Foundation To Eradicate Duchenne Inc
- Assets
- $773.3k
- Revenue
- $921.7k
- Investments
- $0.0
- Employees
- 0
- Location
- Alexandria, VA
- Founding
- 05/2002
- Data as of
- 12/2021
- EIN
- 71-0874241
Organization Overview
Foundation To Eradicate Duchenne Inc is located in Alexandria, VA. The organization was established in 2002. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Foundation To Eradicate Duchenne Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Foundation To Eradicate Duchenne Inc generated $921.7k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 2.9% each year. All expenses for the organization totaled $726.2k during the year ending 12/2021. While expenses have increased by 5.3% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Foundation To Eradicate Duchenne Inc has awarded 29 individual grants totaling $3,101,248. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO FUND RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY, IN HOPES OF FINDING A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ORGANIZATION AWARDED RESEARCH GRANTS IN THE AMOUNT OF $509,989 DURING 2021. THESE GRANTS WERE AWARDED TO FUND THE DEVELOPMENT OF POTENTIAL THERAPIES FOR DUCHENNE MUSCULAR DYSTROPHY UTILIZING STRATEGIES DESIGNED TO REPAIR THE GENETIC FLAW OF THIS CATASTROPHIC, SINGLE-GENE-DEFECT DISORDER; SUPPORT ACADEMIC RESEARCH INSTITUTIONS IN EFFORTS TO BRING THERAPIES TO THE MARKETPLACE THAT WOULD COMPENSATE FOR THE LACK OF A PROTEIN ESSENTIAL IN MUSCLE REGENERATION AND REPAIR; AND FUND SCIENTIFIC WORKSHOPS FOR LEADING MUSCLE RESEARCHERS AND CLINICIANS TO EFFECTIVELY COLLABORATE ON STRATEGIES FOR TRANSLATION APPROACHES TO MUSCULAR DYSTROPHY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Joel R Wood President/chairman | OfficerTrustee | 10 | $0 |
Scott Sinder Secretary | OfficerTrustee | 5 | $0 |
James Wood Treasurer | OfficerTrustee | 1 | $0 |
Brad Todd Director | Trustee | 1 | $0 |
Dan Carson Director | Trustee | 1 | $0 |
Dave Heil Director | Trustee | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Cornerstone Goverment Affairs Administrative | 12/30/21 | $120,000 |
Epiphany Productions Inc Fundraising & Administrative | 12/30/21 | $110,631 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $629,683 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $180,000 |
| Noncash contributions included in lines 1a–1f | $180,000 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $809,683 |
| Total Program Service Revenue | $0 |
| Investment income | $226 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $921,694 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $509,989 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $23,400 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $60,000 |
| Fees for services: Fundraising | $72,000 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $3,172 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $726,171 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $157,528 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $10,000 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $33,961 |
| Investments—other securities | $0 |
| Investments—program-related | $571,771 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $773,260 |
| Accounts payable and accrued expenses | $126,989 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $126,989 |
| Net assets without donor restrictions | $646,271 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $773,260 |
Grants Awarded
Over the last fiscal year, Foundation To Eradicate Duchenne Inc has awarded $441,989 in support to 5 organizations.
| Grant Recipient | Amount |
|---|---|
Washington, DC PURPOSE: FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $200,000 |
New York, NY PURPOSE: FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $91,153 |
Huntington, WV PURPOSE: FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $65,000 |
Washington, DC PURPOSE: FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $50,000 |
Pittsburgh, PA PURPOSE: FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $35,836 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that Foundation To Eradicate Duchenne Inc has recieved totaling $90,000.
| Awarding Organization | Amount |
|---|---|
Council Of Insurance Agents & Brokers Washington, DC PURPOSE: CHARITABLE DONATION | $50,000 |
Millennium Evergreen Charitable Fund Owings Mills, MD PURPOSE: GENERAL SUPPORT | $25,000 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $7,500 |
Bgr Foundation Inc Washington, DC PURPOSE: OPERATING EXPENSES | $5,000 |
Vincent Dowling Family Foundation Inc Wilmington, DE PURPOSE: GENERAL & UNRESTRICTED | $1,000 |
H-M Foundation Washington, DC PURPOSE: GENERAL SUPPORT | $1,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
American Diabetes Association Arlington, VA | $0 | $9,794,159 |
Diabetes Research And Wellness Foundation Inc Washington, DC | $1,212,981 | $4,864,791 |
Center For Disease Dynamics Economics & Policy Inc Silver Spring, MD | $14,711,427 | $16,249,766 |
Hae International Fairfax, VA | $3,180,966 | $2,676,110 |
Foundation To Eradicate Duchenne Inc Alexandria, VA | $773,260 | $921,694 |
Spirovation Inc Chapel Hill, NC | $312,662 | $756,831 |
The Focus Foundation Inc Davidsonville, MD | $629,788 | $285,564 |
Bruce Edwards Als Research Foundation Inc Crownsville, MD | $227,432 | $0 |
Vascular Specialist Education Foundation Inc Virginia Beach, VA | $0 | $0 |
North Carolina Foundation For Alcohol And Drug Studies Inc Greenville, NC | $512,883 | $203,212 |
Virginia Diabetes Council Chesterfield, VA | $64,309 | $192,071 |
Ehlers-Danlos Research Foundation Pikesville, MD | $320,805 | $301,721 |