Epilepsy Foundation Of America
- Assets
- $20.4m
- Revenue
- $21.9m
- Investments
- $443.7k
- Employees
- 111
- Location
- Bowie, MD
- Founding
- 02/1959
- Data as of
- 06/2022
- EIN
- 52-0856660
Organization Overview
Epilepsy Foundation Of America, operating under the name Epilepsy Foundation, is located in Bowie, MD. The organization was established in 1959. According to its NTEE Classification (G54) the organization is classified as: Epilepsy, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2022, Epilepsy Foundation employed 111 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Epilepsy Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Epilepsy Foundation generated $21.9m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.5% each year. All expenses for the organization totaled $17.7m during the year ending 06/2022. While expenses have increased by 3.3% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Epilepsy Foundation has awarded 174 individual grants totaling $13,736,297. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
WE IMPROVE AND SAVE LIVES THROUGH COMMUNITY SERVICES, EDUCATION, ACCESS TO CARE, AND RESEARCH.
Describe the Organization's Program Activity:
Part 3 - Line 4a
ADVOCACY FOR INDIVIDUALS, FAMILIES AND COMMUNITIES - THE FOUNDATION IS ON THE FRONT LINES HELPING ENSURE ALL PEOPLE LIVING WITH EPILEPSY AND SEIZURES, AND THEIR FAMILIES AND COMMUNITIES, RECEIVE THE BEST POSSIBLE SERVICES AND CARE. THE FOUNDATION DEVELOPS NATIONWIDE PROGRAMS AVAILABLE THROUGH ITS NETWORK OF NEARLY 50 CHAPTERS AND AFFILIATES AND ALSO ON EPILEPSY.COM. PROGRAMS AND INITIATIVES FOCUS ON ENGAGING PARENTS, CHILDREN AND ADULTS IN IMPROVING THEIR QUALITY OF LIFE. THE FOUNDATION ALSO HAS PROGRAMS DEDICATED TO ENDING EARLY DEATH FROM EPILEPSY AND IN IMPROVING OVERALL WELLNESS. THE PROGRAMS ARE DESIGNED TO BE CULTURALLY AND ETHNICALLY DIVERSE. THE FOUNDATION AND ITS GRASSROOTS VOLUNTEERS ACROSS THE COUNTRY ADVOCATE AT THE FEDERAL AND STATE LEVELS TO SECURE FUNDING FOR EPILEPSY PROGRAMS.
PUBLIC HEALTH, EDUCATION AND AWARENESS - THE FOUNDATION LEADS THE FIGHT TO END EPILEPSY BY CREATING AWARENESS THROUGH NATIONAL MEDIA OUTREACH WITH TRADITIONAL AND DIGITAL CHANNELS INCLUDING EPILEPSY.COM AND SOCIAL MEDIA AND THROUGH THE DIRECT MAIL PROGRAM WHICH SERVES THE DUAL PURPOSE OF RAISING FUNDS FOR THE ORGANIZATION AND INCREASING AWARENESS OF THEFOUNDATION'S CAUSE. THE FOUNDATION EDUCATES ABOUT SEIZURE RECOGNITION AND FIRST AID, EMPHASIZING THE IMPORTANCE OF EARLY AND ACCURATE DIAGNOSIS, WHEN TO SEEK SPECIALTY CARE, AND PURSUIT OF WELLNESS AND BEST QUALITY OF LIFE. THE FOUNDATION EDUCATES THROUGH ENGAGEMENT WITHMEDIA SOURCES, PARTNERSHIPS WITH OTHER NON-PROFIT, PROFESSIONAL AND GOVERNMENT ORGANIZATIONS. THE FOUNDATION'S EPILEPSY LEARNING HEALTHCARE SYSTEM NETWORK IS A PUBLIC HEALTH INITIATIVE TO DRIVE QUALITY IMPROVEMENT AND HEALTH SERVICES RESEARCH TO IMPROVE OUTCOMES FOR PEOPLE WITH EPILEPSY.
