Curepsp Inc
- Assets
- $7.9m
- Revenue
- $3.8m
- Investments
- $0.0
- Employees
- 12
- Location
- New York, NY
- Founding
- 06/1991
- Data as of
- 06/2022
- EIN
- 52-1704978
Organization Overview
Curepsp Inc is located in New York, NY. The organization was established in 1991. According to its NTEE Classification (G90) the organization is classified as: Medical Disciplines, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2022, Curepsp Inc employed 12 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Curepsp Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Curepsp Inc generated $3.8m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 2.4% each year. All expenses for the organization totaled $3.5m during the year ending 06/2022. While expenses have increased by 1.3% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Curepsp Inc has awarded 47 individual grants totaling $3,375,311. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO RAISE AWARENESS, BUILD COMMUNITY, IMPROVE CARE AND FIND A CURE FOR PSP, CBD AND MSA.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CUREPSP IS A CATALYST FOR NEW TREATMENTS AND A CURE. AS SUCH, IT ADVANCES THE UNDERSTANDING AND SEEKS TREATMENT AND A CURE FOR PROGRESSIVE SUPRANUCLEAR PALSY (PSP), CORTICOBASAL DEGENERATION (CBD), AND MULTIPLE SYSTEM ATROPHY (MSA). THE SCIENCE THAT IS ADVANCED BY CUREPSP ALSO BENEFITS THE BROADER FIELD OF RESEARCH IN NEURODEGENERATION, INCLUDING ALZHEIMERS AND PARKINSONS DISEASES, IN ADDITION TO OTHER RARE NEURODEGENERATIVE DISEASES. CONTINUED ON SCHEDULE O
CUREPSP ADVOCATES FOR PATIENTS, FAMILIES, AND CAREGIVERS LIVING WITH OR MANAGING PSP, CBD, AND MSA. THE GOAL OF CUREPSP IS TO IMPROVE THE QUALITY OF LIFE AND PATIENT OUTCOMES AND TO CREATE A COMMUNITY TO INCREASE RESILIENCE AND ACCELERATE PROBLEM-SOLVING. CUREPSP DOES THIS THROUGH THE ORGANIZATION OF FAMILY CONFERENCES, CAREGIVER RETREATS, VOLUNTEER DEVELOPMENT, PROFESSIONAL EDUCATION, ONLINE AND PRINTED RESOURCES, AND THE DISSEMINATION OF RELEVANT INFORMATION ON SOCIAL MEDIA. CUREPSP SUPPORTS MORE THAN 50 VIRTUAL AND IN-PERSON SUPPORT GROUPS AND HAS OVER 250 VOLUNTEERS PROVIDING ONLINE, TELEPHONE, AND FACE-TO-FACE SUPPORT WORLDWIDE. CONTINUED ON SCHEDULE O
CUREPSP PUBLISHES A LIBRARY OF PRINTED AND ONLINE EDUCATIONAL MATERIALS FOR FAMILIES, PATIENTS, PHYSICIANS, AND OTHER HEALTHCARE PROFESSIONALS. THESE MATERIALS ARE DEVELOPED IN COLLABORATION WITH CUREPSP CENTERS OF CARE, A NETWORK OF HOSPITALS AND BEST-IN-CLASS ACADEMIC CENTERS SPECIALIZING IN TREATING PATIENTS WITH PSP, CBD, AND MSA. CUREPSP SPONSORS PROFESSIONAL EDUCATIONAL CONFERENCES IN COLLABORATION WITH LEADING INSTITUTIONS TO INCREASE KNOWLEDGE OF THE DISEASE THAT WILL LEAD TO EARLIER AND MORE ACCURATE DIAGNOSIS AND BETTER PATIENT CARE. SEVERAL DOZEN VOLUNTEER EVENTS ANNUALLY, SUPPORTED BY CUREPSP, FURTHER EDUCATE THE PUBLIC. CUREPSP USES SEVERAL SOCIAL MEDIA PLATFORMS TO COMMUNICATE WITH ITS CONSTITUENTS, MAINTAINS AN ONLINE PATIENT AND CAREGIVER FORUM, AND PRODUCES NATIONAL WEBINARS, ONLINE SUPPORT GROUPS, AND ONLINE PRESENTATIONS FROM CLINICIANS AND RESEARCHERS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
David Kemp President | Officer | 40 | $200,000 |
Kristophe Diaz Executive Dir. | Officer | 40 | $190,885 |
William Mcfarland Chair | OfficerTrustee | 6 | $0 |
Amy Branch Vice Chair | OfficerTrustee | 10 | $0 |
Justin Shea Treasurer | OfficerTrustee | 2 | $0 |
Lawrence Levien Secretary | OfficerTrustee | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Kiwi Partners Inc Accounting Services | 6/29/22 | $108,041 |
Regina Printing Printing Services | 6/29/22 | $433,298 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $387,433 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $3,198,112 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $3,585,545 |
| Total Program Service Revenue | $0 |
| Investment income | $237,008 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$19,626 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,806,911 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $60,663 |
| Grants and other assistance to domestic individuals. | $826,900 |
| Grants and other assistance to Foreign Orgs/Individuals | $103,500 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $324,954 |
| Compensation of current officers, directors, key employees. | $50,191 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $598,358 |
| Pension plan accruals and contributions | $8,749 |
| Other employee benefits | $121,633 |
| Payroll taxes | $68,361 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $61,530 |
| Fees for services: Accounting | $123,675 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $12,957 |
| Fees for services: Other | $157,630 |
| Advertising and promotion | $0 |
| Office expenses | $20,252 |
| Information technology | $153,229 |
| Royalties | $0 |
| Occupancy | $66,686 |
| Travel | $93,313 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $5,372 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $3,338 |
| Insurance | $15,382 |
| All other expenses | $1,914 |
| Total functional expenses | $3,461,407 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,509,198 |
| Savings and temporary cash investments | $363,665 |
| Pledges and grants receivable | $56,899 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $144,499 |
| Net Land, buildings, and equipment | $3,650 |
| Investments—publicly traded securities | $5,658,237 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $127,054 |
| Total assets | $7,863,202 |
| Accounts payable and accrued expenses | $205,592 |
| Grants payable | $676,670 |
| Deferred revenue | $223,513 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $1,105,775 |
| Net assets without donor restrictions | $5,663,353 |
| Net assets with donor restrictions | $1,094,074 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $7,863,202 |
Grants Awarded
Over the last fiscal year, Curepsp Inc has awarded $701,900 in support to 8 organizations.
| Grant Recipient | Amount |
|---|---|
COLUMBIA UNIVERSITY PURPOSE: Research | $50,000 |
ICAHN SCHOOL OF MEDICINE AT M PURPOSE: Research | $75,000 |
MASSACHUSETTS GENERAL HOSPITA PURPOSE: Research | $90,000 |
NORTH TEXAS COMMUNITY FDTN PURPOSE: Research | $106,900 |
THE REGENTS OF THE UCLA PURPOSE: Research | $90,000 |
UNIVERSITY OF PENNSYLVANIA PURPOSE: Research | $100,000 |