The Mast Cell Disease Society Inc
- Assets
- $1.1m
- Revenue
- $466.1k
- Investments
- $0.0
- Employees
- 5
- Location
- Sterling, MA
- Founding
- 04/1997
- Data as of
- 12/2023
- EIN
- 52-1959601
Organization Overview
The Mast Cell Disease Society Inc is located in Sterling, MA. The organization was established in 1997. According to its NTEE Classification (F60) the organization is classified as: Counseling, under the broad grouping of Mental Health & Crisis Intervention and related organizations. As of 12/2023, Mast Cell Disease Society Inc employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Mast Cell Disease Society Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Mast Cell Disease Society Inc generated $466.1k in total revenue. This organization has experienced exceptional growth, as over the past 9 years, it has increased revenue by an average of 12.6% each year . All expenses for the organization totaled $462.5k during the year ending 12/2023. While expenses have increased by 16.4% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE MAST CELL DISEASE SOCIETY, INC IS DEDICATED TO PROVIDING MULTI-FACETED SUPPORT TO PATIENTS, FAMILIES, AND MEDICAL PROFESSIONALS IN OUR COMMUNITY AND TO LEADING THE ADVANCEMENT OF KNOWLEDGE AND RESEARCH IN MAST CELL DISEASES THROUGH EDUCATION, ADVOCACY, AND COLLABORATION.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ANNUAL MEETING BRINGS MEDICAL PROFESSIONALS AND TMS MEMBERS TOGETHER FOR MEDICAL PRESENTATIONS ON MAST CELL DISEASE CONCERNS. IN ADDITION, THE MEETING OFFERS PANEL DISCUSSIONS WITH LEADING EXPERTS, WELLNESS WORKSHOPS, AND SUPPORT GROUP ACTIVITIES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Celeste Finnerty Vice Chair | OfficerTrustee | 20 | $0 |
Jennifer Nicoloro-Santabarbara Secretary | OfficerTrustee | 1 | $0 |
Courtney Rabb Vice Chair | OfficerTrustee | 5 | $0 |
Rosemary Schultz Interim Treasurer | OfficerTrustee | 10 | $0 |
Judith Emmel Chair | OfficerTrustee | 20 | $0 |
Jessica Fraser Executive Director | OfficerTrustee | 20 | $77,846 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $455,536 |
| Noncash contributions included in lines 1a–1f | $350 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $455,536 |
| Total Program Service Revenue | $2,424 |
| Investment income | $8,163 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $466,123 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $30,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $77,846 |
| Compensation of current officers, directors, key employees. | $3,724 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $203,431 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $24,973 |
| Payroll taxes | $20,477 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $28,044 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $23,466 |
| Advertising and promotion | $0 |
| Office expenses | $5,611 |
| Information technology | $18,397 |
| Royalties | $0 |
| Occupancy | $1,020 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $12,186 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $5,436 |
| All other expenses | $0 |
| Total functional expenses | $462,451 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $994,862 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $97,909 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $2,683 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,095,454 |
| Accounts payable and accrued expenses | $32,214 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $32,214 |
| Net assets without donor restrictions | $841,307 |
| Net assets with donor restrictions | $221,933 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,095,454 |
Grants Awarded
Over the last fiscal year, The Mast Cell Disease Society Inc has awarded $110,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
MAYO CLINIC PURPOSE: MASTOCYTOSIS RESEARCH | $50,000 |
BRIGHAM & WOMENS HOSPITAL PURPOSE: MASTOCYTOSIS RESEARCH | $60,000 |