RESEARCH, INNOVATION, AND NEW THERAPIES - BRINGING INNOVATIVE NEW THERAPIES IN A TIMEFRAME THAT MATTERS IS A DRIVING FORCE AND KEY STRATEGIC PRIORITY FOR THE FOUNDATION. THROUGH THE EPILEPSY THERAPY PROJECT, THE FOUNDATION ACCELERATES DEVELOPMENT OF INNOVATIVE THERAPIES, PREVENTION, AND CURES FOR ALL FORMS OF THE EPILEPSIES, AND ADDRESSES GAPS IN THE RESEARCH AND COMMERCIALIZATION CONTINUUM. OTHER KEY INITIATIVES INCLUDE RESEARCH TO ERADICATE SUDEP, ANALYSIS OF DATA FROM PATIENT REGISTRIES FOR COMMON AND RARE FORMS OF EPILEPSY IN THE HUMAN EPILEPSY PROJECT AND THE RARE EPILEPSY NETWORK, SUPPORT FOR PROMISING AND MERITORIOUS RESEARCH GRANT AND FELLOWSHIP APPLICATIONS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Laura Thrall CEO | OfficerTrustee | 35 | $403,076 |
Rahel Rosner Chief Finance & Operations Officer | Officer | 35 | $239,278 |
Geoffrey Delizzio Chief Development Officer | Officer | 35 | $216,317 |
Brandy E Fureman Chief Outcomes Officer | Officer | 35 | $211,831 |
Laura Weidner VP Gov't Relations & Advocacy | Officer | 35 | $176,788 |
Gail Pundsack VP Field Operations (to Dec '21) | 35 | $148,548 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Innerworkings Fundraising Services | 6/29/22 | $618,737 |
Deloitte Consulting Llp Consulting Services | 6/29/22 | $657,342 |
Ricoh Usa Inc It Support Services | 6/29/22 | $322,204 |
Cbs Television Studios Advertising Services | 6/29/22 | $296,516 |
Embleema Consulting Services | 6/29/22 | $297,000 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $2,999,473 |
| Related organizations | $0 |
| Government grants | $6,023,630 |
| All other contributions, gifts, grants, and similar amounts not included above | $11,346,502 |
| Noncash contributions included in lines 1a–1f | $1,007,923 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $20,369,605 |
| Total Program Service Revenue | $642,816 |
| Investment income | $44 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $44 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $2,003,783 |
| Net Income from Fundraising Events | -$1,139,334 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | -$105,248 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $21,897,167 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $653,783 |
| Grants and other assistance to domestic individuals. | $21,756 |
| Grants and other assistance to Foreign Orgs/Individuals | $25,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $1,457,347 |
| Compensation of current officers, directors, key employees. | $153,873 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $5,586,500 |
| Pension plan accruals and contributions | $322,498 |
| Other employee benefits | $463,725 |
| Payroll taxes | $493,252 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $181,544 |
| Fees for services: Accounting | $105,402 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $276,575 |
| Fees for services: Investment Management | $5,375 |
| Fees for services: Other | $5,196,518 |
| Advertising and promotion | $6,921 |
| Office expenses | $766,535 |
| Information technology | $18,083 |
| Royalties | $0 |
| Occupancy | $114,180 |
| Travel | $226,680 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $406,866 |
| Interest | $163,932 |
| Payments to affiliates | $518,440 |
| Depreciation, depletion, and amortization | $151,992 |
| Insurance | $195,477 |
| All other expenses | $270,057 |
| Total functional expenses | $17,733,098 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $3,843,898 |
| Savings and temporary cash investments | $381,656 |
| Pledges and grants receivable | $1,340,659 |
| Accounts receivable, net | $35,164 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $225,000 |
| Inventories for sale or use | $3,777 |
| Prepaid expenses and deferred charges | $375,431 |
| Net Land, buildings, and equipment | $141,487 |
| Investments—publicly traded securities | $10,308,126 |
| Investments—other securities | $443,715 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $3,285,852 |
| Total assets | $20,384,765 |
| Accounts payable and accrued expenses | $2,812,619 |
| Grants payable | $204,710 |
| Deferred revenue | $170,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $3,187,329 |
| Net assets without donor restrictions | $10,747,660 |
| Net assets with donor restrictions | $6,449,776 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $20,384,765 |
Grants Awarded
Over the last fiscal year, Epilepsy Foundation Of America has awarded $628,773 in support to 7 organizations.
| Grant Recipient | Amount |
|---|---|
Rochester, MN PURPOSE: SEIZURE GAUGE GRANT; NEW THERAPY COMMERCIAL GRANT | $260,773 |
EMBLEENA INC PURPOSE: DEVELOP EPILEPSY DIGITAL EXPERIENCE NAVIGATOR | $200,000 |
Chicago, IL PURPOSE: RESEARCH GRANT | $50,000 |
Minneapolis, MN PURPOSE: SUSAN B. SPENCER GRANT | $50,000 |
Charlottesville, VA PURPOSE: NEW THERAPY COMMERCIAL GRANT | $33,000 |
HEALTHAPPY TECH LLC PURPOSE: 2022 SHARK TANK WINNER | $25,000 |
Grants Recieved
Over the last fiscal year, we have identified 39 grants that Epilepsy Foundation Of America has recieved totaling $1,087,930.
| Awarding Organization | Amount |
|---|---|
T Rowe Price Program For Charitable Giving Inc Baltimore, MD PURPOSE: MULTIPLE | $244,100 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $138,902 |
American Endowment Foundation Hudson, OH PURPOSE: DISEASE/DISORDER | $126,000 |
American Endowment Foundation Hudson, OH PURPOSE: DISEASE/DISORDER | $105,750 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $64,211 |
Color Street Foundation Inc Clifton, NJ PURPOSE: OPERATION SUPPORT | $50,000 |
Endowment Analysis
| Beg. Balance | $4,896,037 |
| Earnings | -$546,368 |
| Other Expense | -$250 |
| Ending Balance | $4,349,919 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Epilepsy Foundation Of America Bowie, MD | $20,384,765 | $21,897,167 |
Abilities Network Inc Towson, MD | $11,053,437 | $7,411,962 |
United Needs And Abilities Inc Salisbury, MD | $11,995,686 | $5,868,799 |
Epilepsy Study Consortium Inc Reston, VA | $1,573,248 | $1,805,835 |
Epilepsy Association Of Western And Central Pa Pittsburgh, PA | $7,114,304 | $960,074 |
Epilepsy Foundation Of Easter Pa Philadelphia, PA | $1,091,076 | $733,901 |
National Assoc Of Epilepsy Centers Washington, DC | $1,607,722 | $558,510 |
Epilepsy Foundation Of Virginia Charlottesville, VA | $1,040,207 | $244,841 |
Epilepsy Foundation Of Delaware Newark, DE | $364,203 | $180,345 |
Epilepsy Foundation Of Virginia Central Virginia Chapter Richmond, VA | $74,933 | $0 |
Rock And Ride For The Cure Inc C/O Roger Panfil Jr Yardley, PA | $0 | $0 |