH PURPOSE: GENERAL DONATION | $51 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Recovery Resource Council Fort Worth, TX | $4,759,649 | $9,904,846 |
Sanford P & Irene F Burnstein Charitable Foundation Tulsa, OK | $81,529,191 | $9,320,612 |
Chi St Josephs Children Albuquerque, NM | $107,979,051 | $7,915,838 |
Hoy Recovery Program Inc Espanola, NM | $1,722,107 | $2,184,561 |
Halo House Foundation Houston, TX | $16,177,181 | $1,104,819 |
Apple Group Inc Jonesboro, AR | $624,729 | $1,402,805 |
Houston Va Research & Education Foundation Houston, TX | $8,399,149 | $1,838,829 |
Face To Face Enrichment Center Hammond, LA | $70,764 | $435,702 |
Sturge-Weber Foundation Houston, TX | $522,921 | $376,017 |
El Paso Diabetes Association Inc El Paso, TX | $281,963 | $572,135 |
Imagine A Way Leander, TX | $1,264,102 | $735,284 |
American Syringomyelia Alliance Project Inc Longview, TX | $3,398,622 | $1,211,738 |