Hemophilia Council Of California
- Assets
- $449.9k
- Revenue
- $254.4k
- Investments
- $0.0
- Employees
- 2
- Location
- Sacramento, CA
- Founding
- 11/1994
- Data as of
- 12/2021
- EIN
- 68-0182998
Organization Overview
Hemophilia Council Of California is located in Sacramento, CA. The organization was established in 1994. As of 12/2021, Hemophilia Council Of California employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hemophilia Council Of California is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Hemophilia Council Of California generated $254.4k in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of (1.2%) each year. All expenses for the organization totaled $243.5k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF HCC IS TO IMPROVE ACCESS TO CARE AND TREATMENT OPTIONS IN ORDER TO ADVANCE THE QUALITY OF LIFE FOR PEOPLE WITH BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, AND OUTREACH IN THE COLLABORATION WITH ITS FOUNDING MEMBER ORGANIZATIONS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
HEALTHCARE & PUBLIC POLICY EDUCATION INCLUDES: 1) BI-MONTHLY WEBINARS ON ACCESSING INSURANCE, PATIENT HEALTHCARE ADVOCACY, PATIENT ASSISTANCE PROGRAMS, AND PUBLIC POLICY AFFECTING PEOPLE WITH BLEEDING DISORDERS. 2) REGIONAL EDUCATIONAL PRESENTATIONS ON PUBLIC POLICY, HEALTHCARE ACCESS, AND PATIENT SELF-ADVOCACY. 3) CREATION OF FACT SHEETS AND OTHER EDUCATIONAL MATERIALS ON HEALTHCARE ACCESS, ADVOCACY SKILLS, GOVERNMENT EDUCATION, AND HEALTHCARE POLICIES. 4) MONITORING OF LEGISLATION, POLICIES OF HEALTH-RELATED GOVERNMENT AGENCIES, AND ACTIVITIES OF HCC'S FOUNDING ORGANIZATIONS SO THAT TIMELY BULLETINS ON CURRENT EVENTS CAN BE CREATED AND SENT TO THE BLEEDING DISORDERS COMMUNITY.
LEGISLATIVE ADVOCACY INCLUDES ALL ACTIVITIES INTENDED TO INFLUENCE LEGISLATION AND THE DECISIONS OF LEGISLATORS.
HEALTH POLICY SUMMIT - AN ANNUAL SUMMIT ON HEALTHCARE POLICY AND CONSUMER HEALTHCARE ACCESS BARRIERS. ATTENDED BY PHARMACIES, PHARMACEUTICAL MANUFACTURERS, HEALTH CARE PROVIDERS, PATIENT ADVOCATES AND REGIONAL/NATIONAL PATIENT ORGANIZATIONS, AND HEALTH-RELATED STATE GOVERNMENT AGENCIES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Lynne Kinst Executive Dir. | Officer | 40 | $82,611 |
Michael Bradley Vice President | OfficerTrustee | 5 | $0 |
Adam Wilmers President | OfficerTrustee | 5 | $0 |
Oscar Horta Treasurer | OfficerTrustee | 2 | $0 |
Lauren Hay Secretary | OfficerTrustee | 5 | $0 |
Stephanie Dansker Board Member | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $14,655 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $14,655 |
| Total Program Service Revenue | $239,649 |
| Investment income | $129 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $254,433 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $82,611 |
| Compensation of current officers, directors, key employees. | $21,411 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $39,220 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $15,588 |
| Payroll taxes | $9,844 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $8,815 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $60,773 |
| Advertising and promotion | $0 |
| Office expenses | $957 |
| Information technology | $2,018 |
| Royalties | $0 |
| Occupancy | $3,991 |
| Travel | $1,045 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $1,830 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $142 |
| Insurance | $3,519 |
| All other expenses | $100 |
| Total functional expenses | $243,516 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $50,217 |
| Savings and temporary cash investments | $399,023 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $514 |
| Net Land, buildings, and equipment | $126 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $449,880 |
| Accounts payable and accrued expenses | $655 |
| Grants payable | $0 |
| Deferred revenue | $15,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $15,655 |
| Net assets without donor restrictions | $434,225 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $449,880 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Hemophilia Council Of California has recieved totaling $26,120.
| Awarding Organization | Amount |
|---|---|
Hemophilia Alliance Foundation Lansdale, PA PURPOSE: PROMOTE HEMOPHILIA | $16,000 |
The National Hemophilia Foundation New York, NY PURPOSE: STATE BASED ADVOCACY COALITION GRANT | $10,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $120 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Washington Institute For Coagulation Seattle, WA | $62,548,021 | $104,303,330 |
Cares Community Health Sacramento, CA | $71,949,456 | $81,896,578 |
Benevolent Healthcare Foundation Centennial, CO | $130,477,128 | $61,228,597 |
Desert Aids Project Palm Springs, CA | $65,856,299 | $72,247,945 |
Pancreatic Cancer Action Network Inc Manhattan Beach, CA | $68,159,698 | $52,930,843 |
American Academy Of Ophthalmology Inc San Francisco, CA | $120,788,261 | $63,345,501 |
San Francisco Aids Foundation San Francisco, CA | $36,045,464 | $48,968,255 |
Barrow Neurological Foundation Phoenix, AZ | $175,375,850 | $31,938,606 |
United Cerebral Palsy Spastic Childrens Foundation Woodland Hills, CA | $11,510,499 | $31,597,393 |
National Kidney Foundation Of Hawaii Honolulu, HI | $11,432,320 | $29,422,097 |
University Of Western States Portland, OR | $51,352,930 | $32,376,677 |
Lifelong-Health For All Seattle, WA | $7,822,308 | $26,252,919 |